JUDY WOODRUFF: It's a condition that has flown
under the radar for decades, sometimes referred
to as the invisible disability.
We're talking about fetal alcohol spectrum
disorder, which can happen if a mother drinks
during pregnancy.
Amna Nawaz reports from Minnesota on the problem
and recent research that suggests it may be
far more common than previously thought.
Here's the first of her two stories on the
subject.
CHILD: That's my feet.
AMNA NAWAZ: Moses looks and sounds like your
average healthy 5-year-old.
But his dad, Brandon, noticed Moses didn't
always act like one.
He has trouble with loud noises.
He sometimes gets very upset, much more easily
and intensely than other children.
They're at the University of Minnesota Masonic
Children's Hospital to try and find out why.
DR.
JUDITH ECKERLE, University of Minnesota Masonic
Children's Hospital: Where should I listen
with my stethoscope?
Yes, good.
AMNA NAWAZ: One possibility, Moses might have
fetal alcohol spectrum disorder, or FASD,
caused by prenatal alcohol exposure.
Moses was adopted, and Brandon believes his
birth mother drank while pregnant.
Dr. Judith Eckerle specializes in adoption
medicine, and sees a lot of families struggling
with FASD.
DR.
JUDITH ECKERLE: We see kids on the FASD spectrum
who have I.Q.s above the normal range, actually,
so -- who are considered very smart, but then
they're missing certain other areas, like
the abstract reasoning, or being able to control
impulses.
We have other kids on the FASD spectrum who
have frank intellectual disability, used to
be called mental retardation.
And those kids really do struggle with kind
of the basic learning and may need support
lifelong because, just cognitively, they're
not able to process in the same way.
AMNA NAWAZ: Doctors in Minneapolis see around
300 kids in the FASD clinic, but they say
that's just the tip of the iceberg.
They estimate, across Minnesota, prenatal
alcohol exposure affects more than 7,000 newborns
each year.
Nationally, a recent study shows the numbers
are much higher than previously thought, cutting
across racial, ethnic and socioeconomic lines.
Conservative estimates, published in "The
Journal of the American Medical Association,"
show anywhere from 1.1 to 5 percent of the
U.S. population is affected, meaning it could
be more common even than autism.
DR.
JUDITH ECKERLE: So, the results of the study
didn't surprise me, unfortunately, because
I do think that there are a lot of children
who are undiagnosed.
AMNA NAWAZ: Dr. Jeffrey Wozniak says most
children with FASD don't get diagnosed, either
because people don't know to look for it or
don't know what they're looking for.
DR.
JEFFREY WOZNIAK, University of Minnesota Masonic
Children's Hospital: The ones that get referred
to our diagnostic clinics are the ones who
are having the most problems and are the ones
who happened to have been seen by a social
worker or a nurse or a pediatrician who knows
something about FASD.
AMNA NAWAZ: Complicating diagnoses, only the
most severe cases have any outward physical
symptoms, like smaller eyes, flattening between
the nose and mouth, and a thinner upper lip.
For most kids with FASD, the differences are
on the inside.
DR.
JEFFREY WOZNIAK: The brain is smaller in the
child who has FASD.
AMNA NAWAZ: Wozniak's pioneering work with
MRIs offers an unprecedented look at the brain
damage caused by prenatal alcohol exposure.
DR.
JEFFREY WOZNIAK: You can clearly see this
abnormality in the back part of the brain.
This is the part of the brain that is involved
in all sorts of functions, including attention
and perception and integration of information.
So this is a child we know is going to have
a lot of processing abnormalities as a result
of this.
AMNA NAWAZ: Doctors say FASD can look a lot
like disorders like ADHD.
Some symptoms, like hyperactivity, short attention
spans and impulse control, can overlap.
But the causes can be different.
Pediatrician Eckerle takes a page from a favorite
children's book to explain.
DR.
JUDITH ECKERLE: Amelia Bedelia was very concrete.
She could understand if you said, go draw
the blinds, Amelia.
She would sit down and draw a picture of blinds,
instead of closing them because she didn't
know there were multiple meanings.
And that is kind of an illustration I use
sometimes for families.
They don't necessarily understand abstract
reasoning or abstract concepts as much.
AMNA NAWAZ: This is a meeting for teenagers
with FASD.
Slime-making is one way to draw them in, but
it's also a chance to meet with adult mentors,
to talk about the future, and to work out
how to navigate it.
WOMAN: Do you have any final papers or studying?
WOMAN: Study for tests.
WOMAN: So, maybe -- yes, you could do that.
Study for an exam.
AMNA NAWAZ: It's also a chance for kids with
FASD to hang out together, to feel understood,
in a world where they often are not.
Ruth Richardson is the director of programs
for the Minnesota Organization on Fetal Alcohol
Syndrome, the sponsor of this meeting.
RUTH RICHARDSON, Director of Programs, Minnesota
Organization on Fetal Alcohol Syndrome: This
can also be a very isolating experience for
families, because if their family members
don't understand FASD or their overall community
doesn't understand the disability, we have
seen families who are afraid to take their
kids to church, because they don't want to
deal with the shame or the stigma when people
don't understand the disability.
AMNA NAWAZ: Dave Riege adopted Ben when he
was 5 years old.
DAVE RIEGE, Parent: Everybody who is here
basically has the children with the same problems.
I mean, it's not like anybody else at says,
well, geez that's just kind of strange, because
everybody is in the same boat.
So it works out good.
AMNA NAWAZ: Lisa Joy says the group is good
for her son, Andrew, and for her as well.
LISA JOY, Parent: Parents can come together
and get to know and connect to find out what
they're doing to help their kids in similar
struggles, that what they are doing to overcome
them.
And just that support is really important.
AMNA NAWAZ: Even though there is no known
cure for FASD, experts say early intervention
can help to mitigate the symptoms.
Moses' dad, Brandon, says he will make sure
his son's future will be just as bright.
MAN: We love all of our kids the same.
It doesn't change anything.
And if that's the official diagnosis, that's
something we will work on, to channel him
to the right people.
And he still lights up a room.
He's still the same great kiddo that we see
every day.
AMNA NAWAZ: For adoptive parents, an FASD
diagnosis, difficult though it may be, doesn't
carry with it the weight of any guilt.
For birth mothers, like Carol Peterson, the
process is different.
Peterson struggled with alcohol for years
and was drinking before she knew she was pregnant.
Though she quit cold turkey three months into
her pregnancy, the damage to her daughter,
Kylene (ph), was done.
CAROL PETERSON, Parent: I would take her to
these early childhood places.
It seemed like the ones that were the same
age were more advanced than her.
So I started to notice she was a little bit,
like, delayed, I thought.
But I wasn't sure.
AMNA NAWAZ: What would you worry about in
moments like that?
CAROL PETERSON: I would, wonder did my drinking
do this to her?
AMNA NAWAZ: Kylene, now 27, was diagnosed
with FASD at 6 years old.
Carol opened up to us about the guilt she
carried for years, and her hope for her daughter's
future.
More of their story tomorrow night.
For the "PBS NewsHour," I'm Amna Nawaz in
Northern Minnesota.
