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When we found that
we were pregnant,
I was in disbelief because
we'd been trying for so long.
We were in our
second trimester, I
think we were
about 23 weeks when
we found out that the ultrasound
that there was something odd.
The anatomy scan came
back with the shadow,
and they weren't really sure
so they asked us to come back
in a couple weeks, and
then when we came back
that's when they
explained to us that she
had this condition called
"Atrial ventricular septal
defect."
So when I went back to my
office after finding out
about the heart
defect, I was probably
on a stress level 1
to 10 a 1.2 billion,
and it was just terrible.
And that's when Kelly
calls me and says
we have an appointment tomorrow
morning at 8:30 at Nemours.
I Googled Nemours and I was
looking for a cardiologist
and I saw it there are several
very reputable and qualified
cardiologists that are
here, so I thought,
OK, this might be a good
place to go for her care.
So I called, and
within 10 minutes
they called me
back and said, this
is a person that's going
to be in touch with you
and she will guide you
through this process
and that person was Lori.
We walked in the hospital
for the first time
and Lori was standing
there at the entry for us.
And said she immediately
took us to see Dr. Isaac
and we spent numerous
hours with him.
And so we ddin't have
to wait too long.
By the end of the day,
all of the information
was on the same table.
In order to resolve
her heart defect,
she will need surgery after
she's born, most likely
four to six months after birth.
I know that if I had a
question it would be answered,
and I know that I have complete
faith in her cardiologist,
so I feel very comfortable.
The hardest thing about
now being a parent
is that feeling of helplessness.
And when we found
out the diagnosis,
this darkness comes over you.
you cannot do anything
for this child,
and you feel like you just
can't-- you want to do
everything possible
and you can't.
And the best thing
was that we felt
that we had this team that was
behind us, that along the way
we would be fine.
When you have trust
in your physicians,
as I've recently discovered,
that takes some of the burden
away and you can concentrate on
being a parent in other ways.
I'm not stressing
about her medical care.
I'm stressing about buying
onsies and twosies and diapers
and trying to figure a
couponing and double couponing,
are all the things that I think
a parent wants to stress about.
And what I'm not stressing
about is the heart defect
because of Nemours.
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