[Mary] I had a blood sugar situation this morning. It dropped.... [Peter] It was not good. [Mary] Lower than...
♫ [Fun Intro Music] ♫
[Peter] Good morning guys, I just made some lunch which is...
We had some leftover naan from when we made coconut chicken curry.
And so I decided to make it into kind of a flat bread pizza.
So we had a leftover half of a tomato that I sliced thin
and mozzarella cheese and some fresh pears. So that's what I'm having for lunch. Welcome to our day. [Mary] Hey Ollie?
Should we go do our walmart pickup?
Get in the car? [Peter] Oh, okay. [Mary] Oh, okay. Yeah, of course. It's a good idea. Oh bow.
His foot is doing so much better, we're just basically keeping...
Keeping a sock on it to make sure he doesn't lick it and make it
sore again.
And Ollie, are we going to take all the packages? [Peter] Take all the packages
and deliver tote bags to all the people? [Mary] Thank you guys for ordering our tote bags!!! [Walmart employee] Hey, how are you doing? [Peter]  Good. How are you?
[Walmart employee] How you doing? [Mary and Peter] Good, good. [Employee] Last name Frey? [Both] Yep!
[Mary] Yeah, and then we're going to say no to that substitution. [Employee] Okay. [Mary] Thanks so much! Great. Have a good rest of your day!
[Employee] You all have a great day too!
[Mary] Thanks!
Ok. Walmart pick up done.
They are so sweet and um a few weeks ago, we had we ended up running into walmart.
We did a grocery pick up, but I had forgotten a few things. So we went into walmart and grabbed a couple of things.
And I was in the produce section and I saw one of the people who were like doing the...
They were getting the things for the order.
For you know some random person's order.
And I saw her with the cart and I just said hey, thank you for doing walmart, the grocery pickup.
It's really helpful. And she was like
taken off guard for a minute and then she was like, oh,
you've used it? And I was like, yeah, we use it often and we just really appreciate that
you guys do it. And like her face changed and she was just like,
thanks for saying that. Thanks for actually appreciating it. And I was like, oh my gosh, we really appreciate it.
Um, so if you are a person who does grocery pick up at any place,
and you go through the store and you pick out all our random groceries that we,
we order.
Thank you.
It is such a blessing. It, I remember,
probably what, two years ago? [Peter] Yeah.
[Mary] We discovered walmart grocery pickup, not sponsored.
Um, I was pretty stinking sick and it was this feeling of like
I get to contribute to our family by
planning meals and choosing groceries and ordering them.
And then either Peter would go pick them up or we would go together. And I felt like
like it gave me a little bit of power back. So even though I couldn't go get the groceries,
um those who went in and we had built relationships with those people. [Peter] And Nancy from Massachusetts who would do our walmart grocery,
she would always ask how Mary and Oliver are doing because it was often when Mary was sick.
It was in that season where I was going to pick up the groceries.
And anyway, she watched, I don't know if you still watch Nancy, but hi!
And thank you. [Mary] Yeah, seriously, it's just...
Yeah.
I feel like it's a cool
reminder of just kind of the
as humans, we all have a part to play.
And all the parts are important. [Peter] Yeah. [Mary] And we can't do it without each other. So, thank you guys.
We are still enjoying the free Panera.
[Peter]  Yeah, they did like for the summer free coffee.
[Mary] We're like yes, thank you! [Peter] This is like a sign up. We do have to cancel the subscription next month. But, [Mary] Okay. [Peter] It's been amazing.
So we just got an iced coffee and now we’re gonna go take our groceries home.
Yes, but first I have it in my GPS to stop at a CVS because I need more green leaves. [Peter] Got it.
[Mary] I had a blood sugar situation this morning. It dropped... [Peter]  It was not good. [Mary] Lower than
my normal low. It was 42 and I
didn't even feel it. The dexcom didn't catch it.
It was about to expire, so when it's about to expire like the dexcom isn't always accurate.
Um, so the dexcom said I was fine and
all of a sudden I just said to Peter,
it kind of sounds
like my hearing, my hearing changes when I'm really low.
It, so I didn't have the like oh I'm, you know dropping into the 60s. I'm shaky, none of that none of that.
And it, so I just said to him my hearing feels weird. Uh, can you grab my glucometer?
So he grabbed it and I was just like, okay.
I see. This is why my hearing sounds weird. So I rushed.. [Peter] And then..
[Mary] To get a green leaf. I did green leaf and
uh, treated with another,
because I only have one green leaf left and I usually have to have two green leaves.
But anyway, I treated. [Peter] You had gobstoppers. [Mary] Yeah, I had treated and then
five minutes later, it was...
it was like 43 and then it was 42 or something like that. [Peter] And Mary's like I feel like I'm...
could lose consciousness. And so
I rushed over, Mary had an emergency
packet of icing. Like a little tube of icing. [Mary] One of my,
was that the...my first endocrinologist recommended that?
Or was that Amy Dale? [Peter] I don't know but we had this
icing. I opened, I take the cap off and it was one of those where you have to cut the
um like tip of the icing.
So like you, we were like, how do you open this?!
[Mary] I was like, I wasn't functioning. I couldn't even unscrew the cap. [Peter] And she, and
Mary goes, bite it off. So I tried to bite the icing cap.
And um, we were in the working room. I was like
Oh wait, I ran over to my desk took the x-acto knife.
Cut open the icing, it squirted on my workstation, and then took it over to Mary and we squirted it in her mouth.
[Mary Yeah, it worked. [Peter] We’re  laughing about it now. It wasn't really funny in the moment.
[Mary] It's so interesting because I remember growing up.
Um.
One of our CF doctors had mentioned typically Cystic Fibrosis patients, um...
I forget in what context this was, but just the the idea that typically we wouldn't pass out. If we're not on insulin,
typically, we wouldn't pass out from a low blood sugar. Because of the way our pancreas works,
I forget somebody else had explained it to me at once but it didn't stick. [Peter] CF related diabetes is a different...
like malfunction of the pancreas than like type one. [Mary] Right. And since I'm not on insulin, it's...
If you're on insulin, like you can definitely pass out. But since I'm not,
it's unlikely. Because my
liver will kick in or whatever. Okay. I don't know. It's a whole different world.
Anyway, I'm typically not that concerned that I'm gonna pass out. I treat it and that's that and we move on. This one was
I treat it, and then I'm
about the same or a smidge lower.
And then, I was like just feeling like... [Peter] She was she was out of it. [Mary] Yeah, and
the two times I've passed out. I...
The first time I started feeling weird, and that was because somebody was digging in my vein.
And it was a vasovagal passing out situation.
But I, at that point I had never passed out before so I was just like babe...I feel weird.
And then boom, I passed out. The second time, I started feeling it like the world feels different.
That was when I looked at Peter and I was like...
Like I'm gonna pass out. That was during the... [Peter] Transplant eval. [Mary] That evaluation when they were digging in my vein again. [Peter] To do uh,
ABG. [Mary] Yeah, but this time I was just like,
I wanted to tell him. Like, I kind of feel like I could pass out right now.
Just in case. Because I don't want it to be like a surprise. I wanted him to have a heads up.
But thankfully, I did not pass out. It all was fine.
But only, there's only been a couple of times where it has felt a little like...
Okay. If we can't get this blood sugar up like,
but that's why I have that, um,
icing in there. And then we have glucagon, of course.
Um, so but that that's very last.
[Peter]  Yeah, we've never had to use glucogon, but we have it on hand just in case. [Mary] Yes, so. [Peter] So when we're like cutting open the
icing I said, Mary remind me where the glucagon is? [Mary] Yep. Um,
but these are further conversations
uh with,
not only the endocrinologist but I've also had conversation with the diabetes nurse educator, and then also my CF team and my
registered dietitian who who's on the CF team. Super helpful. And basically
there has been some like, I don't wanna, I don't know is antidotal the right word for like this isn't a proven thing via
research studies, but, what they're observing,
Cf teams across the
Nation, whatever.
Is that people tend to have more low blood sugar when on Trikafta. And I can tell you that that is 100% true for me anyway.
I mean one hour after I took the dose I dropped
low. And they're just, for me what I'm noticing is it's lower blood sugar and more stubborn.
like it doesn't just come back up real quick. But then it was interesting,
the dexcom told me I was like 94 and and stable or something. Which was obviously wrong.
But then a few minutes later it changed and it was like 43.
Urgent low. It  just went like boom. And I was like wow!
That was...like you're right, but you're too late, but you're right.
He found them! [Peter] 8 bags!
[Mary] Good job. He had a coupon, so he had to spend a certain amount. [Peter] Yeah.
[Mary] That's awesome. We're stocked. [Peter] Yeah. [Mary] I personally believe that the CVS version are the best.
Because sometimes the grocery store version
doesn't have enough sugar on the outside, or.
[Peter]  Maybe you need to do a comparison, like an actual comparison of all the different kinds to actually
verify that CVS is your favorite.
[Mary] So that me and the other 11 people in the entire world who likes these like literally. [Peter] They’re good!
[Mary] They are, you like them too! [Peter] Yeah, they're minty fresh. [Mary] That's why I ran out of them.
[Peter] My bad! [Mary] Okay. I got a surprise for you. *Mary laughs*
[Peter]  Okay.
I'm nervous because you’re like filming me.
What did you, *gasps* you found?!
[Mary] The beautiful bottles! [Peter] The beautiful
25th anniversary. I wonder what flavor this is. [Mary] I want you to taste it. [Peter]  What is it?
Spirulina or something like that?
[Peter]  I thought spirulina was like... [Mary] I think, I could be wrong. [Peter]  Let's look.
It's blue Spirulina, I don’t know what that is. [Mary] Okay.
Oh, I have no idea!
But I thought, okay.
Here's how I justify the purchase even though you make your own.
It could give you an idea for another flavor and I really wanted those pretty bottles.
So I bought two of them.
[Peter] Whoa.
That's...unique. Yeah, it's good. That...
I'm having trouble like putting my finger on what that flavor is. [Mary] Is it spirulina? [Peter] What is that? [Mary] I have no idea.
*Harry meows* Yeah?
Really?
We just got back from a walk and while we were on our walk I was like, I feel like it's gonna rain.
Yup, it is kind of coming down like crazy.
But that's our night, so thanks for joining us. [Both] And as always, [Peter] We'll see you tomorrow! It's getting foggy.
[Mary] It's so rainy. [Peter] Good night guys.
[Mary] Whoa. Oh boy. Oh boy. Oh boy. Ollie, can you say good night?
Harry can you say good night?
♫ [Outro Music] Don’t you think we’re better together, oh, don’t you think we’re better? ♫
