

GBS

Dedicated to my amazing, caring, loving, incredible mother – Kay Beard. I love you so much! -Brad
Introduction 7

Monday, January 10 – Thursday, January 13 8

Friday, January 14 9

Saturday, January 15 10

Sunday, January 16 11

Monday, January 17 15

Tuesday, January 18 17

Wednesday, January 19 19

Thursday, January 20 22

Friday, January 21 24

Saturday, January 22 26

Sunday, January 23 28

Monday, January 24 31

Tuesday, January 25 33

Wednesday, January 26 35

Thursday, January 27 36

Friday, January 28 37

Saturday, January 29 38

Sunday, January 30 39

Monday, January 31 39

Tuesday, February 1 39

Wednesday, February 2 39

Thursday, February 3 40

Friday, February 4 41

Saturday, February 5 42

Sunday, February 6 43

Monday, February 7 43

Tuesday, February 8 43

Wednesday, February 9 43

Thursday, February 10 44

Friday, February 11 45

Saturday, February 12 45

Sunday, February 13 46

Monday, February 14 46

Tuesday, February 15 47

Wednesday, February 16 47

Thursday, February 17 47

Saturday, February 19 48

Sunday, February 20 48

Monday, February 21 48

Tuesday, February 22 49

Wednesday, February 23 49

Thursday, February 24 50

Friday, February 25 50

Saturday, February 26 50

Sunday, February 27 51

Monday, February 28 51

Tuesday, March 1 51

Wednesday, March 2 52

Thursday, March 3 52

Friday, March 4 52

Sunday, March 6 52

Monday, March 7 53

Thursday, March 10 54

Friday, March 11 54

Saturday, March 12 54

Summary 54

CaringBridge 56

Your Story 56

Caringbridge Journal 58

Wednesday, January 19, 2011 2:56 PM 58

Thursday, January 20, 2011 12:07 AM 59

Thursday, January 20, 2011 10:28 PM 59

Friday, January 21, 2011 8:11 PM 60

Saturday, January 22, 2011 6:54 PM 61

Sunday, January 23, 2011 1:09 PM 61

Monday, January 24, 2011 4:43 PM 62

Wednesday, January 26, 2011 11:39 AM 63

Friday, January 28, 2011 10:42 AM 63

Saturday, January 29, 2011 4:25 PM 64

Monday, January 31, 2011 12:55 PM 64

Wednesday, February 2, 2011 7:45 AM 64

Friday, February 4, 2011 8:56 PM 65

Tuesday, February 8, 2011 10:22 AM 65

Tuesday, February 8, 2011 5:37 PM 66

Saturday, February 12, 2011 5:20 PM 67

Wednesday, February 16, 2011 8:38 PM 67

Thursday, February 24, 2011 5:47 PM 68

Saturday, February 26, 2011 7:38 PM 68

Tuesday, March 1, 2011 10:09 PM 69

Thursday, March 10, 2011 6:15 PM 69

Sunday, March 20, 2011 11:55 AM 69

Sunday, March 20, 2011 10:51 PM 70

Thursday, April 28, 2011 11:55 AM 71

Saturday, April 30, 2011 3:40 PM 71

Saturday, June 25, 2011 5:11 PM 72

This is from Kay 72

Guestbook entries 74

Wednesday, January 19, 2011 74

Thursday, January 20, 2011 75

Friday, January 21, 2011 77

Saturday, January 22, 2011 80

Sunday, January 23, 2011 82

Monday, January 24, 2011 85

Tuesday, January 25, 2011 86

Wednesday, January 26, 2011 89

Thursday, January 27, 2011 91

Friday, January 28, 2011 91

Saturday, January 29, 2011 93

Sunday, January 30, 2011 94

Monday, January 31, 2011 95

Tuesday, February 1, 2011 96

Wednesday, February 2, 2011 98

Thursday, February 3, 2011 99

Saturday, February 5, 2011 100

Tuesday, February 8, 2011 102

Wednesday, February 9, 2011 104

Thursday, February 10, 2011 106

Saturday, February 12, 2011 107

Sunday, February 13, 2011 110

Monday, February 14, 2011 111

Tuesday, February 15, 2011 112

Wednesday, February 16, 2011 113

Thursday, February 17, 2011 114

Saturday, February 19, 2011 117

Wednesday, February 23, 2011 117

Thursday, February 24, 2011 117

Friday, February 25, 2011 118

Saturday, February 26, 2011 119

Sunday, February 27, 2011 120

Monday, February 28, 2011 120

Tuesday, March 1, 2011 121

Wednesday, March 2, 2011 121

Monday, March 7, 2011 123

Tuesday, March 8, 2011 124

Wednesday, March 9, 2011 124

Thursday, March 10, 2011 125

Friday, March 11, 2011 125

Wednesday, March 16, 2011 127

Saturday, March 19, 2011 127

Sunday, March 20, 2011 127

Monday, March 21, 2011 128

Thursday, March 24, 2011 128

Thursday, April 28, 2011 130

Friday, April 29, 2011 130

Saturday, April 30, 2011 131

Sunday, May 1, 2011 132

Sunday, June 26, 2011 132

Final thoughts 134

# Introduction

I started writing this journal from the beginning. I'm not sure why, but I just started taking notes and writing, and then it led to this.

It's very important for you to know that all of this is from my perspective, and it includes my experiences with you. As I wrote this journal, I was writing about you and about my thoughts during this time. The reason I bring this up is because everyone else took outstanding care of you too, and you will not really see that from this journal.

Dad was absolutely amazing to you. He really showed his love for you during this whole ordeal. Sometimes we even laughed at him, as he would often ask if you loved him, and he made sure that you knew that he loved you. I think sometimes he just wanted to make you laugh. Every time I asked him if he needed anything from me, he would always say "no", and he would drop everything to take care of you 100%.

Shae was the only one of your children that lived in Birmingham, and she would go and see you almost everyday. She always arranged her schedule to make sure she could come and see you.

Ashley flew in to see you several times too. Even if her trip had to be short, she would still come anyway. Then she'd do it all over again.

Our other relatives and your friends were amazing too. They called, prayed, sent flowers, sent cards, came to visit, and brought us dinner. They were very comforting.

So I just wanted to make sure that you knew all of this. Again, I wasn't originally planning on making this into a book, so I just wrote my personal experiences with you during this time.

# Monday, January 10 – Thursday, January 13

On Monday, your fingers and tongue were numb, and you thought that you might have had a stroke. Dad started to drive you to the Emergency Room, but some roads were blocked due to the snow. At one point I heard that you were going to turn around and go to a Doc in the Box instead, and that had me worried. Fortunately, you were able to make it to the ER. You were immediately admitted to the hospital.

The next few days were rough on everybody because no one knew what was happening. The doctors kept on saying that they had to run a lot of tests over the next few days to determine what was wrong. These were extremely long days – not knowing what was going on was very scary. The doctors did not think that you had a stroke, and one possibility was that you could have Lou Gehrig's Disease. Of course everyone was extremely upset as we waited to find out for sure.

They finally diagnosed you with Guillain-Barré syndrome. Since they found it so early, they could not say this with 100% confidence because they couldn't see too much from the tests. But that's what it ended up being, and you had the Miller Fisher variant.

Gullain-Barré syndrome (GBS) is an acute inflammatory demyelinating polyneuropathy (AIDP), a disorder affecting the peripheral nervous system. It is usually triggered by an acute infectious process. The syndrome was named after the French physicians Guillain, Barré and Strohl, who were the first to describe it in 1916. It is sometimes called Landry's paralysis, after the French physician who first described a variant of it in 1859. It is included in the wider group of peripheral neuropathies. There are several types of GBS, but unless otherwise stated, GBS refers to the most common form, AIDP. GBS is rare and has an incidence of 1 or 2 people per 100,000. It is frequently severe and usually exhibits as an ascending paralysis noted by weakness in the legs that spreads to the upper limbs and the face along with complete loss of deep tendon reflexes. With prompt treatment by plasmapheresis or intravenous immunoglobulins and supportive care, the majority of patients will regain full functional capacity. However, death may occur if severe pulmonary complications and autonomic nervous system problems are present. Guillain-Barré is one of the leading causes of (acute) non-trauma-induced paralysis in the world.

Miller Fisher syndrome (MFS) is a rare variant of GBS and manifests as a descending paralysis, proceeding in the reverse order of the more common form of GBS. It is characterized by abnormal muscle coordination, paralysis of the eye muscles, and absence of the tendon reflexes. Like Guillain-Barré syndrome, symptoms may be preceded by a viral illness. Additional symptoms include generalized muscle weakness and respiratory failure. The majority of individuals with Miller Fisher syndrome have a unique antibody that characterizes the disorder.

# Friday, January 14

Shae called me in the morning and told me that you had been admitted to the ICU. I already had a flight scheduled to come to Birmingham that night, but this obviously really upset me and I wasn't really expecting it. It was a very long flight, and I just wanted to hurry up and get there to see you. Jill and Brooklyn were still in Birmingham from their visit to see Jackie while she was sick with pneumonia. Ashley arrived earlier that day.

I landed around 8:30pm and came straight to the hospital to see you. Since you were in the ICU, visiting hours were restricted. Fortunately, we got there in time, and they also let us stay a little late.

When I saw you, you were very alert. You couldn't really talk, but you tried to (we stopped you so you could save your energy). You nodded your head yes and no very clearly, and you knew everything that we were saying. You were uncomfortable and you were trying to tell us where you were hurting. We kept asking 'yes and no' questions trying to pinpoint your pain area. We weren't doing a very good job – your hands and arms would move a little as if you were giving up on us in frustration. We apologized and told you we were not doing very well but we'd keep trying.

After we bent your left leg and arranged some pillows under your back, you said you were feeling a little better. You didn't like the night nurse because she wouldn't put make-up on you. We told her to make sure she kept you comfortable during the night. You could feel us holding your hand and you told me that you loved me.

# Saturday, January 15

At 5am, the nurse called and said that you had a great night and that you were comfortable, but they had to put you on a ventilator around 4:45am. You stopped breathing on your own shortly after that. Although that was pretty much expected, it was still difficult to hear. I woke Dad up and told him because he didn't hear the phone ring.

Dr. Key called at 7am and said that the x-rays showed something still in one of your lungs; a possible patch of pneumonia. He already started you on some medication for that. You could not wiggle your toes, but you were alert.

The ICU only allows three visitations each day – morning, afternoon, and night. During our morning visit, you were alert. You said that you were more comfortable last night. The nurse showed me how to swab your mouth – it was getting dry since you had tubes going down your throat. You loved it when I swabbed your mouth - I would do it over and over again and not stop until you said that you had enough.

I asked if you wanted Fox News on TV so you could listen to it, and you said yes. The nurse said that we needed to buy some high tops for you in an effort to avoid foot drop as it would help you when you were ready to walk again. You said you wanted us to get you black ones. We massaged your fingers and moved them around to keep the circulation going before we left.

We met Jill, Brooklyn, and Jackie for lunch. Brooklyn was so happy to see me! We saw Jean and Lecie Ingram, and they asked about you. After lunch we went and bought you a pair of black high tops. Then we went over to Jackie's house and played with Brooklyn. He really enjoyed showing out for everybody.

We saw Alys and Larry when we arrived for the afternoon visit. They went to see you and said that your eyes were closed, but they would open when they talked to you. You could nod yes and no to our questions. I swabbed your mouth several times – you loved it again. We put your new shoes on and talked about how much of a ham Brooklyn was. You nodded as we spoke to you.

During our night visit, your eyes never opened. We asked if you could hear us, and you barely nodded once. We asked again and you didn't respond. You looked like you were resting, so we didn't keep on bothering you.

# Sunday, January 16

Dr. Key called in the morning and said that you were a doing little better. The x-rays looked better. He said that as you got better, you would start being more uncomfortable and feeling pain again. It really hurt me to see you in pain, especially when you can't tell us what you need. He said that you still could not wiggle your toes.

Lori called today and asked about you. She told me that she went by and saw you on Friday afternoon. She did not know that you were put on a ventilator until she saw you. I updated her on everything I knew. She said that she has a key to your house and for us to call if we need anything. She brought some food over for us too.

You were very alert all day when we came to visit. At first I thought you might be alert more during the morning, then a little in the afternoon, and then not much at night because that's how you were yesterday. But today, you were alert the entire day. Your right eye was closed, but your left eye was open the whole time.

During the morning visit, I asked if you wanted a swab and you said you did, but when I gave it to you, you gagged or coughed, and then I was afraid to give you anymore because I didn't want you to be uncomfortable. You wanted your hair to be washed, pain medicine, and to be turned over after we left. I made sure the nurse knew to do these three things for you.

When we came back to see you in the afternoon, not only had your hair been washed, but you had a full bath too! I asked if they gave you pain medicine and if they have turned you, and you said that they did. I'm so glad your nurses were so good to you.

Brooklyn and Jill came over to Shae's house and when I told you about him hamming it up again, you seemed to like it. I asked if you wanted me to shut up, but you did not. You nodded "yes" when I asked if you wanted me to keep talking about thse kinds of things.

Your shoes were still off from your bath, so we asked if we should put them back on. The nurse said that instead of using those, they were making custom braces for your feet to keep your toes pointed up. They should arrive tonight or tomorrow morning.

I asked you again if I was bothering you by constantly talking and asking you questions, but you said no. You wanted me to talk – I figured you might have been bored, so I just kept on talking and making sure you got everything you needed.

We had a scare during this visit. You started shaking a bit and when I asked if you were ok you shook your head "no". You looked scared and your eye started rolling in the back of your head. Then one of the machines started beeping and the nurse ran in. She told us to leave the room and she told a doctor she needed his assistance. He asked if she could wait a few seconds and she said "no". He went in and they closed the door. We were so scared! The nurse came out and told us not to worry until she started to worry, and that she was not worried at this time. They said your EKG was abnormal, and they wanted the cardiologist to read it. He said that he was not worried about it, so that was a relief.

When we came back in, you indicated that you needed something (you flail your arms when you need something). Every time you did this, I would ask if you needed something. You would nod "yes" and then the guessing game would begin. I usually started off by asking if you were in pain. Some common questions were if you needed your legs bent/flexed, if you wanted to be turned over, if you wanted your legs or arms moved, if you wanted your bed raised, if you needed pain medicine, if you wanted a swab, if you needed to be suctioned, etc. If it wasn't any of these, it got tough.

One time I couldn't figure it out and Ashley asked if you wanted your eye wiped because it was watering – that was what you needed. I felt so bad that it took so long for us to figure it out. I knew it must be frustrating, but I wouldn't stop until we figured out what you needed.

When we were leaving, you still needed something so I didn't leave until we it was taken care of. This time, you wanted the door to be closed.

As soon as I walked in and you saw me later that night, you moved your arms up and down indicating that you needed something. I felt like you were relieved that we were there to help you. Your left arm was pinned against the bedrail, so you wanted me to move it away from it. I hope it wasn't bothering you for too long.

You could move your arms a little better tonight, and you could squeeze our hands in yours. You could feel rubbing on your palms a little bit, but not so much on the back of your hand. But you could feel when I massaged your hand.

On just about every visit you liked us bending your fingers back and forth. I always asked if you wanted this since you usually did.

Guess what Lori made for us? Pasta and meatballs! You rolled your eyes at this. I told you they were good, but I liked yours better. And although Ashley and Shae may not, I really do (with mashed potatoes).

I asked if you still liked having Fox News on, and you said yes. I wasn't sure if it bothered you at night, but you nodded that you still wanted us to leave it on throughout the night. I know they replay some stories a lot, so I hope you're not too bored. Maybe something interesting will happen soon...

One time you waved your arms, so I started my routine questions. Not in pain. You didn't want to be moved. No pain medicine needed. Lights were ok. Is it your head? Yes, something about your head. No headache. No wiping of the eyes needed. No need to wipe your nose. Hmm, I'm at a loss. Shae saves the day – you have an itch! I'm so sorry it took so long to figure out that's what you needed. I can't imagine how frustrated you must feel.

Another time you needed something on your head – well sort of – again it was a tough one to figure out. Rub your cheeks? Yes. So I start massaging them – no, that's not it. Something on your head – I'll start scratching from the top and keep going down until you nod your head when I get the right spot. You would turn your head one way – I know you are trying to get me to scratch the right spot, but I'm not sure exactly where you're trying to show me. Finally I feel a rough spot on your neck – it's a piece of skin or something hanging, so I pull it off – this is what you wanted – you felt good again.

I told you that I spoke to Allison and Gene, and they were thinking about and praying for you. I left a message for Trae and Ruthie. Trae called back and was talking to Ashley when I left.

Ashley and Shae make fun of me because I constantly ask you what you need and they think I'm annoying. I hope I'm not annoying you, but I just feel like the nurses don't cater to you enough. Don't get me wrong, they are doing a wonderful job, but nobody can take care of my mother the way I want them to – no one is good enough! I just can't imagine what you must feel like to need things and not be able to communicate them. I couldn't help constantly ask if you needed something. I'm either really annoying you or really helping you. I may be wrong, but I felt like I was really helping you. I wanted you to be as comfortable as possible while you get through this – I know there's not much I can do, but I hope the little things help you along the way. It breaks my heart to see you needing something and not being able to tell anyone.

I have to work tomorrow, so I won't be able to come back until tomorrow night. I wish I could be with you all the time. I told Dad and Shae to make sure they cover your every need!

Before we left, you waved bye to us – no, you said that is not what you meant. You want something over there? Do you want us to take your shoes home? No? Oh, you want us to close the blinds? Yes, that's it! Do you need anything else? No. You're totally comfortable? Yes. Are you ok for us to leave? Yes. I finally felt a little at peace as I knew you now have everything you need. It is impossible for me to leave if you still have something you need.

# Monday, January 17

Unfortunately, I had to stay at your house and work today. I want to come up during every visitation, but if I work during the day I can stay here all week. So it's better than going back to Phoenix! I'll be there to see you tonight.

Dad came home after the morning visit and said that you were about the same as yesterday. This is good news to me! I think you were so much better yesterday; I just can't wait for you to keep getting better and better and start a pattern so that it shows you continue to get better and that the worst is behind you.

Today is your last day on the medicine to fix this – your fifth and final drip bag. I am anxious to see you continue to get better even after you stop taking this medicine.

Ashley said to bring the whiteboard next time I go. Shae mentioned that last night, but I don't think you're quite ready to write just yet. Dad doesn't either, but hopefully you will be soon. I'm going to bring it anyway.

Dad also said that one of the doctors showed him how to move you around to help your joints. He said that we will really help a lot by doing this, so I can't wait to get there to help. We just have to watch your face to make sure what we do doesn't hurt, but it shouldn't.

I heard that Ashley did your hair for you. I know you must be happy with that, especially since Nancy and Gail are coming to see you this afternoon. Jill wants to come see you, and I figure tonight would be good since your hair is done. I hope you agree because I'd like her to come see you too! Dad told me that you said you were comfortable before he left, and that really made me happy.

You were doing about the same after Dad went to visit you in the afternoon. You really enjoyed Nancy and Gail's visit. Lori also came after her shift ended. Shae had a really good idea – she created some cards with pictures and words of things that you might need so you could point to them. Alys called while I was at your house working, and I gave her an update.

That night, Jill and I came to see you. You were very alert again and you could move your hands more than yesterday. I lifted your arms up so you could see your hands while you opened and closed them. I'm not sure if you were surprised you could move them, if you were disappointed you could only move them some, or if you were happy that you were starting to be able to move them. I was glad you could move them more and I hope you were too.

You said that you didn't need anything at the time, but we wanted to see if you could point to the cards that Shae made so we started trying – and I think you were able to point – but you started coughing and you needed suction so we stopped. You said that you didn't want the TV on during the night and that you hadn't really been listening to it much. I was surprised, but maybe you were sick of it by now.

Before we left, you needed something and I could not figure it out. It wasn't anything with your body. It was on the right side of your bed toward the window. I went over there and named every single thing I could find - more than once. You did not want the TV on. I was at a loss, but I wasn't going anywhere until I made sure you had what you needed. Finally, Jill figured it out – it was the TV remote because it had the nurse call button on it. It was hanging off the back of the bed so I couldn't see it. And since you didn't want the TV on, I didn't even think about it having the nurse call button on it (I didn't even know you could press it). As we were getting that for you, the nurse came in and said that she had told you to push that button if you needed anything – so that's what you wanted. Just when I thought I knew everything you might need, you seem to stump me with something else. I'm sorry it takes me so long to get everything for you – I know you must be frustrated. But I cannot leave without making sure you get all you need.

# Tuesday, January 18

By this time, Dad and I anxiously await for calls from the doctors in the mornings. We both answer the phone so we can get the update – boy they sure do call early 

Dr. Key said that you were doing better. They dropped your oxygen level from 30% to 25%. The saturation is still good.

Shae said that when she went up to see you during the day you said "Happy birthday" to her. Of course you can't really talk, but when we ask you questions and figure out what you want to say. She said that you had an itch on your nose that stumped her for a bit.

You were still very alert tonight, but it seemed like you were more frustrated than usual. I got the feeling that you were so sick and tired of this and it breaks my heart. I'm going to try to cheer you up tomorrow.

You're getting better – you really are. The nurse said that you are breathing a little bit on your own, so they will keep monitoring that and then take you off of the ventilator for a couple of hours and see how you do. If you do well, they'll do it again later (after you rest) and do it again for four hours. If all goes well, you will soon come off of the ventilator.

I'm not sure how soon you'll be able to talk, but you're definitely heading in the right direction. I'm sure your mouth and throat are so dry, so it may take a few days. But you will be able to eat better food! Well, liquids at least. The nurse said that you would need to start with thick liquids to make sure you swallow it ok and it doesn't go in your lungs. And you'll progress from there. Tonight you said that you were ready to eat something good – and I don't blame you. When you get ready, I'm going to take you out to dinner anywhere you want to go!

You were able to move your hands and arms even better than yesterday. You're getting better! You said that you needed to press the nurse button last night but you couldn't – I felt so bad for you. I reminded you that you could try to hit the side of the bed to make noise or shake your arms to make your heart rate change so they would know to come in. And I also told the nurse to be sure to check on you very often during the night.

You didn't seem too comfortable tonight, but the good news is you feel it. You were coughing a lot, and every time you cough it looks like it hurts. And you need suctioning quite a bit.

You said that you sleep a lot when we're not there. I'm glad to hear this because that is probably when you are the most comfortable. It seems like you don't take pain medicine around visitation times so you can be awake to see us. I hope it's not too uncomfortable when you to do this for us. You did say that you were ready for your pain medicine before we left and that you were ready to rest.

# Wednesday, January 19

Dr. King called this morning and said you had improved a little bit. He said that you could not be on the ventilator for two weeks because the tube down your throat could cause damage. So if you aren't breathing on your own by then, they will have to give you a tracheotomy (trach). This is when they cut a hole in your neck and put the tube through it. It should be more comfortable for you since the tube would then be out of your mouth and throat providing some relief for you. You would still be on the ventilator, but it would go through your throat instead. You will not have a permanent hole through your throat!

Now that you've had the five doses of the medicine (IVIG), you have to wait for it to kick in, and it usually takes several days. I asked Dr. King how you were already getting better since it had not kicked in yet, and he said that you are getting some small results, but the major results would not kick in right away.

If you don't get better after a few days, they will need to do a blood transfusion. This is where they take out your blood, clean it or put in other medicine with it, and then put it back in. It sounds scary, but they said it's not a big deal. However, when they do this, it will basically reverse the medicine you've already had since it ends up taking that out of your blood. I'm hoping you will get better quickly and you won't need to have this done.

Shae came to see you this morning and said that you scratched your face twice on your own (all the way up to your nose). This is great news – you are making more and more progress every day. She said that you were not very comfortable, and your leg was hurting, but you got some pain medicine.

It really hurts us to see you like this – we can't imagine what you're actually going through and thinking. It must be so hard to know what you need but not be able to say it or get us to understand quickly. And when we're not there, I don't know if the nurses are paying enough attention to you. I always ask you if they are (and often times in front of them) to make sure they take great care of you. They are very nice and do a good job, and every time before I leave I tell them to take extra special care of you!

Danny called and talked to Dad, and of course he sends his thoughts and prayers to you. I think I heard Dad choke up a little bit. He does this from time to time. We all do. We are all doing pretty well when we're together, but once we're alone we sometimes break down.

Ruthie called and I let her know what was going on. She says that she is thinking about you and praying for you. She wants to come see you, but I told her to hold off for now.

Shae started a CaringBridge website for you – this is where she posts updates discussing your condition and progress, and friends and family can go read it and post their comments to you.

Tonight you were very uncomfortable. I tried giving you a pep talk and let you know that you were doing better and that you would get through this, but I don't think it went so well. It's so hard to tell you to think positive and be strong when it's easy for me to say, but so hard for you since you're the one actually going through this. It really hurts me to see you in pain like this. I feel so helpless – this is the worst I've felt leaving the hospital in the last few days. I just don't know what to do.

I wish I had answers for you – I really want to set your expectations and give you a timeline of when you will be able to breathe, talk, eat, move, etc. But the fact is that I just don't know. No one knows for sure. I just know that you are making progress, but for me to tell you that doesn't really do much for you. I sure am glad that you're getting better, but you seem to be disappointed at the rate and you're probably thinking that at this rate it will take so long you just don't want to wait anymore.

I just can't wait for a big breakthrough to occur – for you to breathe on your own or be able to talk again. Both of those things would be big progress for once instead of such slow minor progress. I hope that will help your morale, but it just can't get here fast enough.

We exercise your joints, make sure you get what you need, make sure you're not in pain, and we talk to you, but you really just want to be feeling good again. And it kills me that the one thing you really want I can't give you. I can't stand to see you this way – I'm so sorry you're going through this. It's so weird that I'm going through such pain seeing you suffer like this, but it is no comparison to what you are going through – it hurts just to think about it.

You were so uncomfortable that you asked for your pain medicine before Shae and I left. You usually wait until we're gone, so I know you were really hurting. That breaks my heart.

To end this day on a positive note, you were able to scratch your chin. You could also see the cards that Shae made with all of the items on them pretty clearly – you could tell us if what you needed was on them or not. So you are getting better – you really are – it just comes in small victories. I love you so much and I tell you that every time before I leave. I know you want to tell me that you love me, so I've been telling you that I know you love me since you can't say it. I hope you have a very comfortable night and I can't wait to see you again tomorrow!

# Thursday, January 20

Dad went to see you this morning, and he also thinks that you are very frustrated. It's so hard because we know you are, and there is little we can do. Then I think about how bad I feel but I feel guilty because you are the one that really feels bad, so I shouldn't be thinking about feeling bad myself.

He said that you needed something and he could not figure out what it was. He never did. This has always been my fear – I never want to have to leave you without getting you everything you need. I hope it wasn't anything major.

Dad went to see you again this afternoon, and he said that you were in a lot of pain. You asked for pain medicine 20 minutes before they were allowed to give it to you. You have recently been asking for pain medicine more often, so I know you must feel so bad. I can't wait for you to feel better!

Lori called and said that she must have just missed Dad. You were trying to spell something out on her phone, but it was difficult for you to type. She figured out that you did not want the same nurse that you had last night (Cory), so she made sure you wouldn't get him again. She thinks you said that he didn't come and check on you enough, and that really upsets me. I'm glad she took care of that!

Jill, Shae, and I came by tonight and you were doing much better than the last couple of nights. I was so glad to see you feeling better, and I hope this continues.

I told you that Dad said he couldn't figure out what you were saying and I asked if you still needed it and you said no. I wanted to find out what it was in case you needed it again. So I asked if it was anything you needed with your body – no. I pointed to a side of your room. Was it over here? No. Over here? Yes. I was pointing to the dry erase board hanging on the wall – that's where it says your nurse's name, has phone numbers, etc. Since I had spoken to Lori earlier, I figured it was about the bad nurse you had last night – and that was it. I told you that Lori had already made sure you would not have him again, and you were glad. I asked if he didn't come check on you enough and you held up 10 fingers. I asked if he left you for 10 hours and you said yes. I'm glad he's out of the picture.

Jill painted your fingernails for you, and you were happy about that. She did such a good job I told her that she should start painting her own instead of going to get manicures! She just laughed, so I don't think that's going to happen...

I told you that I wasn't sure what you wanted me to talk about when I was there, so I would ask you. I said that I wasn't sure if you liked me talking about what was going on with my life (and Brooklyn and Jill) or if you didn't want to hear about it since you weren't feeling well. Do you want to hear about it? Does it take your mind off of things? You nodded that you did want to hear about it and it did help. So I'll keep on blabbing then!

I also asked if you knew everything about GBS or if you wanted to know more. You nodded that you wanted to know more. I'm glad I asked because that means you've been lying there day after day wondering what the heck is going on, and no one has been telling you. I know the doctors (and us) have mentioned some of it before, but apparently not enough. So Shae looked it up on her phone and read the details to you. You were satisfied with what she read and felt like that was enough information. I wonder how long you've wanted us to give you these details...

Again, you were more comfortable tonight, and you didn't need as much during our visit. You usually have a laundry list of things when I get there, but this time you were doing ok. I did swab your mouth again – and I asked if you were sure you wanted me to do it since I had made you gag the last time – you did. And I didn't gag you! Your tongue was moving a lot better tonight and it didn't look as dry. You didn't cough any and you didn't need any suction. It was a really good night. You still like to squeeze our hands three times to tell us you love us before we leave. On the way out I made sure to tell the nurse to check on you often and take extra special care of you – she said she would. I hope you have a comfortable night!

# Friday, January 21

Dad updated me on his morning visit with you. The nurse only gave two milligrams of pain medicine instead of four. They are worried that you might be getting an ulcer in your eye (you still can't close it). The Ophthalmologist is coming to see you today. Thee rest is about the same.

Dad said that you had a busy afternoon. The Ophthalmologist came by and put some stuff in your eye and the physical therapist came by and gave you a good workout. He said that you always seemed to like it when she came by. Maybe you know that doing those exercises will help you recover faster.

I came to see you by myself tonight. You were sleeping, so I just held your hand. But you woke up and looked at me so I talked to you. I asked if you needed anything and you pointed toward your head. Something on your head? Yes. Swab, suction, chap stick, eyes, itch? No, no, no, no, and no. Is it on the cards? Yes. Ah – the only one I didn't mention – you wanted me to raise the bed to elevate your head.

You squeezed my hand three times telling me that you love me. I told you that I love you too. I could cry – all that you're going through and all you care about is telling me that you love me. You never stop loving no matter what you're going through!

After you got comfortable, you dozed off for a bit. I just held and rubbed your hand. I wanted to let you rest since you were so comfortable. You woke up again and looked at me – I told you that I was still there and you could keep resting, but you kept looking at me so I asked you if you wanted me to talk – and you did. So I talked to you a little bit about work and about the interviews I had today. I told you that when I went to see Brooklyn last night he turned on some music and danced for me.

The nurse (Kim) came to check on you and she said that you had a very comfortable night last night. I asked you to make sure, and you agreed. She said you two had a good routine down and she would rotate you back and forth throughout the night unless you were asleep and didn't open your eyes when she said your name twice. I'm so glad that she took good care of you, and I thanked her for that. She said that your oxygen level was only on 25, and that was the lowest that she'd ever seen – usually the lowest is 30. I'm hoping this means that you will be breathing on your own again soon.

I told you that the reason nobody told you when you would be off the ventilator, when you would regain feeling, etc. is because no one really knew for sure. But you are getting better, so hopefully the ventilator will be out soon. I want to say that it will be in the next few days, but since I don't know, I don't want to get your hopes up if you don't progress as fast as I hope.

I exercised your fingers, wrists, and arms, and I could tell that you were getting stronger. You were really moving them on your own – even your right arm this time. You didn't want me to mess with your legs – and I'm glad they were comfortable because often times they are not.

I asked you if you remembered us telling you all about GBS last night and you said that you did. I just wanted to make sure because if you didn't remember, you would probably want to hear it again. Your mind is 100% - you are totally aware, and you absolutely know everything we say. This probably makes it harder for you since you know exactly what's going on, but you can't move or ask for exactly what you need.

I told you that it was Friday night so I would see you again in the morning, and that I would get to see you during all three of the visitation times on Saturday. I was originally planning to fly back to Phoenix tomorrow, but I just can't leave you right now. I still don't know what to do – Jill may go ahead and go back, but I told her that we should plan for Wednesday and go from there. I think they may make some decisions about the tracheotomy or blood cleansing on Monday, and I want be here and see what happens. I will tentatively plan to go back on Wednesday, but I may change it at the last minute. I just can't imagine leaving you right now.

Either way, I will be back to see you the following Friday. Remember that Shae was coming out to Phoenix last week, but we re-scheduled our meetings so I could come here. So she's coming out next Sunday, and we're all coming back together on that following Friday. Ashley will be here tomorrow night and she'll leave on Monday. Then she comes back the next weekend (Friday) too.

Danny, Ruthie, and Jacob all called to check on you today. I gave them all the latest update. I hope you have another good night. I'll see you in about 9 hours!

# Saturday, January 22

Dad and I came to see you this morning. You said that you had another comfortable night, and we were so glad to hear that. The nurse said that there was one thing she couldn't figure out that you needed, so I went to work. You were motioning that it had to do with your head. This time it didn't take me as long to figure out that you wanted the bed raised to elevate your head. Dad said from now on you should raise your thumb when this is what you wanted (you did it again before we left).

You were comfortable overall – we re-positioned you a few times, and you had one suction after coughing, but that was about it. Well, almost. You were waving your hand so I was trying to figure out what you needed. Your hand was near your head, so I asked all about your head and everything around it. Then I asked if you were hot – that was it. It's funny how you were making the normal fanning motion for being hot, but I kept thinking of all of the other things you normally needed. I turned the air down for you.

Dr. King came in and said that you were looking better. He talked about the blood transfusion again, and said he would assess it again early next week. Dr. Key also came in – you were able to move your hands, arms, and shoulders more than usual. You were also able to move your feet a little bit. He said that this was a big improvement. And the best news – your breathing was better so he changed your ventilator setting from 8 breaths a minute to 6 since you were breathing more on your own!!! He had you take a deep breath and you did very well. This was the best visit so far – the most progress overall! This was a great day!

Two physical therapists came by – one was for the upper body (OT) and the other was for the whole body. You had two really good workouts, and they said that your joints and muscles were doing very well.

David and Janet came by to see you too. We didn't expect them until the afternoon visit, but they came during the morning. I'm sure you were glad to see them.

You held up three fingers one time, and it turns out you wanted your bed lifted to 30 degrees (which is the setting you need to be on with the ventilator). I told you that you were already at 30 degrees, but you kept holding up your fingers – a 3 on one hand and a 2 on the other. I asked if you wanted your bed at 32 degrees, and you said that you did. The bed elevation is in increments of 10, so I'm not sure where you got 32 from – but I changed it anyway.

I'm so happy for the progress you made today. This is the best so far, and we're all encouraged and hope that you are well on your way to recovery. I'll see you again in a few hours!

During our afternoon visit, you didn't seem to be as comfortable as you were this morning. We had to move you around several times. We had a hard time getting you comfortable, but I never gave up trying. You only had half of a dose of your pain medicine before we came, and you wanted more, but you had to wait for the next dose anyway. You said that you wanted the full dose the next time.

You had a patch over your left eye this time to keep it from drying out. Your right eye is still closed. At first you wanted us to take it off, but then you decided that we looked the same so you'd keep it on so your eye would not get an ulcer. I read you several guestbook entries from the CaringBridge website, and Shae read a few cards that were sent to your house.

You coughed quite a bit and needed a couple of suctions – you were just not comfortable overall. Before we left they gave you the pain medicine, and you told us not to come back tonight because you wanted to rest. We were going to come back anyway, but we decided not to in case you were sleeping well – we didn't want to wake you up. I hope you have another good night and you are very comfortable. You squeezed all of our hands (Dad, Shae, me) to tell us that you loved us like you always do. We love you so much and can't wait for you to get better!

# Sunday, January 23

Ashley got back late last night, so she was there to see you with us today. Dr. King came by and checked you out this morning. He said that you have now had two days in a row with very good improvement. He talked about the blood plasmapheresis – if your lungs/muscles don't improve early this week, he will want to do this. It's more involved than we thought. It consists of five treatments, two days between each. This means five full blood transfusions of taking out all of your blood, cleaning it, and putting it back in. Dad asked if it was dangerous, and Dr. King didn't say what I was hoping/expecting. He said they do it all the time, but it could cause issues so it was a very serious thing. It could also hinder your immune system.

Shortly after that, Dr. Key came to see you and he said that you were doing much better, even since yesterday. You moved your arms a little better and you could even move your legs some. He had you take a deep breath and you did a 1.3, which was almost double what you started with when you arrived (700cc). He lowered your ventilator down to FOUR! He said this was as low as it needed to go before you came off of it. He'll check you out early next week (possibly tomorrow) and have you try to breathe on your own having the ventilator only give you boosts. This is the best news we've heard so far! Hopefully you will get off of the ventilator within the next couple of days - that would make it likely that you won't need the blood plasmapheresis. And of course this would mean that you wouldn't have to have a tracheotomy.

You were still doing well this afternoon when we came back. Allison and her family came by to see you. Allison talked to you for a bit and you wanted me to go out and take a picture of her kids, so I did that. You really liked seeing their pictures.

You still have a patch over your left eye, but it's very red and it looks really irritated. Your right eye is now open for the first time.

Your movement continues to get better and you continue to get stronger. You even lifted your hand and circled your finger doing the "crazy" signal when referring to Dad. You said that your tongue did not feel as numb anymore, and I can see it moving around a lot better during swabs.

You had us move your bed to 32 degrees again – you like that 32 for some reason. We exercised your hands, arms, and legs and tried to keep you comfortable. Before we left, you wanted us to move your leg. After trying a few things, we couldn't quite get it comfortable. I didn't give up and I moved it around a couple more times until you were more comfortable. Dad asked if you were going to kick his butt when you got out of there and you nodded a big "yes"!

Ashley asked if you wanted us to come back tonight and you hesitated, but then you nodded "yes". I don't blame you – I feel like we need to be there to make sure the nurses know that we expect them to take extra special care of you. We didn't come last night and you said that you didn't get the best care. I'll make sure we have a talk with the night nurses.

It's a good thing Ashley and I came back tonight! When we got there you wanted to tell us something. We figured out that it was about your night nurse. We closed the door so we could ask you questions about him. You wanted to spell some things out, so we got a marker and paper to see if you could write, but you couldn't quite do it yet. However, you did spell words using finger motions. You said that your nurse's name was John and you did not like him. You said that he was rough with you and he did not make sure you were comfortable before leaving your room.

I was furious and asked if you wanted me to go get another one for you. You said no, but you did want me to have a talk with him. About that time he came in and introduced himself. We talked for a bit and I told him that I wanted to make sure he took extra special care of you. I told him that I knew what you liked and I wanted him to know. I told him that he needed to check on you often and say your name two times. If you didn't answer, he could let you sleep. But if you did answer, he needed to make sure you were comfortable, had enough pain medicine, see if you needed suction, etc.

We talked to him for a while and he is a very strange person. He liked to explain how things worked and Ashley pretended to care. We said the things he wanted to hear and we stroked his ego, but our goal was to just make sure he took really good care of you. He showed me how to do a full mouth suction (that goes all the way down your throat), and then he let me do it by myself. He asked Ashley if she wanted to give you a bath in the morning, and she said that she would ask you in the morning and see if you wanted her to do that, but that was a very strange conversation to have.

He informed us that you had pinkeye, so that's another reason they needed to keep the patch on your left eye. He also talked about the recovery a little bit too. He said that as your nerves start getting better, you may feel like your skin has pins and needles going through it, and you may even feel like you're on fire. You could feel this irritation even from us rubbing your skin softly, so we need to be careful and keep this in mind. I hope your recovery isn't too bad, but let's get off the ventilator first and worry about the rest later.

He said that you could have 6mg of pain medicine every hour. Up until now you had have only been taking four. But since he's so freaky, we figured it would help you sleep through the night and help you not have to worry about him. He won't be back until next weekend, and by then hopefully you'll be in another room.

# Monday, January 24

Dr. Key called this morning and said that you were still doing well and that he was going to have you try to breathe on your own. If all goes well and your blood gasses are ok, he may take you off of the ventilator. So far during the morning you were breathing pretty well on your own.

In between the first and second visits, we all bought an iPad for you. I can't believe that out of our entire family you are the first one with the newest technology! We downloaded an application that allows you to draw/write with your fingers, so we are hoping you can spell things using this.

You were still on the ventilator this afternoon and Ashley said that you pointed to it when she got there and she thinks you might be disappointed. Your blood gasses were normal, but you weren't expanding your lungs quite as much as they wanted you to. The doctors will meet in the morning and decide if you are ready to come off of the ventilator or not. We are all hopeful and we think this is a real possibility – you are so close!

Ashley said that you did better typing on the iPad than spelling on it with your finger. It may be because your fingernails are so long. You wanted them to be cut, so she named everyone asking who you wanted to cut them – Jill was your choice. Even with your long fingernails, you were able to type on the iPad – you typed that your leg hurt, and you also asked when you could have more pain medicine.

Jill and I came to see you tonight (remember that I have to work during the day) and you were asleep when we got there. I said your name a couple of times, and you didn't wake up, so we let you sleep for a bit. I ended up waking you up because I know you wanted your nails cut, and we weren't going to have a lot of time if we kept waiting. Plus I wanted to make sure you had what you needed for the night and that you were happy with the nurse.

You were still hooked up to the ventilator, but you had still been breathing on your own since this morning. I told you not to be disappointed and that you should be off of it very soon – tomorrow morning was definitely a possibility, but even if not, it should be very soon.

While Jill did your nails, I showed you a few things on your new iPad. I showed you how to view your email, browse the web, download Apps, and play games (I set up a scrabble game for you against Ashley and one against me). After I showed you all of this (as you nodded your head the entire time as if you were following right along), Jill asked you if you could see well enough – to this you nodded "no". You had a clear patch over your left eye, and you said things were blurry and you were seeing double – so I guess the iPad lesson was no good...

You wanted to be turned on your side, so we got the nurse (Erin – new nurse tonight). After getting you situated, you said that you needed another pillow so Jill went and asked for one. Jill came back and said that Erin said she may not be able to find one, and that you already had a lot of pillows and that most rooms only have one or two. I was very upset with her, and if she didn't end up getting one, I was going to be talking to her boss.

She came in with a blanket rolled up and said to use that while she looked for a pillow. I told her that I thought she would surely be able to find one and that you needed lots of pillows due to your condition. All I know is that she better find one or she is going to be dealt with – no one treats my mama like that!

She ended up finding one, but I still didn't care for her. I asked you if you wanted me to see if we could get another nurse assigned to you, but you said no. I told you that I would at least tell her to take really good care of you, make sure you were very comfortable before leaving your room each time, and make sure you got pain medicine when you needed it. I did that on my way out, and she said that she would take good care of you - she better! We'll see tomorrow and if not, I will fire her from caring for you again.

# Tuesday, January 25

Well, you are still on the ventilator because your lungs aren't pushing enough air. Dr. Key does not want to rush it, and although I know you're more than ready to get that out of your way, it's better to wait until you are 100% ready than to take it out early.

We still don't know if they are going to do the blood plasmapheresis or not – and I'm not sure when they will make the final decision. I was really hoping that you would be off of the ventilator today, and they would inform us that you did not need the blood plasmapheresis so I could go back to Phoenix knowing that you were in a more stable condition. Now I don't know what to do. My flight is scheduled for tomorrow, but I don't know if I should stay here and let Jill and Brooklyn go on their own or not. I guess I'll talk to you about it tonight and see what you think.

Dad said you were frustrated, and you were trying to tell him something, but he could not figure out what you wanted. You were holding both hands up making a rectangle shape. I told him it might be for the papers Shae made, but he said he asked you and that was not it. I hope you got what you needed by now!

Shae and I came by and saw you tonight. Right away you wanted us to move your legs and position you on your side more. I asked if the nurse was ok last night and you said that she was just ok. I asked if you wanted me to get another nurse, but you said no. She came in and talked to all of us and she seemed to be a little better than last night, but I already have a bad taste in my mouth from her. I asked you again if you were ok with her and you said that you were.

I showed you some Apps I installed on your iPad such as Facebook, Fox News, etc. I also created an icon for your CaringBridge website and Shae read your new guestbook posts. You used your iPad to write that they forgot to feed you for 12 hours. I asked if they admitted that, and you said they did. You didn't want me to go cause a scene since you weren't hungry anymore, so I didn't. If it weren't for you, I would have caused several scenes by now. They better take better care of you or they're going to have to deal with me!

I told you that I had a flight back to Phoenix tomorrow, but I would stay if you wanted me to. At first you shook your head that you wanted me to stay, then you shook it the other way. You were saying that you didn't want me to go, but it was ok for me to go. I asked you several times if you needed me to stay because I would stay in a heartbeat, but you said no. I'll be back next Thursday to stay for 10 more days, so we were both happy about that. You will be in a normal room by then – well, you better be!

I told you not to be discouraged about still being on the ventilator. The doctors are just being cautious. You are so close to coming off of it – just hang in there. There's a good chance you will be off of it tomorrow – I sure hope you are. I really want you to be off of it before I leave - but if not tomorrow, it should be very soon. Keep your hopes up!

It was so hard to leave you this time because I know it will be 8 days before I see you again. Even though everyone is taking great care of you, I just want to do it myself – you know that feeling you have that no one can take as good care of someone as you. I feel like that. We joked about Dad and Shae taking almost as good care of you as I do. The good news is that Ashley will be back Friday and stay until Monday. Shae comes to Phoenix on Sunday, so Dad will only be by himself for a few days since Shae and I don't come back until Thursday.

I held back my tears because I didn't want you to be sad, and I wanted you to stay strong and use your energy to get better. But I'm so sad to leave – I really don't want to, and I hope everyone takes great care of you while I'm gone. It helps to know that I'll be back soon, but it's just not soon enough – I want to be here the whole time to help you get better everyday.

You squeezed my hand to tell me you loved me. Jill told you bye on the phone and that she loved you – you squeezed my hand three times again telling her that you loved her too. I love you so much Mom – I hope you always know how much I love you. Get better quickly and I'll see you soon!

# Wednesday, January 26

Great news! They took the tube out and you are off of the ventilator!!! Dr. Key called this morning and told Dad the news. Dad left me a note before he left to see you this morning. I'm so happy, and I know you are too. I did not want to leave until you were off of the ventilator, and I'm so glad that today is the day.

After Dad got back he told me that you asked for a milkshake. The nurse said you're not ready for one yet – and you should really be resting your voice for the next couple of days. Dad said you sounded very hoarse and that you told the nurse that he could not hear very well. I know you're so glad to get that tube out of your throat!

On our way to the airport, I told Jill to run me by the hospital. I just had to see you one more time. On the way, I called and told them I was on my way to the airport and asked if I could come in and say good-bye even though it wasn't during visiting hours. They said I could! I came in and it was so good to see you without the tube down your throat!

You said that I didn't have to come by and I told you that I wanted to see you again before I left. I told you how happy I was that you were off of the ventilator and how good you looked. You said for us to have a safe flight and that you loved me – it was so great to hear you say that! As I was leaving, I turned around and asked if you needed anything before I left – water! I gave you a few swabs and you massaged the foam getting a decent amount of water out.

It was so hard to leave you even though you are doing so much better and breathing on your own. I definitely wanted to stay and keep helping you, but at least I'll be back in a week. I called Shae to check on you when we landed and she said that you were uncomfortable because they are giving you a different pain medicine now that you are off of the ventilator. I hope it's not too bad and that you get comfortable soon. I told Dad that I would be calling several times a day – he said to call any time, that you were going to be ok, and he cried a little bit. I know you're going to be ok, but I already miss you so much! I just want to be there for you all of the time. I'll call often, and I can't wait until you can talk 100% so we can talk on the phone.

# Thursday, January 27

This is the first day I haven't seen you in 13 days – I wish I was still there. I got updates from Dad and Shae throughout the day to see how you were doing. Your breathing is doing so well that they took the ventilator out of your room!

They said that you liked your swabs dipped in Sprite now – but you still can't drink fluids or eat on your own because if the fluid goes down wrong it could get into your lungs and be extremely dangerous. It looks like you'll be able to drink soon, and then eating will come after that – I know you can't wait!

Dad said you were pretty uncomfortable this morning because the new pain medicine tasted so bad. But by the end of the day you were taking the usual pain medicine again, but in smaller doses – this seemed to make you feel better.

Ashley will be there in the morning, and she'll stay until Monday. I know she'll be happy to see you without the ventilator! I'm planning on calling this weekend and talking to you on the phone – I'll do most of the talking because you still need to rest your voice. You were talking a little bit today – still hoarse of course. Nancy came to see you, and you talked to her some as well.

Dad said that your hands were moving better too – I can't wait for them to get better so you can play with your new iPad – I think you're really going to like that!

Still no word on whether or not you're going to have the blood plasmapheresis or not – Dad said that you told him that the doctor has put that on hold for now. That makes sense – you're doing better so I'm glad they're not rushing into it. I hope you don't have to have it.

# Friday, January 28

Dr. Key said that you were a little better, but there was not much change over all. The blood plasmapheresis is on hold, and they will not move you to a regular room today.

During physical therapy, you sat up on the side of your bed for a little bit, but this made you dizzy and tired. Your swallowing is still not normal, and you still can't eat or drink. You are now having Coke swabs, and you are more comfortable. Ashley got there ok, and you can talk a little bit now. It's easier to find what you need, you're still pretty hoarse, but your voice is stronger today.

I talked to you on the phone tonight while Ashley and Shae were there. It was so great hearing your voice! You were slurring, but you were talking pretty well. I wish I was there! You said that you were more comfortable and that I took good care of you when I was there.

Shae told me that you were no longer on oxygen and that the only tube you had now was your feeding tube. This is great news once again – you just keep getting better and better!

You are moving your fingers and toes better now, but you still can't quite use your iPad. You said that you really liked it though, and we agreed that once you can use it you're going to love it. I asked if you had been watching TV and you said that you were still seeing double and there was "crap" on the TV anyway.

I reminded you that I would see you next Thursday – you weren't sure that today was Friday, so I told you that too. I can't wait to get back to see you again!

# Saturday, January 29

I called Dad this morning but he wasn't back from the hospital yet. And of course he doesn't have your cell phone turned on. But I was able to talk to Ashley, and she gave me the morning update. Your x-rays came back and they showed narrowing of the spine (spinal stenosis) which means that the space surrounding the spinal cord or the spinal nerves narrows. This exerts pressure on the spinal cord and/or the nerves. The doctor suspects that you've had this all along, and they are just now noticing it.

They also found a mass on your adrenal gland, but they don't know what it is yet so they gave you an MRI to find out more. They don't think they'll get the results back until tomorrow.

Ashley said that you were really uncomfortable again and that your leg was hurting pretty bad. I asked if she made sure the night nurse was ok, and she said that you told her that she was. You always liked me checking with you to make sure the night nurses were ok, but things are much better now that you can talk.

You were able to move your feet and ankles a little bit this afternoon, but you are about the same otherwise. Your speech therapy went well – they are going to give you a "food test" tomorrow to determine which type of food textures you are able to eat.

# Sunday, January 30

The food test went well - you had a milkshake, and you were able to eat a few bites of solid food. The mass they found is actually confined in your kidney, and they found some cell death near it. This could be the cause of the attack on the immune system. The mass could be cancerous, and they may have to take out part of your kidney (or the whole thing).

# Monday, January 31

You still have your feeding tube. You can eat and drink whatever you want, but it's still hard for you to swallow so you aren't really eating much at all. You are able to use your arms and hands extremely well now, but you still can't move your legs and feet (although they are beginning to tingle).

They will have to take out the mass on your kidney. They don't do biopsies due to danger of infection/spreading. You are ready to go to the ICU step-down room now, but there aren't any rooms available so you'll stay in ICU for now.

# Tuesday, February 1

You moved to an ICU step-down room this afternoon. Even though you can move your arms and hands pretty well, your fingers haven't recovered enough for you to use your iPad.

# Wednesday, February 2

Before you have your kidney surgery, you will go to a Physical Therapy facility to regain your strength. We don't know how long you'll need to be there or even which one you'll go to. Dad has already started researching them to find the best one.

You're still having trouble swallowing even though you're on a liquid diet. I'll be home tomorrow and I can't wait to see you again!

# Thursday, February 3

I am so excited that I'm coming home to see you today! I called Dad at home and on your cell phone, but he didn't answer either one.

I'm actually writing this part on the plane right now. Weather in Birmingham is bad and there may be another freeze. Billy told Shae earlier that there was no way we'd make it to Birmingham tonight. We called the airline, and they said the flight was still scheduled and on time. When we got to the airport, they announced that this flight had a "weather advisory" which means that it could be diverted at any time and if we land somewhere else we are responsible for our accommodation. They offered everyone another flight tomorrow if anyone wanted to stay in Phoenix.

Well, we're taking the risk – I've been away from you for too long. If we get stuck somewhere along the way, I bet the hotels are all booked up. That means that we'll all have to sleep in the airport – that would be a lot of fun with Brooklyn, huh? Here's hoping we make it!

They announced that the flight time would be 2 hours and 45 minutes. This is pretty quick, so it seems like we are going to go fast and try to beat the weather. I'll see you soon (I hope)!

Well, we made it – when we got to your room you were eating applesauce with some kind of "thickening" substance along with some medicine. You said that it tasted horrible as the nurse suggested that you finish it up. You are still on the feeding tube since you can't swallow 100% yet.

You were talking a whole lot better than when I left. It was so good to hear you talking again! And it was so much easier for you to tell us what you needed instead of us taking you through 20 questions first. Your lower back was hurting, and we had a hard time making you more comfortable. You finally said that you would be ok when you got the next dose of pain medicine.

When I asked the nurse to give it to you, she said that you had to wait 40 more minutes because you can only get it every 2 hours now (and only 2mg each time, so they are definitely weaning you off of it).

Your arms and hands were moving a lot better than when I left too – it's so good to see you doing so much better! Your right eye is not as red anymore, but your left eye is. You are still seeing double and still cannot close your eyes all the way.

Although you should regain movement from the top down, your eyes and upper lip are still paralyzed. You still can't move your legs very well, so it's strange that you are getting better first with the middle of your body.

I can't stress how great it was to see you and to hear your voice again! I'll see you tomorrow after work.

# Friday, February 4

Dr. Key called in the morning and I listened in. Dad asked about your pain and if you were addicted to the pain medicine. Dr. Key said that your personality showed that you were not. Dad asked what else could be done about your pain, and he said that you needed to start rehab soon. Dad asked for a timeline, and he said possibly early next week.

Shae and I came by tonight and you were doing pretty well. You continue to talk often, and you sound really good. You had us move your legs a bit, give you some ice, and give you some ChapStick, but other than that you were relatively comfortable.

We read the updates from the CaringBridge guestbook. We forgot to bring you a milkshake (sorry), but we'll bring you one tomorrow.

You asked about all of the kids and we talked about our meetings in Phoenix a bit. Shae wrote an update for your CaringBridge site. We took your boots off to give your feet a rest for a while. You wanted some pain medicine, and they had a new routine – 2mg every 4 hours, but you were also able to take pain pills (up to two). Before we left you took one, and you were going to decide whether or not to take the other later – then you decided to go ahead and take it right as we were leaving.

The nurse told us that the doors only locked from the outside at 9:30pm, so we could actually stay longer. You've been in there for a month and we're just now finding this out? So we stayed longer – but she was wrong – we were locked in. I was able to pry the doors open though, so we got out anyway. Since tomorrow is Saturday, I'll get to spend more time with you – I can't wait!

# Saturday, February 5

I'm sorry that I've had to work so much, but it allows me more time to spend with you in the end. We brought your hairdryer to you, and we talked about rehab a little. It sounds like Lakeshore may be good for you. I have to fly to Orlando tomorrow. You said that your butt hurt the most – funny how you said "butt". You had a good night last night

# Sunday, February 6

You had a pretty good day today. You were not in a lot of pain, but some. We moved your legs every so often. Your feeding tube will move to your stomach tomorrow and come out of your nose. You also had your eyes checked today.

# Monday, February 7

They put the tube in your stomach today. You couldn't seem to get comfortable – it is a pretty big incision. Lakeshore is going to come by and evaluate you tomorrow.

# Tuesday, February 8

The people from Lakeshore came by today and you have been accepted – you will go tomorrow! You don't think you're ready, but I think you'll start feeling a whole lot better once you get there and get moving again. You'll have several hours of therapy each day including physical therapy, speech therapy, occupational therapy, and maybe even respiratory therapy. It sounds like you're going to be busy, which is a great road to recovery!

# Wednesday, February 9

I flew back from Orlando this afternoon and came by Lakeshore to see you before I went and picked Jill up for our anniversary dinner. You have one of the only private rooms in there – I think Jimmy hooked you up! You have your own bathroom too (it looks like most people share them because I saw a few community showers and toilets in the hall). You had recently gotten there so you were just starting to get settled in. Ryan and Landon were with us, and you sure were glad to see them (you hadn't seen them since Christmas). They were excited that you arrived by ambulance.

You ate a lot of ice on your own – you are swallowing a little better now, but you're still not eating enough on your own. You are still seeing double, but you were doing very well overall – you seemed pretty comfortable, and you were talking better too. I kissed you goodnight and you told me "Happy Anniversary" – and you told me to tell Jill the same.

# Thursday, February 10

While I was working at your house, the phone rang and caller ID showed "HealthSouth" so I answered it. I expected Dad to be on the line, but it was you! It was so good to hear your voice on the other end – you haven't called me in over a month! You asked me to bring your glasses when I came to see you.

When Shae and I got there, we knocked on your door and Dad told us that you were getting a bath (by two men) so we would need to wait in the common area for a while. We met one of those nurses and he was as gay as they come, so we told you not to worry.

Since they bathed you, they forgot to bring your dinner. Dr. Dong was there, so we told him, and he said they would bring you some food. They showed up later with potato salad and a chicken salad sandwich – I think they had already shut the kitchen down and they just scrounged up what they had. You ate some of the chicken salad and crackers, and Dad ate the sandwich. It looked horrible, and when Shae asked if it was good, he say "no" very quickly with a full mouth.

Dad informed us that you had a "movement" earlier – since Shae had a hard time understanding that before, we clarified since she thought you had just been "moved around". Your new favorite word is "butt", but when you say it right now it sounds like "vutt" – it's pretty funny.

Shae dried and combed your hair, and I showed you some pictures and videos of Brooklyn (you had a patch over your left eye so you weren't seeing double quite as much).

We asked how your therapy had gone this morning, and you said that they woke you up at 5am to get started – yuck! As you were exercising, your blood pressure rose too high so they had you lay on your mat to rest. You were so tired that you fell asleep. They thought you had died, so they were yelling your name in a panic.

After a long day like that and the fact that you got a new air mattress tonight, you should get a good night's rest. As always, I hope you sleep well and that you are very comfortable. I'll see you tomorrow night (visiting hours are only from 4pm-8pm).

# Friday, February 11

Dad came by and had lunch with you today. I'm sorry that I was so late tonight. Dad said that you ate pretty well at dinner. I brought you a milkshake for dessert.

Physical therapy has been good and you said that you like it. You're still seeing double, so you have tape over the left lens of your glasses to help. Milo's closes at 9pm, so you told me to leave a little bit early so I would make it in time. You said that you were tired anyway, but I'm not sure if you really are – you probably just want me to be happy – but I'm happy staying with you!

# Saturday, February 12

You called me and told me to bring you a few things. I asked if you called me by yourself, but you said the nurse helped you – maybe it won't be long before you can call me any time you want! I really hope it's soon since I'm going back to Phoenix tomorrow.

It was nice to get to spend more time with you instead of just a couple of hours here and there. But today you didn't seem to be feeling so great, although you wouldn't really admit it too much. I think you were in a lot of pain – now that you are exercising, you are probably sore on top of being in pain already. You didn't want to take your pain medicine until we left though.

Jill came by and saw you tonight too. She was really glad she got to see you before we left, and she said that she could tell that you were doing so much better!

The nurse had scratched your right eye with the end of the medicine tube when they were putting medicine in it, so you had a patch over it. Although your vision was still blurry, you could see better than before because you weren't seeing double quite as much. Since this was the case, I gave your iPad to you so you could play Scrabble. You were able to see it well enough and play for a while, but then your eye started to hurt.

# Sunday, February 13

I wish I didn't have to go back to Phoenix today, but at least I was able to come by and see you before we left. Dad and I came to see you before lunch. Your right leg was bothering you quite a bit – couldn't quite get it comfortable (at least for very long). You said you had a good night, so I was happy to hear that. I think the therapy is adding to the pain you already have – I can only imagine how you must feel to have your muscles sore too. I'll miss you so much – I'll see you again in a few weeks!

# Monday, February 14

I called and wished you a Happy Valentine's Day. You were finishing up dinner and you said that it was actually good. Your therapy went well and we both said that we wish I was still there. You told me that Dad would be coming to your therapy session next Monday so he could learn how he can help you when you get home.

# Tuesday, February 15

I called you after work and you said you had a good night last night and you only took one pain pill. For some reason you try not to take much pain medicine so you hold off as much as you can. I'm glad that you felt ok and you didn't have to take more than one – I know you like that.

Today was a really good day for you too. You had just finished eating a hamburger (ground up really well) and you said that it was pretty good. Therapy went well, and you said that you felt like you were continuing to improve. You still can't move your top lip or blink yet.

# Wednesday, February 16

I called you tonight, but you didn't answer. It wasn't too late, so maybe you were out doing something!

I read the CaringBridge website update and saw that you were eating a whole lot better - Pizza Hut, lemon ice box pie, and a Krystal! Shae described how they get you into the wheelchair (via a chair lift). She said that you played Scrabble and Yahtzee. I hope to get you on the phone tomorrow!

# Thursday, February 17

When I called you today, and you answered by yourself! The night before the phone wasn't close enough to you, so you couldn't get to it when I called. You had a good night and day, but it was bad yesterday because you were hurting a lot. You didn't want to take pain medicine in the morning because you didn't want it to impact therapy. Therapy ended up being really rough. You also told me that Billy came by to see you during his lunch break.

# Saturday, February 19

I called today, but you didn't answer.

# Sunday, February 20

You had a nice visit with Ashley, Dawn, Trae, and Dennis today. You told me that you thought you were going to get to go home next week. I asked if you were ready to get home and you said that you would love to be walking and standing on your own first. You are worried about Dad having a rough time taking care of you, but I know he'll do fine – he's been so good to you.

You can lift your legs when you're in the wheelchair, but not when you're in the bed. You can blot your lips, but you can't smile. You've been eating a lot better (but not the hospital food) – you had a Chalupa from Taco Bell and you said that it was the best ever. You heard the phone ring last night and figured it was me, but you couldn't get to it and Dad had just left.

# Monday, February 21

Now they said that you wouldn't be going home until next Monday at earliest. Dad was there today, and they trained him on how to take care of you at home. He thinks he'll be ok, but you are worried about him. Getting from wheelchair to the car is an ordeal – you have to use board and slide across onto the seat.

Gaetha came by to visit today, and I know you appreciated that. You said that you didn't remember Ashley coming to see you in the hospital three times, and you didn't remember me coming either. Even though you don't remember, I know at the time you needed us, and we all took good care of you!

# Tuesday, February 22

I called you tonight and you said that you were doing ok. Your blood pressure went up really high during rehab, so you had to stop – you were on some kind of tilting board at the time. You told me that Danny came by and brought Dad a Boston Butt.

They're going to evaluate you next week to see if you will be able to go home then. You think you will, but you're thinking about going to a nursing home instead because you think it will be too hard on Dad. You told Dad that he would be the only one there for you to take your frustrations out on, and he said that was fine because he was used to it.

You asked if Brooklyn was doing anything new, and I told you that he is having a lot of fun and he laughs a lot – you can't wait to see him! I told you I was going to Orlando on March 8-11 and then I would come back to Birmingham after that.

# Wednesday, February 23

You ate a whole taco today! You are going to start getting normal food instead of ground up soft food. You had the same blood pressure problem when you were on the tilting board again.

You asked about Brooklyn as usual. I told you that I would be home on March 11th after my Orlando trip.

Dad is really good to you - I told him that I would be home soon to help, and he said that he would be fine, as he has nothing else to do anyway. You may be getting your kidney out the next time I'm home.

# Thursday, February 24

You said that you had a good day today and that your workout this morning was really long – and you went back for another workout with little time in between, so you didn't have much time for lunch (but tonight you will start eating normal food).

You did not do the exercise with the tilting board this time. It takes two people to help you stand up. You could tell that your legs were not strong enough to support you, but they were not like rubber like they have been. They said that your legs are getting stronger, but you can't tell.

You scooted yourself on the board from the wheelchair to a normal chair several times. You have a choice to go to a step-down (nursing home where you will still get therapy) or home. You said it's up to Dad – he says it's up to you. Dad will have a lot of work to do at home.

# Friday, February 25

Well, you're going to stay at Lakeshore for 10 extra days. You said that you would definitely be ready to go HOME after that.

Dad brought you baked spaghetti from Costa's, and you loved it. I told you that Jill and Brooklyn wouldn't be coming to Birmingham with me next time, and you seemed pretty upset. I'm sorry about that.

# Saturday, February 26

Shae and Lori came by, but you were asleep after a long day of therapy. She couldn't wake you up, and Lori said to just let you rest. You finally woke up an hour later, but Lori had already left. You almost didn't believe Shae when she told you! You must have really been worn out!

# Sunday, February 27

You ate another Chalupa today, and you are feeling pretty good. You asked about Brooklyn like always. It sounds like you could go home on March 10th, which is the day before I get there.

# Monday, February 28

I called you earlier in the afternoon, but you didn't answer. I called again tonight and you said you were probably sleeping when I called earlier. Your rehab really wears you out, and you sleep pretty hard.

You will be going to see the doctor next Monday so they can evaluate you and decide when they'll take your kidney out. They may take it out as soon as you leave rehab, but they'll assess that when they see you next week. I hope they give you some time to rest at home first, but it's probably good to go ahead and get it over with as soon as you can.

# Tuesday, March 1

There has been a slight change of plans – now you're going to the doctor on Tuesday to find out when your kidney will be removed. You had a good day today - therapy went well, and you even took a few steps. You also used your arms a lot. You asked me about work - it's been tough, but it doesn't compare to what you've been through!

# Wednesday, March 2

I called you tonight and Dad answered. He said that you were not feeling well, and that you could not talk. I hated to hear that – you had been doing so well. I hope you feel better soon!

# Thursday, March 3

You're feeling much better today, and you're going home next Friday! You went to the doctor today (in another ambulance ride). He said that you would probably have surgery 1-2 weeks after you get home.

# Friday, March 4

I called you at 9:30pm and I was afraid you'd be asleep, but you weren't. You will be home in a week! You were feeling good tonight, but you said you that you were feeling sick earlier during rehab. You're not sure if you if you have rehab tomorrow – you hope not because you're ready for a break. But you only have a week left so you might as well get all you can.

You asked what Brooklyn was doing and I told you that he liked pointing at birds and saying, "burr".

# Sunday, March 6

I called you later than usual, but you were still awake. You are excited about coming home, and we're both glad that I will be there the day you get home. You're glad you won't be having your surgery while I'm there, but I want to be there when I'm needed to help the most.

You said that you were tired of hurting, but you really haven't been in pain for about a week and a half. You don't take any pain medication anymore.

David and Janet came by to see you today, and they brought the wheelchair that Janet used after she had her hip surgery. Shae came by and helped you write thank you notes. She wrote what you told her to write, and you signed them.

You still can't close your eyes, and your mouth is still paralyzed, so you still can't smile. You're not seeing double like you have been (since yesterday).

We talked for almost 45 minutes – it was so nice talking to you about everything that's going on again. I've really missed that! You were very interested in hearing about the changes going on with my job and that really meant a lot to me. You asked about Jill and Brooklyn as usual. Everyone is doing well – can't wait to get you home!

# Monday, March 7

When I called you today, you were disappointed because the doctors said that you would need to stay another week. They said that you were progressing so well that they wanted to work with you for another week. I know you're ready to get home, and I'm sorry you're so disappointed, but we agreed that after all that you've been through, this is really good news. It's much better than if they had told you that you needed to stay because you were not doing any better!

You told them that Ashley and I were coming in from out of town and that you had been planning to be at home with us. It sounds like they may let you come home during the weekend, so that will be great if you can. I may have to end up going back to Phoenix early anyway, so it may work out fine. I'm currently planning on staying for 10 days – from Friday to the next Sunday. We'll see what happens with work.

# Thursday, March 10

It's confirmed – you be coming home on Saturday. I know you're excited, and everyone else is too! You are still seeing double from time to time. You took a lot of steps today, and you're happy that you will be able to walk around the house. You also learned how to get in bed from wheelchair (and to a chair).

# Friday, March 11

After I landed in Birmingham, Shae and I came to see you. I can't believe it's your last night there! You are so ready to go home! Some of your nurses came in to tell you goodbye. They all said how wonderful you were, how much progress you had made, how hard you had worked, and that they wanted you to come back and see them once you had fully recovered.

# Saturday, March 12

You're home!!! We had some banners, streamers, and balloons at home waiting for you. Chi Chi was so excited to see you – he jumped up on your legs and when I held him up in your lap he couldn't stop licking your face.

You could move yourself around in your wheelchair very well by yourself. With help, you were able to get in and out of the more comfortable chairs in the den. You said how nice it was to finally be home – and we all couldn't agree more!

# Summary

61 days passed from the time you went to the hospital until the time that you came home. You were in the hospital for 30 days and rehab for 31 days. You were in the ICU for 19 of those hospital days.

During this time, I flew back to see you three times. I was in Birmingham for about 30 days in total. I would have stayed more if I could have, that's for sure!

# CaringBridge

This section contains three parts. The first is "Your Story" which Shae wrote for your family and friends to read about what was going on with you. The next section (CaringBridge Journal) contains updates written by Shae, (and sometimes Dad). Finally, your CaringBridge Guestbook contains all of the things that your friends and family wrote to you during this time.

## Your Story

Mom came down with pneumonia after Christmas. After a week or so, she noticed her hands, feet, and sides of her tongue were numb. She called her doctor, who told her to take an aspirin and go to the ER. He thought her symptoms may be signs of a stroke or possibly a heart attack.

After battling the ice, Dad finally got Mom to St. Vincent's. Over the next few days, Mom had multiple EKG's, CT Scans, MRIs \- you name it, she had it - but doctors weren't sure what was wrong. Meningitis, ALS (Lou Gehrig's), and Guillain-Barre Syndrome became the three most likely culprits, and a spinal tap was performed, followed by a second round of nerve conduction tests. Doctors determined that Mom had come in at the very beginning stages of G-B, and that was why initial nerve conduction studies didn't show anything. We now had an official diagnosis and, as terrible as the illness is, were relieved that it is a recoverable illness, unlike ALS (which was our fear).

None of us had heard of G-B, so we researched it on the Internet. Basically, G-B is a rare illness that may follow a respiratory illness. The antibodies that are fighting the respiratory illness (in Mom's case, pneumonia), begin attacking the nerves. This leads to temporary paralysis, including the muscles that affect breathing and swallowing. We knew it was likely that Mom would be on a ventilator at some point as the paralysis spread up her body.

We had already seen marked progression of the illness. Mom walked into St. Vincent's on Monday, and was unable to stand by Wednesday. Her speech began to go Wednesday and by Thursday, it was very difficult for her to speak and very difficult to understand her when she did. She also began having difficulty swallowing. I think Thursday was the first of five IVIG treatment - some type of IV medication given in hopes of a faster recovery. By the time I got to the hospital on Friday morning, she had been moved to the ICU, had a feeding tube, and was on a ventilator.

It really hit hard and hit fast. Fortunately, Brad and Ashley had already gotten plane tickets and were able to get to Birmingham Friday. I had been keeping them up-to-date, but I don't think they were really prepared to see her as she was. I had been with her all week, and I was still shocked at the rate in which the illness progressed.

We got the word out about Mom's condition, and the prayer chains grew. We so appreciate all the prayers said for her and for us and for her doctors/nurses. We know God's looking out for her and is going to take care of her!

See journal entries for Mom's progress/updates.

## Caringbridge Journal

### Wednesday, January 19, 2011 2:56 PM

Mom still can't really feel her legs and feet, but she does feel pain. Her leg seemed to really bother her today. Her hands seem stronger; she squeezes our hand three times to say, "I love you." I was surprised and excited when she was able to lift her left arm to her face to scratch her cheek and nose; she wasn't able to do that yesterday. It took us 10 minutes to figure out what she needed the first time she needed her cheek scratched. I can only imagine what she's thinking as we try to figure out what she needs! We made some picture/word cards to make it easier. These have helped, but there always seems to be something that takes us awhile!

We want to thank all of you who have kept Mom in your prayers; please keep up the prayer chains! We are so thankful for all of her good friends who love her and pray for her and are so quick to offer help! There is really not much we can do right now, but recovery is a long process (several months - rehab hospital will be the next stop), and we will be happy to have help as she progresses. (FYI - no flowers are allowed in the ICU, and she's not at the St. V's listed on the site; it's the one on 8th Ave. Also, visiting hours are limited right now, but we'll let you know when she's ready and has fewer restrictions on visitors.)

If you want to find out more about Guillain-Barre, the following sites have good info.

 http://www.ninds.nih.gov/disorders/miller_fisher/miller_fisher.htm

http://www.ninds.nih.gov/disorders/gbs/gbs.htm

http://www.guillainbarresyndrome.net/

http://www.gbs-cidp.org/aboutgbs.htm

### Thursday, January 20, 2011 12:07 AM

Mom was in a lot of pain when we went to see her tonight. Her back and legs are the worst. The nurses, who have been FABULOUS, repositioned her, but it was only better for a short time. She doesn't like having pain medication when we are visiting, but for the 2nd time today, she did go ahead and get it while we were there. Overall, she seems to be doing a little better, but feeling worse. :-(

Though seemingly a little better, she may not be progressing quickly enough to avoid having to have a tracheotomy. Her neurologist called today, I guess to prepare us, and let us know that she can't be on the ventilator for more than 2 weeks (we're at one week as of Thursday). If she's not breathing on her own by then, the tracheotomy will be necessary.

The doctor also mentioned the possibility of doing the 2nd treatment option for G-B, plasmapheresis (a procedure in which antibodies are removed from the blood), if we don't start seeing more progress in the next several days. It's been 3 days since her last IGIV treatment, so we hope it will start having more significant affect soon (usually takes a week or so to start seeing a big difference).

Neither of these sound good; I think Mom will be especially upset if she has to have the tracheotomy. Please pray that neither will be necessary!

### Thursday, January 20, 2011 10:28 PM

I only got to visit Mom once today; I needed to catch up on some work. To be honest, I sort of dreaded going tonight because I hated seeing her in so much pain yesterday. I was so relieved to see that she was more comfortable tonight and did not seem to be in too much pain. I love seeing the result of answered prayers; keep 'em coming!

Jill gave Mom a manicure. Mom seemed to really like having her nails done!

Brad asked Mom what she wanted to "talk" about, specifically if she know about her illness or wanted more info. She wanted to hear more, so I read some of the info. from the websites I listed yesterday. We read that the prevalence of Guillain-Barre is 1 out of 100,000. Mom's doctor said that her variant of G-B is even more rare, so we decided to look it up... Miller-Fisher Syndrome occurs in 1% of Guillain-Barre cases. Brad's ready for Mom to get out and buy a lottery ticket!

My Mom LOVED all the messages left in the guest book. Thank you for taking the time to write a note of encouragement and love. Please continue to pray for my mom and her doctors. Please also pray for my dad (he's hanging in there, too, but it's tough on him). We appreciate your kind words and prayers!

### Friday, January 21, 2011 8:11 PM

Mom felt okay this morning, not as bad as Wednesday, not a good as Thursday. She's moving her hands and arms well. We're still working on her legs. We exercise them whenever we are there, and the physical and occupational therapists come daily to work out her muscles.

We will probably know Monday if Mom will have to have a tracheotomy. Her breathing has improved slightly, but not enough to think a tracheotomy isn't looming.

Dad went to see Mom this afternoon. He said she had a busy day: bath, hair washed, physical therapy, and a bed change. This was followed by what he said was a very peaceful sleep, the most peaceful he's seen her since she was admitted.

Brad and Jill are visiting tonight; the boys and I ate dinner with my dad. They can definitely brighten the mood! I think my dad needed the distraction. On the way over, Ryan said, "I want GiGi back." Please continue to pray so we can have her back soon!

### Saturday, January 22, 2011 6:54 PM

I was at the boys' basketball games this morning, but Brad and Dad went to the morning visitation and got great news! The doctor turned the ventilator down from 8 to 6 (I think it was on 10 initially). Brad said they typically take patients off when they do ok on 4, so Mom's making progress! Maybe she won't have to have the tracheotomy... They also said Mom was moving her hands and arms well and even moved her foot a little; she hasn't done that in over a week.

She wasn't quite as comfortable this afternoon when we went. Her legs and back were hurting a lot. We read her the cards and guest book messages, and she appreciated all the prayers and words of encouragement. I know I've said this many times, but words can't express how thankful we are for her good friends. She loves you guys, and it means so much to her (and us) that you take the time to write her a note and check up on her, and most importantly, pray for her continued progress and strength.

Mom "said" she wanted to rest and for us not to come back tonight, so the next update will be tomorrow. Thank you all for your prayers!

### Sunday, January 23, 2011 1:09 PM

GREAT, GREAT report today!! The doctor said Mom was breathing well and turned the ventilator down again. It's now at 4! If she continues to do well, they will put it in "boost mode", then with continued progress, take her off of it! Yea!

MORE great news - Mom can move her feet a toes a little. She also "says" her tongue isn't completely numb anymore, just the sides (like when it all started). Her hands and arms are continuing to get stronger. She even lifted her right arm/hand and did the "crazy" signal when referring to my dad.   
She is still uncomfortable, mostly pain in her legs and her back.  
She also has a patch on her left eye. It doesn't close, so it's gotten red and puffy. They are using drops, but they don't seem to have helped much. Her right eye, which has been closed, was open some today. As long as she only has one eye open, she doesn't see double.

We feel Mom's really turned a corner today. We are so thankful for answered prayers. Please continue to pray for her; God is listening!

### Monday, January 24, 2011 4:43 PM

Another GREAT day! The doctor turned the ventilator down to 0, so Mom was breathing on her own. The only thing on was something that forces oxygen into the lungs to make them expand enough. That was on 12 and was turned down to 5! They were going to check her blood gases again and see if she could be totally off the ventilator by the 2nd visitation.

I think Mom got her hopes up and was disappointed when the ventilator wasn't removed. Her blood gases were good, but they want to make sure her lungs expand enough... maybe tomorrow.

Jill painted Mom's nails a few nights ago; now Mom has requested that she come file her nails. She didn't want anyone else, only Jill. I guess Jill needs to open up a salon!

Please keep up the prayers; they are obviously working, as Mom has made so much progress in the last several days. We are so thankful!

Tuesday, January 25, 2011 4:06 PM

Well, Mom still has the ventilator tube. She is breathing on her own, with just the occasional "boost". We hope doctors will be able to remove it tomorrow. Her main doctor said her breathing wasn't quite strong enough yet, and he didn't want to take it out too soon. We know he's taking good care of Mom; he calls my dad every morning and sees my mom daily. We appreciate his dedication and compassion and will continue to pray that God will guide him and grant him wisdom as he makes decisions regarding Mom's care.

### Wednesday, January 26, 2011 11:39 AM

Wooooo Hooooo! Ventilator is OUT!! More later!

### Friday, January 28, 2011 10:42 AM

Sorry for the delay in updating the site. Mom is doing well! Her swallowing isn't as strong as they would like it to be, but it's getting better. She is able to have swabs dipped in sprite or coke, which she hasn't had in weeks. She is ready for a milkshake - maybe Monday. PT is here now. They have her sitting on the side of the bed. It is the first time she's sat up in over two weeks! I bet it feels good to be off her back. Mom can talk now. It is great to hear her voice again. I know she is glad to be able to tell us what she needs instead of having us ask her 20 questions trying to figure it out. I picked Ashley up from the airport this morning. It was the first time she had seen Mom since she got the tube out. It is a big difference from when she left just a few days ago. I go to Phoenix Sunday. I really hate to have to leave. Ash will still be here though. Brad is coming back with me on Thursday. We hope she'll be in a regular room eating and drinking by then. I am going to give Dad the website password so he can write updates. I may have to just write based on second hand info, but we'll see. Please keep up the prayers. We are seeing them answered every day!

### Saturday, January 29, 2011 4:25 PM

Mom has a message for everyone... She says "Thank you!" for the prayers and messages and that they have really helped her pull through this. Mom looks good today and seems pretty comfortable. She has a pain patch that is helping with the pain. She had an MRI and CT scan to make sure nothing was wrong with her back and legs since they were bothering her so much. We should have the results Monday. Dad will update the site Monday. Please continue to pray for my mom's recovery!

### Monday, January 31, 2011 12:55 PM

Kay is improving each day and has regained about 90% of the use of her hands and arms. She has very little movement in her feet and legs but they are beginning to tingle, which is a good sign. She has been cleared to eat and drink anything she wants, but she has trouble chewing and swallowing. Therefore, she eats almost nothing. She is still has a feeding tube, however. She is breathing well on her own, and her oxygen tube has been removed.   
A CAT scan conducted Sunday revealed a mass in her right kidney. Doctors tell me the mass will be removed once she has regained her strength. A biopsy will not be performed to avoid spreading infection, therefore, we will not know if cancer is involved until the actual surgery.

Thank you for caring for Kay, and please keep praying for her. Unless there is a significant change, the next update will not be provided until Wednesday.

Jerry

### Wednesday, February 2, 2011 7:45 AM

Kay has been moved from the ICU to room 482 (no restrictions on visitation). Otherwise, there has been very little change since the last update. The Doctors tell me she will eventually be moved to a physical therapy facility to regain strength before having kidney surgery.

At this time, we do not know when, where or for how long. She is still having trouble swallowing even though she is on a liquid diet. Please continue to keep Kay in your prayers.

Jerry

### Friday, February 4, 2011 8:56 PM

Mom is lookin' good! She still has some pain, but the doctors are trying to ween her from it so she can go to rehab. Monday they are going to take the feeding tube out of her nose and put one in her stomach. Apparently, it has to be in the stomach in order to go to rehab. We hope she'll be able to go to Lakeshore, but we aren't sure they will take her. They will send some therapists to do an evaluation some time. Dad has enjoyed being able to spend the day with her instead of going back and forth during ICU visiting hours. I think she is enjoying it,too. Brad came back to B'ham with me last night, so Mom was glad to see her BABY! Right now Mom is moving her ankles and feet. I haven't seen her do more than wiggle her toes! Way to go, Mom! Mom said, "That's enough," so I guess I'll have to wrap this up and continue tomorrow. Please keep up the prayers!

### Tuesday, February 8, 2011 10:22 AM

Sorry it's been so long since the last update. Trying to catch up after being out of town is hard!

Yesterday marked a full month that my mom has been in the hospital! The feeding tube was removed from her nose yesterday and one was put into her stomach. Apparently, that had to occur in order for her to be able to go to a rehabilitation hospital. She is still having difficulty swallowing, and she still has pain, mostly in her back and legs. They've reduced her pain medications, also a requirement for being able to go to the rehab. hospital. I think what bothers her most now, besides the pain, is that she is still seeing double. She's got to be bored not being able to watch TV or read or anything. We got her an iPad so she can play games, but she's not able to yet. You know Mom loves playing games on the computer, and we figured this would help since she probably won't be able to type for a while.

I believe someone from Lakeshore is going to evaluate her this week and see if she's able to go there. I hope so; we've heard great things, and with it being close, it'll be an easy daily trip.

As bad as this illness is, I guess I'd have to say it's a blessing since it enabled the doctors to locate the mass on her kidney. I jokingly ask why God didn't just give her a broken leg or something similar that would've allowed docs to find the cancer instead of GB, but I think I've seen some of the possibilities. I guess He does really work in mysterious ways.

### Tuesday, February 8, 2011 5:37 PM

Mom is going to Lakeshore tomorrow! She doesn't think she's ready, but we're ready for her to get moving and start getting some movement back.

I'll let you know the details of the move, etc. tomorrow. I do know their visiting hours are different;  
4pm - 8pm Monday - Friday  
3pm - 8pm Saturday  
10am - 8pm Sunday

I don't know what Dad will do with himself all day! We'll have to find a "project" to keep him busy. Mom will be very busy. She'll have a minimum of 3 hours of therapy each day. I'd say it's likely closer to 5 hours because she'll have PT, OT, speech therapy, and maybe respiratory therapy.

Please keep up the prayers and words of encouragement! They are so helpful and mean so much to our family, and especially my mom!

### Saturday, February 12, 2011 5:20 PM

Mom is doing well at Lakeshore. She says they are wearing her out. One therapist noticed she was tired today so she rubbed lotion on her and massaged her legs and feet. Mom liked that a lot. She has physical and occupational therapy each day. She gets a weekly grade, so we are awaiting her "report card". :-) She still has leg pain. She actually said her legs hurt more since beginning therapy. Guess that is part of the process, but it'll be nice when the pain is gone. Mom still has the feeding tube, but she is eating a little, too.

### Wednesday, February 16, 2011 8:38 PM

Mom continues to do well! Her swallowing and eating have gotten much better. She's had pizza from Pizza Hut, lemon ice box pie and chicken salad from Diplomat Deli, and a Krystal (yep, believe it or not, she requested a Krystal). She also eats ice cream at least once a day. She's tried the daily meals at the hospital, as well, but doesn't care for them too much. I guess she won't need the feeding tube much longer...

Her therapy is going well, too. They really give her a work out! I think she also sits in the wheelchair for an hour or so each day. It is interesting to see them get her into it. They have something called a chair lift that I bet the boys would love to try! They put her in a blue mesh sling-looking thing, then hook the top and bottom corners to a machine. This picks her up, suspends her in the air, moves her toward her wheelchair, then lowers her into it. Looks like fun, but I bet she'll be glad when she can stand and walk on her own two feet!

Her eyes are a little better. She can see better at some times than others. Last night she was able to play Scrabble with me on her iPad, and today she play Yahtzee with Landon, Ryan, and Me. She loves to play games, and I think she enjoyed being able to do something other than listen to tv and my dad. :-)

Please continue to keep my mom in your prayers. She is doing great, but still has a lot of recovery ahead of her!

### Thursday, February 24, 2011 5:47 PM

Mom continues to improve! She requested a chili dog from Sneaky Pete's, so Dad brought her one. Her eating and swallowing have really improved. They will leave the feeding tube in until her kidney surgery in case she ends up needing afterwards. They still give her the meds through it, which is good because she really hates eating applesauce with pills mixed in! Mom's case manager said she would be at Lakeshore until at least Monday (I think it will be a little longer, though). Her therapists say they can tell she is getting stronger. They are working with her on skills she will need at home, such as scooting on a board to get from the wheelchair to the bed. Dad said she will have the option of going home or going to a step down, which is a nursing home with some therapy. Mom and Dad are each trying to get the other to make the decision. They've been teaching my dad how to do things for her, and I think he'll be ok. I think Mom wants to go home, but she doesn't want to put all that responsibility on him. Dad is fine with it; he just wants her to feel comfortable in his ability to do what she needs. We will see what they decide... Thank you for continuing to keep Mom in your prayers! She is definitely making progress!

### Saturday, February 26, 2011 7:38 PM

Well, Mom is a little bummed today. She was looking forward to coming home, but found out she gets to stay 10 more days. She has a good attitude though; she knows it is the best thing for her. We thought she may have a break from therapy today because she didn't have it last Saturday, but that was not the case. They really wore her out! Her neighbors and I got to Lakeshore this afternoon to find her sleeping. Since she had company other than me, I tried to wake her up. I wasn't able to, though, so I just let her know her friends had come by when she woke up an hour later. She didn't believe I had tried to wake her up! I guess she was exhausted from her work out. Please continue to pray for her progress. Your prayers have helped her come a long way!

### Tuesday, March 1, 2011 10:09 PM

Mom took a big step today--- literally! Actually, she took FIVE steps! I am so glad she'll be at Lakeshore a little longer. It's amazing the progress that can be made from one day to the next! I really don't have more to report; I have sick children, so I haven't been to see her in a few days. However, I have talked with her on the phone, and she sounds relatively upbeat! One thing she told me was that they are taking her to St. Vincent's Thursday for an appointment regarding her kidney surgery. I am not clear on the details, but it sounds like she may have the surgery soon. Hopefully I will find out more Thursday...

### Thursday, March 10, 2011 6:15 PM

GREAT NEWS! Mom is coming home Saturday!! She's been doing great; she's even been walking with a walker a little. She is SOOO ready to be home! Good timing - Brad comes home tomorrow and Ash will be here Sunday!

### Sunday, March 20, 2011 11:55 AM

Mom is so happy to be home. She is actually sleeping in her own bed and loves it. She said it is MUCH more comfortable than the hospital bed. Mom is doing well! The occupational and physical therapists have been coming to Mom's house, but they haven't done too much yet- mostly gathering info. I guess they will begin working with her next week. Ashley is back in Texas, and Brad leaves today, so the house will be quiet again. We don't have a date for the surgery to remove her kidney yet. I think Mom is ready to get it over with and not have anything looming over her. We are ready too - just ready to focus on therapy and getting back to normal. Please keep up the prayers! Mom can talk on the phone (I think it's her favorite activity) so give her a call!

### Sunday, March 20, 2011 10:51 PM

This is Brad. I haven't posted anything since Shae has been doing such a great job, but after visiting my mom this week, I felt like I needed to say a couple of things.

Mom has so many wonderful friends and family out there. I just wanted to personally thank every one of you for everything you have done. Thank you for the thoughts, prayers, visits, and food. All of this helps more than you may realize.

And since Mom can't eat very much right now, the rest of the family really got to benefit from all of the wonderful food that has been given. Thank you all so much for thinking of all of us too. Every bit of the food was absolutely delicious, and it really helped and allowed us to spend more time together instead of having to worry about food.

Mom, you are really fortunate to have such wonderful friends and family. It was so good being home with you over the last 10 days - I already miss you and I love you very much!

Thanks again everyone - please keep Mom in your thoughts and prayers as she continues to recover. God bless you and your families!

### Thursday, April 28, 2011 11:55 AM

Mom had her kidney removed this morning. Everything went very well. The doctor said the mass in her kidney was likely malignant, but that it was totally contained within her kidney. He estimates a 95 - 95% recovery rate for this type of cancer (assuming it was cancer) The lab results will be back tomorrow, but it really won't make a difference since they got the kidney out.

Whew! We are all so glad this is behind her; now she can focus on recovering from the effects of the GB. She's been doing very well. She's been walking some, even without a walker sometimes. She's also been eating well. The only thing that really bothers her is her eyes. They both look really good today, though.

She hasn't been doing any therapy because the home therapists always called several hours after they were supposed to have been at her house to say they were one their way. She got tired of that and told them not to come anymore. I hope she'll be open to going to outpatient therapy after she recovers from her surgery. She's doing great, so I think therapy could help her get almost "back to normal".

Thank you for all the prayers; God has been listening! It's hard to imagine GB as a blessing, but had she not gotten it, we wouldn't have known about the mass in her kidney. Please continue to pray for her continued recovery!

### Saturday, April 30, 2011 3:40 PM

The doctor just called with the test results... It was "clear cell" (whatever that means), stage 1, the least aggressive type of cancer. However, since the kidney is out, there is nothing else that has to be done. What a blessing! God is good! Again, thank you for all the prayers and acts of generosity and love. They have meant so much to the entire family.

### Saturday, June 25, 2011 5:11 PM

### This is from Kay

I wanted to thank all of you for your prayers, cards, and the messages you wrote on CaringBridge. I looked forward each day to my children reading me the messages posted. I know that all of your prayers and well wishes had a tremendous part in my recovery. I am deeply grateful.

The removal of my kidney went well, and the tumor was confined to the kidney. I will have to go for a CAT scan once a year for five years to make sure it did not invade my lymph nodes or blood.

I am walking without any assistance now. I do walk a lot slower than normal, but at least I am walking. My eyes are still bothering me, but the doctor said they would get better. I have to keep ointment in my eyes day and night; therefore, my eyes are very blurry and it is hard to see. I haven't been able to get on the computer until now and only for a short time when I do.

I want my children and Jerry to know that I could not have survived this ordeal without them. I always believed we had three very special and caring children. Now, I know we have. Their prayers, visits (from Houston, Phoenix, Birmingham), and phone calls made me feel deeply loved and determined to get better.

I had a choice of going to a nursing home or home (provided someone would be there 24 hours a day). Jerry said he could take care of me and he did. He was terrific.

I hope this ordeal has opened my eyes and heart, and that it will help me to be a better person and friend to others. Thank you again for all of your support.

I love and appreciate you all!

Kay

## Guestbook entries

### Wednesday, January 19, 2011

Our family is will lift you up in our bedtime prayers tonight!

Beth Berutich

\---

You're so lucky to have such loving, caring children, not to mention how smart they are. I'm so glad Shae has set up this website for you and your friends. It's a wonderful way for us to communicate with them and you.

It was so good to see you moving your hands and arms today. It sure is encouraging to those of us who care for you. Shae did such a great job in creating the pictures for you to use to tell them what you're telling them. Guess the teacher in her helped her know how helpful they would be.

We all know you have a struggle ahead of you, but that you will continue to fight to overcome this. Know that you are in our thoughts and prayers and will be throughout this battle.

Love and blessings to you, Jerry, Ashley, Shea and Brad.

Alys & Larry Wilson

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Kay you are in my prayers. Please know I love and will continue to pray for you everyday.

Donna Ross

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Kay, David and I wanted you to know we are thinking of you every minute of every day. We pray you will get better soon. I know it is tough, so hang in there. Hope to get to see you when you feel like having company. Love to you all.

Janet Jones

\---

Hi my good friend. I am so glad we have a way now to keep up with your progress each day. It is almost 11:30 tonight...our talking on the phone time! Just know I am thinking about you even though we can't have our phone conversations right now; we will again.

You are in my thoughts and prayers every day.

Love you,  
Gail

### Thursday, January 20, 2011

I was so upset to hear about all that you are having to go through with this crazy illness! I know that it is a very hard battle, but I also know that you have a LOT of friends out here that are all thinking about you and praying for you each and every day, and we all want you to just concentrate on getting stronger and better! We are so appreciative of your children for setting up this site so that we can be a part of your extended family with them! Please know that we are all praying for a speedy recovery and will keep both you and your family in our thoughts and prayers until everything is back to "normal" again!

Love you!  
Cathy Brown

\---

Kay just wanted you to know that we are here for you and are praying for a speedy recovery. We are so thankful for Shae for setting up this website so we can keep up with you. I miss our phone calls but know that we will have many in the future. Just put all your energy into getting better. We hope to see you soon. We want to send love to you and Jerry and the children. Love you.

Janet Jones

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You and your precious family are in my thoughts and prayers. I'm so thankful to Shae for taking time out of her busy life to update your friends and loved ones on your progress. I will visit you as soon as you are up to visitors.

Sending love and prayers your way,

Gina Brannon

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We all miss you at Oakmont. Get well soon. Gaetha and Nancy are keeping us up to date with your progress. Everyone sends you and your family our love and prayers.

Love,  
Susan Hudson

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Kay, thinking about you and can't wait to have you home again. I hope your day was better today. Talking to Shae, she said your legs had been hurting. I don't know what I would do without Shae. Everyone loves having this site. So far even I can figure it out. Went to Bunco last night and all send their love and prayers. You have such a wonderful support group. You and Jerry will have all the help you need when you come home. Hopefully real soon. I want to come and see you soon. Be brave and hang in there. I Love You,

Nancy

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Hi Girlfriend, I was so happy to hear that you are moving your hands and arms, Kay. I have to believe that it is due to all the prayers that are being lifted up for you daily. We cannot count the number of prayer lists you are on. There are many people that love you and we had our Bunco last night and we ALL prayed for your recovery. You are going to get better so just hang in there. You have many friends that will walk this walk with you to your recovery because we ALL want you back good as new. I am so sorry that you have to go through this, but you are a fighter. It is wonderful that Shae has taken the time to set this website up for you. Thank you Shae!!!!!!!! Take care girlfriend. You do your job well and ALL your friends will do their job well. Love you, Kay,

Gaethea

\---

We missed you at Bunco!!! But everyone joined hands and Carolyn led us in a beautiful prayer for you. There are so many people who care for you and are praying for your speedy recovery that God will surely hear and head our pleas. Know that you WILL get better and we love you lots!!

Julie Hendrick

### Friday, January 21, 2011

So sorry that you and your family are experiencing this. I know it must be hard, but I know from experience how tough you can be. We pray for your speedy recovery and a return to good health. Thanks to Shae for postings here and for Brad and Ashley for being there for you. We are coming to shake your cage on Saturday, so you better get ready. I think we'll bring all five grandchildren just to keep you company! Tell Jerry we are thinking of him, too, and if there is something he needs, just let us know.

Brad says this is a very rare variation of G-B, so it just goes to show how special you are. Make sure they take good care of you, and know that you will get better every day. We love you.

David & Janet

\---

Dear Kay and her family: I just wanted to let you know I have been praying for all your family as you continue this journey. My daughter had GB back in 1997 while she was at the University of Florida. I am a friend of Alys Wilson and Alys called me to ask me what to expect for her friend.  The good news is that this is a temporary illness or disease. You need to hang onto those words. It is hard when you are watching your loved one go through it, so I indeed can sympathize with your dad and each of you children. Each day brings a new symptom and that is hard to face so I truly understood your comments of not wanting to see what each day brings. But with each day brings new hope too! My prayers are with you all. I will keep track of your mom's recovery, I wish my daughter lived closer so that she could visit and encourage her. She has done that since she struggled/suffered with GB and it means so much to not only her, but also the family. She lives in Missouri now and is a coach at Missouri State.

Remember that God is good ALL the time, and may you all feel His presence and loving arms around each of you, today and the days ahead.

God Bless,  
Ann Neptune

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Kay, we are praying that God would lay His healing hands upon you. We are also praying for your sweet family, hang in there guys! We are only a short distance away; please let us know if we can do anything!

Love,  
David, Katie, Henderson, Izzie and Brewer Jones

\---

Shae, thanks for the updates. It's the first and last thing I check each day. Kay, I'm so glad your improving. Please keep pushing because each day will seem a little better and a little closer to coming home. I'm hearing each day of people that know people that have had the same or similar diagnosis. They all say the same. It's a slow process but they have all recovered very well. I know the hardest part is the process. I hear your family is back this weekend. You are so blessed to have such a wonderful, loving family. You and Jerry should be very proud. I miss you and love you and I am praying for a speedy recovery. Hope to see you soon.

Love,  
Nancy

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Hi, Kay. I am so glad that you had a better day today and that you are moving your arms. Every day you will improve and will be a day closer to going home. God is so good and we know he hears our prayers. Miss you and love you, Kay.

Gaethea

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I just read Shae's update and am glad you are moving your arms and hands today...sounds like you had a busy day and took a good nap. It is so good to have a note on this website every day from Shae...Thank you ,Shae, it sure makes me feel better to know what kind of day your Mom has had.

Kay, I am going to Atlanta to spend a few days with Erinn and her family, and we will be back on Tuesday. You will be in my prayers, as always. Will check in with you when we get back.

Love,  
Gail

### Saturday, January 22, 2011

Hi Kay. We are all lifting you up in prayer daily. Your Bunco buddies prayed for you at Bunco on Wednesday night. My SS class is also praying and I am in a mom's prayer group at Hunter Street and we are praying. We love you and want you back with us!

Shae, I am sure you notified the church? If you want me to I will be glad to call or tell them tomorrow.

Love,  
Deana

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Kay, it was so good to get to see you. We are so proud of you for all the hard work you are doing to get yourself better. We know all the physical therapy you are having to do is hard, but hang in there; it is paying off. Glad we got to visit with Brad and Jerry too. We are sending our strength and prayers, and will visit you again soon. Love to all.

David and Janet

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Kay, I'm saying a prayer everyday for you and keeping up with your progress. Larry Hill (from Lantana) had this back in the fall and we saw him out in Arizona at the ballgame and he looked great--so there is an end to this. Work hard and you'll soon be back to normal.

Love,  
Kay & Ken Johnson

\---

Hope today was a good one for you. Just wish I could visit with you everyday. I think of you a zillions times a day. I'm so glad to hear of the progress you are making. Know it's hard work, but you are good at that and always have been. You have always found a way to get things done and I know you will through this.

I'm sure you were glad to see David and Janet today and that they were you. You all have been so close, I'm sure it was hard for them to stay away.

We went to get a bite to eat earlier and before we left we were commenting that we needed our "eating out buddies" to go with us. We miss you and Jerry doing this with us and can't wait until we're all doing it again. We went to Leonardo's and had Italian. It was so good. You would have loved it.

I miss your emails and our telephone conversations. I find myself saying, Kay would enjoy this one or I need to call Kay and ask her about this or that. I look forward to our getting back to doing these things.

Keep on with your daily improvements and we'll see you one day this week. You know we continue to pray for you, Jerry and the kids and send our love and blessings.

Alys

\---

Hey Kay. Just wanted to let you know I am thinking of you. Woit and I were shopping and we passed a few new consignment shops (3) I never noticed before. I thought Kay and I will have to check these out. I am looking forward to when we are able to do that! I am working Tuesday and will see you then. I am thrilled to read of your progress. I will continue to pray for your speedy recovery. As always, if anyone needs anything please let me know.

Love you,  
Laurie

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Kay, I am so excited about your good news. I am so glad that you are progressing so well. This is only the beginning. Our prayers are being answered. Sorry that you have been so uncomfortable, but that may mean that all your feeling is returning and that is also good. Keep up the good work. Hang in there because God is watching over you.

I love you  
Nancy

### Sunday, January 23, 2011

Just wanted to let you know that you are in our prayers and hope you continue to improve every day. You need to hurry up and get better so you can go watch the boys play basketball early every Saturday morning with me. I know much you love the early morning games.

Barbara

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We just found out about your health problems. You are in our thoughts and prayers for a complete recovery. Know you are a fighter and will be well soon. Jerry, if there is anything that we can do to help you or Kay, please let us know.

Pat and Mike Guin

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Shae, thanks for posting early the wonderful news! David and I are so glad she is doing better on all fronts. Maybe the ventilator will be gone soon and then everything else will follow. We think of Kay every minute of every day and pray for her quick recovery and we send our love and strength to you all. Tell her to hang in there and maybe before she knows it we will be having our late night phone calls. I miss her. Love to you all.

Janet

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Kay, I wanted you to know we prayed for you in SS today. I am so thrilled with your good report!!

Deana

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So thrilled at the good report today! Our prayers are truly being heard! Will continue to pray for your speedy recovery. Jess and I are looking forward to taking you out for a Mexican lunch.

Laura Helenius

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I was so excited when I read Shae's posting today that I was rejoicing and crying at the same time while calling for Larry to come see the good news. Go girl, you are making progress and that's what we've been looking for.

I have you on my mind constantly and it's really hard not to come up there everyday to see you. We're so looking forward to seeing you on your feet again.

I asked our Sunday school class and one of our associate ministers to specifically pray for you to be removed successfully from the ventilator. Our associate minister (you would love her as I do) said she couldn't wait to meet you. She says she needs a real face to go with the image she is praying for.

We look forward to seeing you sometime this week. In the meantime, know that you continue to be in our thoughts and prayers as are Jerry and your wonderful kids.

We love you all,  
Alys & Larry

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Gene and I have had Kay in our thoughts and prayers since we learned of her illness. Thank you Shae for letting everyone know exactly what's going on. I cannot believe all of this has happened so suddenly. From your latest update things appear very positive and I know you are comforted with each day's improving news. Please know that the Gene Beards continue to pray for Kay and all of the Jerry Beards.

All our love,  
Shannon and Gene

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I was so excited that you are doing better that I yelled upstairs and was screaming to tell Norman when I read Shae's update. I know this is so very hard for you, Kay, but you can do this. You raised three children that turned out wonderful and I know that was not an easy job. So you are used to hard work. We are still praying for you and your beautiful family and know that God is hearing everyone's prayers. I know in my heart that you are on the road to recovery. Love you, Kay.

Gaethea

### Monday, January 24, 2011

It is great news that you continue to improve and will be good as new soon. Keep fighting and know that you are in the prayers of many people. When you feel like it, we need to make a trip to Gulf Shores. Hope to see you soon.

Pat and Mike Guin

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You can't imagine how we look forward to Shae's updates on you. Larry asks me numerous times each day, "Have you heard anything yet from Shae?" It's really good hearing all the good news over the last couple of days. Maybe by the time we get there this week you will be rid of the ventilator. But whether you are completely off of it or not, it's encouraging to know that you are making progress.

Please ask Shae if there is anything we can do for you. As soon as he feels like he can leave you for a while, we want to take Jerry out to eat. But we know he's probably like us; he wants to be there with you every minute he can.

Again, we're so excited about your continued progress. We'll see you soon.

Our love and prayers,  
Alys & Larry Wilson

\---

So very glad to hear the wonderful news today. I thought I would never find you to send you a note. We are continuing to remember you in all our prayer request at Green Valley. You are a wonderful person, and I hate it so very much for you to be so sick, but I know God is watching over you and He will see you through, and you will improve every day. I just know it. Shae, thank you for allowing us to keep in touch with your mother. Kay, we will do anything to help in anyway we can.

Love you,  
Mary McCain

\---

Kay, we are so grateful to Shae for keeping us updated. We look for these updates all day long and are so relieved when we get one and the news is good. I hope tomorrow you get off the ventilator and that will help you feel better. You hang in there and keep working, I just know we will be talking like old times soon. Know we are praying for you and sending you and the family all our strength and love. You have a lot of people praying for you and in time everything will be back to normal.

Love you bunches!  
Janet Jones

### Tuesday, January 25, 2011

Kay you will never know how glad I am that you getting better. My Sunday school class has had you on our prayer list. Shae has really done a great job keeping us informed about you. Thank you Shae. We missed you at Bunco at my house, but it sounds like you'll be back with us very soon. Get well!!!

Donna Ross

\---

Shae's most recent post made my day! I'm so thankful that you are getting better. Can't wait to come for a visit when you're up to it, which hopefully will be very soon. You and your family will continue to be in my thoughts and prayers. A special thank you goes to Shae for updating the journal frequently!

Love,  
Gina Brannon

\---

The news just keeps getting better. You keep fighting and we will keep praying. It won't be too long before you are home and things are back to normal.

Pat and Mike Guin

\---

Kay & Family: What wonderful news we have received today. I know you will be up and around before too long. We will continue to pray and I know God will continue to work his miracles. We miss you and hope to see you soon.

Love you,  
Mary McCain

\---

Kay, so sorry they didn't take out the ventilator today. I know you must have been so disappointed. Please know that you are getting excellent care and your doctors know what's best. I'm so pleased with your progress thus far. I know it's easier for me to be objective than you because I'm not lying in that bed. I am so sorry for you but I am so pleased that you are moving slowly. Everything that I've read and heard says it's slow but the healing happens and it has already started. Please try and be patient because you definitely have God on your side. I am confident of all the beautiful prayers offered up in your honor. He can't help to respond. I hope you know how special you are to not only me, but everyone. Not only are you special, but your family is amazing. You should be so proud of their enormous love for you. You are so blessed.

I love you  
Nancy

\---

Again we are so thankful for Shae's updates. We know you're anxious to get rid of the ventilator, but I'm so glad to hear your doctor is being cautious making sure that your lungs are strong enough to give you the oxygen you need. A few more days may mean that the trach won't be needed. That is my prayer right now. Take lots of deep breaths to get those lungs filled. You can do this and we're all pulling for you.

Love you,  
Alys & Larry

\---

Hi, Kay! Just want you to know that we check on and pray for you EVERYDAY! Shae is absolutely wonderful keeping us abreast of your progress. Thanks so much, Shae! We love you!!

Gene & Shannon

\---

We got back from Atlanta today and wanted to check in with you...

From Shae's updates, it sounds like you are turning the corner and great things are starting to happen! It sounds like you are improving everyday, and we are so thankful! I, like so many others, believe in the power of prayer, and we are "storming Heaven" with ours for you.

We enjoyed our visit with the little ones, but am worn out from having so much fun playing (ha). It 's hard work being a playmate for a 2 and 3 year old!! I am looking forward to seeing you when you are feeling up to visitors...You are in my thoughts and prayers everyday.

Thanks Shae for your daily updates. You are the best!!!

Love,  
Gail

### Wednesday, January 26, 2011

May God watch over you as you work through your illness. Our prayers are with you and your family. You have a wonderful daughter in Shae and son-in-law, Bill.

Jim Berutich

\---

Woohooo! So happy Kay!

Laura Helenius

\---

Wow! We are so glad you got the vent tube out. We've been praying it would happen soon. Now, my question is this: What are you going to do first--eat or tell Jerry you love him? Your family has been so great. We are thinking of you and praying for you for a speedy recovery from all this. Every day brings you closer to getting back home and doing the things you love. Take care and tell everyone "Hello" for us. We love you all.

David and Janet

\---

What great news. I know you feel so good just to be able to hear those words "vent out", and what a good sign that is. I know you will continue to get stronger each day. Kay, your family is so precious, and I know you know that Shae has been such an inspiration to keep all of us posted on your progress, what a blessing.

Love you,  
Mary McCain

\---

Hi Shae. I just found out Monday about your mom. I was in total shock!! I'm praying every day for her and I know she will get through this. Tell her I'm thinking about her and wish for a speedy recovery!! I will try my best to come visit her!!

Charley Beard

\---

The news I read today about the ventilator coming out made me so happy. So many people have been praying for this day to come ............ praise the Lord!!!!!!!! He has been so good, Kay, and I know He hears all of our prayers and will continue to make you stronger and stronger everyday. Can't wait till we can talk and e-mail again. This is awake up call for all of us, and that is to cherish every moment we have together. We all have a lot of catching up to do and cannot wait until you're home and well again. I look so forward to reading Shae's update every day and appreciate your family being so thoughtful to take this time. We are all praying for you and your family daily. Love u, Miss u.

Gaethea

\---

Kay, I am thinking of you and have been keeping up with your progress each day. I am so happy you are off the ventilator. That shows you are starting to heal. Hang in there, we are all praying for your speedy recovery. I told Jill and Brad that it was nice to have them home for so long, but wished it had been under better circumstances. Brooklyn is a little angel to have around. I miss them already.

Hope to see you soon......

Jackie

### Thursday, January 27, 2011

Kay, hoping you had another good day. I know each day will continue to be better than the day before. You are always in our thoughts and prayers.

Love you,  
Mary McCain

\---

Hey My Friend! So glad to hear you are doing so much better. I wrote you a note last night and somehow the computer "ate" it...

Anyway, I don't know WHERE it went when I got ready to send it; it was gone!! (ha) You know I am not very good with this stuff; I have to get my grandchildren to help me figure things out, and at 1:00 AM no one was around (ha).

Know you are looking forward to Ashley coming in Friday. Tell her hello for me.

Keep up the good work!! I am so thankful you are doing so much better. See you soon.

Love,  
Gail

### Friday, January 28, 2011

Way to go Kay! Keep up all that hard work. I am so glad you are talking and that they got you up to sit on the side of the bed. I don't know how you have been able to stay in that bed so long; we all know that they are so uncomfortable. Glad Ashley is going to be with you for a while; I know you will enjoy her company. You hang in there and keep working with all the OT and PT and you will get better in no time. I am sending my love, prayers and strength to you and your sweet family. Love you.

Janet

\---

Kay, what good news. This is a wonderful means of staying in touch, and Shae is doing a wonderful job of keeping us informed. I know each day will continue to be better, and we will continue to pray, and I know God will continue to heal you.

Love you.  
Mary McCain

\---

I was so excited to read that you are actually sitting up and can even speak. I know that must feel wonderful to you. Before you know it, they will put you in your own room. You are in my thoughts all day and I look so forward to reading your progress. Keep up the good work. We all will continue to lift you up in prayer daily. Love you, Kay.

Gaethea

\---

Hi Kay, just read the news about you sitting up on the side of the bed. GREAT!!!!! I bet that felt so good to get off your back. I'm so excited about your progress. Every day is going to be a little better and you will be a little stronger. You Go Girl! Keep up the good work, enjoy Ashley and the rest or your family this weekend and I will continue to pray for you. Love you and see you soon.

Nancy

\---

Great news on your continued improvement. Hopefully it will not be too long before you are home and things are back to normal. You all are in our thoughts and prayers.

Pat and Mike Guin

### Saturday, January 29, 2011

WOW! The latest update is fabulous!! Thanks again, Shae!! Prayers are still being sent everyday from Woodridge, Alabama.

Kay, you are obviously on the mend. You go, girl!!

All our love,  
Shannon & Gene

\---

Kay: HAPPY good weekend to you. It is going to be a beautiful day, for more than one reason, your progress is amazing, and I know you will enjoy your family this weekend, and Ashley being here is an added bonus. I know it is good just to be able to sit up on the side of the bed, you know you are getting much better when you can do this. I miss you and hope to be able to see you soon. As always you are in my thoughts and prayers each day.

Love you,  
Mary McCain

\---

I can't begin to tell you how great it is to hear that you are sitting up, and talking. I continue to shed tears of joy. You know I'm an emotional freak anyhow. Larry says he is not surprised at all that you are having back and leg pain. Who wouldn't after lying flat of your back for three weeks? The more you are able to sit up and move your legs the better you're going to feel. Glad they gave you a pain patch, though. You've been through enough for a lifetime. Glad they are testing to be sure, but hopefully it is just inactivity.

We know that you still have lots of therapy to go through, but you've done so well, you're going to be working hard and continually getting better and stronger.

Jerry has been a "champ". And Ashley, Shae and Brad have been right there all the way. I really believe what they say about having a strong support team helps patients in their recovery. Your "team" has been great!

We love you all and will continue to prayer for your complete recovery,

Alys & Larry

### Sunday, January 30, 2011

Allison let me know about your illness and gave me this website so I could tell you ~ you're in my thoughts and prayers. I hope each day you will be stronger and home soon.

Love,  
Susan (Dent) Winters

\---

Hi Kay, I am so thrilled you are sitting up on the side of the bed and talking!! We prayed for you again today in SS. I know each day will be better and better!!

Love,  
Deana

\---

Hi Kay, so glad to hear that you are progressing right along. Sorry about the back and leg pain. I'm glad for the patch and hopefully that will relieve the discomfort. I imagine the lack of use has probably been part of the pain. I know you need one of Amy's boot camps! HA!HA! Thought that might put a smile on your face. That would for sure kill us both. I hear baseball is about to start, so you need to keep on working hard because we need our cheering squad and I need my friend to sit with. I know you will miss Shae the next few days but I'm sure Ashley will fill her shoes nicely. Thanks to you Jerry for keeping us posted while Shae is away. Kay I'm still praying for you everyday and miss you more than you know. Keep up the good work.

Love you  
Nancy

### Monday, January 31, 2011

Hey Kay! Hope this Monday finds you doing a lot better. I hope you don't mind that I put a prayer request on my Facebook page. Many of my friends have said a prayer for you, so I'm sure you will be doing better every day. Looking forward to seeing you again as soon as we can get up there. Tell Jerry and the family "Hello" for us, and know that everyone is sending their best wishes for a speedy recovery.

Love you.  
David

\---

Good Morning Kay. Hope you are having a good day. My Internet has been down since Sat. afternoon, just got it up and running again. I know you will miss Shae this week, but I know Ashley will be there for you just like Shae, I know you know what a wonderful family you have. I hope everything goes good today, and each day better. Miss you and all will continue to pray.

Love you,  
Mary McCain

\---

Jerry,

It"s great that Kay continues to improve. Hopefully it will not be too long before she is completely recovered from her illness. You are all in our thoughts and prayers.

Pat and Mike Guin

\---

Jerry you did a great job updating us on Kay. I just wanted to write and tell you I am thinking about you and hope your legs get to moving soon. I know it must feel better to be able to talk and sit up some. Kay, keep up the hard work; it will pay off down the road. I am glad Ashley is able to spend time there with you. Hang in there.

Love you,  
Janet Jones

### Tuesday, February 1, 2011

I am so glad that Jerry is continuing to update all of us on your progress - that is sooooo much more than John would/could do - he has someone "print out" his emails for him at work even, he is so NOT computer savvy - nor does he want to be! -- anyway, we are all grateful to Shae for doing this and for Jerry to continue with it while she is away. I know that you are proud of all your family and how they have all been there with and for you! It sounds as if you are getting a little better each and every day and we are ALL excited and relieved about this! You and all your family are in my thoughts and prayers every day, and I also know that - with prayer - any and everything is and always will be possible! --- Keep up the good work, as I know that, even with all the prayers going out for you, that it is you, the doctors, and your family that still have to work hard to make it happen!--- So we will all keep praying, and you just get well!!! Love you!

Cathy Brown

\---

The news we received from Jerry was so good to hear. I hope you have had a good day today. Everyone at Green Valley Baptist continue to ask about you and how you are coming along. Everyone has uplifted you in their prayers, and we all know God is watching over you. Just continue to get well. We love and miss you.

Mary McCain

\---

Janell and I would like to quickly wish you continued health and blessings in these unfortunate times. Having family and friends to lean on is such a powerful thing; we offer our prayers and support for your continued strength and spirit in getting better. May God bless you and your family.

Sincerely,  
Janell & Neal Campbell

### Wednesday, February 2, 2011

Jerry, thank you for the update, and if there is anything I can do to help, please do not hesitate to let me know. I know Kay is improving every day, we will continue to keep Kay in our prayers. Kay you are one of the "bestest" people I know, and you would never hesitate to help others, so please just let me know if I can help you.

Love you,  
Mary McCain

\---

Shae and Bill -

Our prayers are with your mom, you both, and your family. May God watch over you all.

Jim Berutich

\---

Kay, I'm glad to hear you are getting better each day. I pray for your speedy recovery. If there is anything I can do for you or Jerry, please have Jerry call me. J

Jackie

\---

Thanks Jerry for the update. Kay, I'm so happy that you are improving. It's amazing what the power of prayers can do. You are continually getting better each day and before long they are going to be kicking you out of that place. I know you won't be complaining.

Keep up the good work and the physical therapy. I know it's tough but so are you.

Everyone loves you and continues to pray for you and your family. I know you are looking forward to all the kids coming home for the weekend. You will make them proud.

Hope to see you soon.

Love.  
Nancy

\---

Hi Kay. I was so glad to hear that you are doing better and have finally been moved out of ICU - what a good sign. Now they will start your physical therapy and you will begin to progress faster. I know this is hard work but remember, you are a pro at that. It is so thoughtful of Jerry to continue updating us while Shae is away. We appreciate so much your family taking the time to let all your family and friends know how you are doing. What a wonderful family you have. We will continue to pray for you daily and we all know that HE is listening. Love you, Kay, and hope to see you soon.

Gaethea Messina

### Thursday, February 3, 2011

Hope you feel even better today. We wish for you each day that you feel better. I am just a phone call away and please tell Jerry if there is anything I can do, please let me know. We will continue ALL our prayers.

Love you,  
Mary McCain

### Saturday, February 5, 2011

It was such good news to hear you are in a room and out of ICU; this means you are doing sooo much better, my friend!!

Know you are glad to have Shae and Brad back here...Jerry and all your children have been so wonderful!

Hope to see you next week; will check to see how you are feeling before I come. Have a good weekend with your family.

Love,  
Gail

\---

Kay, I am so glad you doing so much better. I know you are glad to be in a room so you can see your family more. Just remember that things are getting better everyday. I read about you everyday and pray things will continue to improve. We love you!

Donna Ross

\---

Shae, glad you're back!

Kay, it's so great to hear that you have moved into a regular room. I know that you and your family are glad to spend more time together. Keep moving those toes and feet. That is great progress. The stronger they get, the sooner you will be able to get up. Keep pushing. You are stronger than you know.

I know you were glad to see Brad this weekend. I imagine Ashley is stranded in Texas because of the weather. I know she will be glad when that clears.

Kay, you are still in my thoughts and prayers daily. I want you all better (as the kids would say). If we have learned anything from this life experience, it's that we must be patient and that God hears us and is with us. You can do this!

Hope to see you soon!

Love you,  
Nancy

\---

It is great that you continue to improve daily. You are in our thoughts and prayers. Keep your positive attitude and know you will be home soon. Remember we have got to go to Gulf Shores when you feel up for the trip.

Pat and Mike Guin

\---

So thrilled to hear of your improvement!! Praying for you daily. If you, Jerry or the kids need anything, please call me. I will be so happy to do anything I can do!

Love,  
Deana

\---

So very good to hear - what an improvement. We never know from one day to the next what life has in store for us, but one thing for sure we are strong women, and we just have to keep fighting. I know you are a strong person in everything you under take, and Kay you will beat this and be back with all of us before long. We will continue our prayer chain always.

Love you,  
Mary McCain

### Tuesday, February 8, 2011

Shae: I know it is hard to get everything caught up, but you are appreciated more than you will ever know. Thank you so very much for keeping us informed on your mom's daily progress.

Kay: Glad to hear some of the good things, and sorry you are still having the doubled vision, and pain. I know it seems like you have been in the hospital forever, but with all our prayers and the good Lord's help you will be in rehab before too long, and continue to get a lot better. We are praying everyday for you and your family.

Love you,  
Mary McCain

\---

Shae, thanks for the update. Kay, we enjoyed our visit Saturday and could really see a difference. I hope you get to go to Lakeshore, but I am sure you will get great care wherever you go. I am sorry that the pain has not gone away and that you can't yet play with your new iPad, but I am sure it won't be too long. Know that you are in our thoughts and prayers everyday and everyone from here sends all their love. Hope to see you again soon.

Love,  
Janet Jones

\---

I am so glad that you are ready for Lakeshore. I remember when Mom was there after she broke her hip. They had her up and going, walking, and climbing steps in no time. Nancy and I could not believe the progress. Keep up the hard work (that you already know all about) and you will progress as fast as Mom. You and your family are in our prayers daily and that is what is keeping you guys so very strong. You have a beautiful family that loves you dearly and so many friends that love you.

Keep up the good work and I will see you soon. Love u.

Thank you, Shae, for keeping us informed of your Mom's daily progress. I know this takes time, however, we all appreciate your thoughtfulness.

Gaethea

\---

Kay, I am so glad you are improving and going to Lakeshore!! Just a change of scenery should feel better!!! You are a determined person and you can lick this! Know that we are all thinking of you and praying for you often!

Julie Hendrick

\---

It is great news to hear that you are going to LakeShore tomorrow. A cousin of mine was there last fall and she couldn't say enough nice things about the people and the facility. I'm sure they will be working you very hard, but it won't be as difficult as what you've already been through. I think it will be encouraging to see yourself making progress - almost daily. For sure you will no longer be bored!

Bet it feels better having the feeding tube out of your nose and throat. You'll probably be able to swallow better. Please keep trying to eat and drink. We so want you to get stronger and that will help.

You are in our thoughts and prayers daily. Larry said that I better tell you that that means him too. We both love you and Jerry and the kids and can't wait until things get back to the normal Beard family life.

See you soon. Until then we send our love and blessings,

Alys & Larry

\---

Kay, so happy to hear you are going to Lake Shore! I know that is what Jerry was rooting for. I will have to come and find you there and check the place out. I imagine it must be a little hard going to some place new, but it is one step closer to you coming home. Thanks Shae for keeping us updated. We are keeping you in our thoughts and prayers.

Laura Helenius

\---

Kay, what great news that you will be moving to Lakeshore. We know all the family is so glad to get that news! We know you will be working hard, just remember how much everyone loves you and is rooting for you to get better. We know getting the feeding tube has to feel better. We are thinking about you and praying for you to have strength and stamina to get through all these days. You can do it.

Love you,  
Janet and David

### Wednesday, February 9, 2011

So glad to hear that you will be going to Lakeshore! You will REALLY like it there! I had a friend that went there, so I went to visit her, and everything is SO nice, and they really keep you busy there too! It's almost like being at a Spa/Resort place because the facility is so nice and they do cater to you and help you a lot! Please thank Shae, Jerry, and your whole family for keeping all of us informed of your progress, and please keep remembering that you have a lot of people out here thinking about you and praying for you daily!! We all want you to just get better and get home soon because we all miss you. We are having Bunco at my house tonight (if we all don't get snowed in that is) and you will be greatly missed! Can't wait until you are back with us! Take care and keep working hard! We will all continue to keep you in our prayers! Love to you and to all your family!

Cathy Brown

\---

Great news!!!! So very happy you are going to Lakeshore; of course that means you are improving every day. Kay, we will be praying for you, and I know God is working his miracles on you. You always think of others, and try to help when we are down, so helping you and your family in any way I can will definitely be a pleasure. All your friends are here for you, and will help at any time. Get stronger and we love you.

Mary McCain

\---

It's great that you will be in rehab at Lakeshore. This means you are well on your way to recovery from your illness. You continue to be in our thoughts and prayers.

Pat and Mike Guin

\---

Yeah! I am so glad you are now at Lakeshore. I'm sure it was an ordeal and very tiring for you Kay, but it will be worth it. Now your work has just begun but you know you want it and can do it. They are the best.

I'm going to Bunco tonight at Cathy Brown's house. The weather is not supposed to get bad until a little later. Can you believe snow again! We are discussing Lecie's shower for Sunday. It will be at Green Valley Church in a really nice room from 2 til 4. We will miss you but I bet you can make it next time. I'll keep you posted.

If the weather is OK I will try to come by tomorrow. I know the visiting hours are different and I'm sure you'll be tired, but I won't over stay. I hear you want Krystal. I'll bring you some but only if you be sure it is OK. If you think of something else you want, ask Shae or Jerry to let me know.

Hope you have a good night in the Lakeshore Hotel. We will miss you tonight.

Love you,  
Nancy

### Thursday, February 10, 2011

Thinking of you and hoping that you are all settled in at Lakeshore. I am sure they have you already working hard on your rehab. The nurses and staff are wonderful there but Mom was a little irritated at them sometimes because they worked her so hard. I am sure they are doing the same to you but the results will be great, Kay. We all miss you so very much and cannot wait till you are with us all once again.

Everyone is still praying for you and your lovely family and are waiting for your recovery. I am so sorry you have to go through this, Kay, but we all know you can do this. Be tough and I will be seeing you soon. Love u.

Gaethea

\---

I have been thinking about you all day today, and also stopping to say a special prayer for you. I hope your day today wasn't too hard for you. Everyone that has ever been to the facility at Lakeshore says it is a great place for treatment. I am so very happy you are progressing as you are. We will continue all our prayers for you, and we ALL miss you very much.

Love you,  
Mary McCain

### Saturday, February 12, 2011

Kay, sorry I haven't been to see you but I have the crud. It's really good I didn't come Thursday. I hope you are doing well. Are they totally wearing you out? I hope you like it there because they can do wonderful things for you. I don't know if you've seen Caroline Hudson there yet cause I know she does therapy there. She is Susan's daughter. I hope she gets to work with you. She is great!

Tomorrow is Lecie's baby shower. I'm not sure if I will make it. I don't want to spread the germs. I'll let you know how it turns out, but you will be greatly missed.

Keep working hard and I will see you soon. You are still in my thoughts and prayers daily.

Love you, Nancy

\---

Keep working on your rehab and you will be back to normal in no time. You are in our thoughts and prayers.

Pat and Mike Guin

\---

I just learned of your illness tonight on Facebook. I'm so sorry you have had such pain and sickness. Jimmy and I will be praying for a full and fast recovery. We will continue to read the CaringBridge updates. We are very familiar with this website as we have a great nephew who has SMA and has a CB website. May God give you rest and healing so you can soon be back to normal.

Love,  
Ann Avery Brown

\---

It was so good to see you the other day at LakeShore. Believe me we could see the improvement in your condition. I know it is too slow for you (and all of us) but you definitely are making improvements.

I'm even encouraged by the increase in leg pain. Maybe that means that you are gaining more feeling and as they work to get those muscles going again maybe there will be less and less pain.

It's also good to hear that you are eating more. I hope you will continue trying - maybe even things you've never eaten before \- to improve your swallowing. We just want you to get stronger.

I hope you are feeling strengthened by the prayers of all of us out here who love and care for you. With all our love, we know that Jesus loves and cares for you more than all of us.

I know you're giving all you can to overcome this and I do believe you will. We'll see you again one day this week.

Love and blessings,  
Alys

\---

Sounds like they are working you very hard, and that is a good thing; that just means you will recover a lot sooner. We missed you at Bunco Wed. night just not the same without you. Tomorrow is Lecie's baby shower, and we will miss you so very much. Nancy is not feeling well at all; I hate it she had so much to do this weekend, and now she feels so bad. Evan has the flu; Krista had to take him to the doctor today, but he was feeling better tonight. Seems like a lot of that kind of sickness is going around, and we certainly don't want you to get anything like that. Keep working hard and as always you are in our prayers.

Love you,  
Mary McCain

\---

It was so good to see you this week; every time I see you, you are looking better, so I know you are getting better!!

Nancy and I were on the phone until midnight Thursday trying to plan the rehearsal for her wedding this weekend...we didn't think Fr. Fallon was going to be there, so we had to figure out what to do....it worked out fine, as he did show up, but it is hard to be the priest (if he doesn't come) and try to get all the wedding party to do what they are suppose to do.

We miss our late night conversations with you....most people are in bed that time of night except you, me and Nancy!!! (ha)

I had to help with a funeral luncheon this morning and saw Nancy before I left...she really felt bad, so was going to get Carol Fisher to finish the wedding tonight. Thank goodness we have five directors so we can help each other out!!

Hope you are doing well at Lakeshore; I hear such great things about it and know you will make good progress there. I hope to get down to see you soon, but know they work you hard all day and you are probably worn out by afternoon.

Take care, my friend... and Happy Valentine's Day!

Love,  
Gail

### Sunday, February 13, 2011

I just found out on FB about your illness. I'm so sorry. You will be on my prayer list and in my thoughts, my dear friend. If there is anything that I can do please let me know. We have to get you well so that you and Jerry can visit us this summer. What fun it would be to have another visit. Bill and I so much enjoyed seeing you and Jerry in October. Please keep us posted on your progress.

Bill and I send our love to you, Jerry, and you family.

Love,  
Sandra Moore

\---

It was good to see you the other night. I know this is painfully slow for you, but I was so happy to see your continued progress!

Just wanted to tell you the girls arrived safely and I am in heaven! Lorelei is such a good baby and has such a sweet disposition. Woit and Jen just left for the race. He is so happy to be running with her.

You're always in my thoughts and prayers,  
Laura Helenius

\---

Max and I did not know about your condition until I read it on Facebook today. We will certainly keep you in our prayers along with your wonderful care-giving family. It sounds like you are getting so much better and that is the answer to everyone's prayers. What a battle you have had to endure but the end is insight. I know people that have had this condition but are perfectly fine now after their re-hab. We will be keeping up with your progress. Hang Tough!!! You have always been a fighter and I know you will win the complete battle very soon. We will check in with you again soon.

Much Love and concern,  
Diane and Max Wilson

### Monday, February 14, 2011

Good Morning Kay. I am thinking of you and Jerry and praying for both of you. From the journal I have read, it sounds like you are really doing great for someone who was so sick in the beginning.

I have a friend who had G-B and she is doing great, so hang tough, after all you are a Beard, and we Beards don't give up.

With much love and prayer,  
Joan Beard

\---

Happy Valentine's Day. All is well here, except I forget how exhausting babies can be. I did not realize how out of shape I was either! (Well I had a little idea) Anyway, I am definitely tired by the end of the day after hauling Lorelei around. (All 22 lbs of her) Tomorrow I think Jessica and I will take her to a park and put her on a baby swing. She has never been on one yet.

Thinking of you,  
Laura Helenius

\---

Just found out tonight that you are at Lakeshore. I talked to Jerry and he gave me an update. I know that Lakeshore is a great place and have heard so many people that rate it #1. I have you on my prayer list and you will be in my thoughts each day also.  
I apologize for not e-mailing you after Kathy's funeral. I was thinking about you the other day and was going to e-mail you. Of course, I had no idea that you had been in the hospital.

I am familiar with this site and can keep tract of your progress.

Ann Beard Cardin

\---

Hey! Just wanted to wish you a Happy Valentine's Day! I hope you are doing better and getting stronger every day. I know it has to be tough doing all the exercises, but you will get through it and be out in no time. You are past the worst part of this, so hang in and know we are thinking of and praying for you. When you bust out of there and want to go, we want to take you and Jerry to the Bright Star or McDonald's --- your choice. Tell everyone there we said "Hello". We'll be back to see you soon.

All our love,  
David and Janet

### Tuesday, February 15, 2011

I want you to know how much I am praying for you. I wish you all the very best. I know GOD will take care of you. I am so sorry you are dealing with this... I cannot imagine. Try to stay strong and be positive. You are in my thoughts and prayers daily.

I Love You,  
Weldon Beard

### Wednesday, February 16, 2011

Hope all is going much better for you. The weather has been so beautiful the last few days; hope you have been able to see outside. Lecie's baby shower went real well. We missed you, and so many people asked how you were doing, and that they were praying for you and your family too. Kay, work real hard and maybe you will be able to come home before too long. Our prayers are with you each and every day, and we love you.

Mary McCain

\---

So glad to hear that you are doing better. I plan to come visit you soon and being you are eating food now, I will be sure to bring you something yummy. Kay, you continue to work hard and you will be home before you know it. Nancy said she had a very nice chat with you Sunday night and that you sounded great. I know they are working you hard because Mother would be worn out after they worked her out all day. But this is what they are there for - to trail your arms and legs to get going again. Then you can hang with your BUNCO group again.

Miss all your e-mails and know that we are ALL still praying for you and your lovely family and if there is anything you need or want, we are a phone call away. Thanks Shae for keeping us updated. We appreciate this more than you will ever know.

Gaethea

\---

Kay, how's it going? I know you are excited about your iPad. I don't think I would even know how to work one, let alone play games on them. I know the boys are really loving playing with you. I know you are loving it too.

Sounds like they are giving you a workout. That's great because the more they do I'm sure the stronger you'll get. I still have a bit of a cold, so I can't come by yet but as soon as I know I'm better I will come to see you. Be thinking of what I can bring you to eat. I know how much you love the food there. HA!HA!

You keep working hard and I'll keep praying hard. Miss you and love you.

Nancy

### Thursday, February 17, 2011

Good Morning Kay! The news just gets better and better. I'm so pleased with all the different things you're eating. Keep that up and hopefully you'll be rid of that feeding tube soon.

I couldn't have received a better Valentine present than to hear your voice on the phone. Larry and I both were so excited.

We had hoped to come to see you yesterday, but Larry spent about two hours in the dentist chair. He didn't feel like going to church and I ran late. We hope to be able to come by today. If not, we will soon.

You are making great progress and before long you will have this thing behind you. Continue to feel God giving you strength through the prayers of all your friends and family.

Call on him daily to be present with you and provide the strength to do what you need to do that very day.

Continuing to pray for you and send our love to you, Jerry and the rest of your precious family,  
Alys & Larry

\---

This is from your computer illiterate friend who would rather call you than respond to your email. I've missed you and you have been in my thoughts and prayers every day. Get well and come home so we can baby you and fix (or buy) you some great meals. I'm so sorry you've had to go through this but you are such a very strong person, you will beat it.

Love,  
Lynda Brannon

\---

Kay, I am so glad to hear of your great progress. I know just being able to eat some of your favorite foods will lift your spirits. Sounds like rehab is getting you going and that is great. Remember we are thinking of you and praying this ordeal will end soon. I hope to call you in the future to have one of our talks.

Love and miss you,  
Janet

\---

I wrote a note last week but I think I deleted it. I have thought of you a lot since talking with Jerry. I think it was the day that you went to Lakeshore that I talked with him. That is a great facility and from reading what one of your children wrote it sounds like you are making progress.

I broke my ankle in January so have not been to Birmingham lately but as soon as I am able I will be over to see my daughter. Do you like to have visitors?

You are in my prayers.  
Carol Savage

\---

Kay, it was great to see that you are doing so much better. I have used the lift, and I know what a trip it is to use. I can only imagine the ride to the wheelchair. I am sure you will soon be up and walking to the chair and then running up and down the halls to get out.

You and Jerry are in my prayers. God is the Great Physician, and He holds us all in His hands.

Love,  
Joan Beard

\---

This is great news, and Shae we appreciate you so very much keeping us updated. Kay, I know our prayers are being answered you are proof of that. Keep up the good work, and I know you will be going home before you know it.

Love & miss you,  
Mary McCain

\---

Sounds like you are definitely making progress. I know that God will be with you on your journey to recovery. You are still in my thoughts and prayers each day.

Ann Beard Cardin

### Saturday, February 19, 2011

Thinking of you, as always. Thought I would just let you know that! Hope your days are going well. I have not talked to Jerry recently, but I can report that he has been busy getting those gardens ready for spring! I wonder if I can get him to come over and do mine next ;)

Woit and Jennifer ran the race last weekend. They had fun, but Woit has paid the price with a sore hip and knee! Each day he says it is getting better though. Jessica and I are having a great time with Lorelei. I will hate it when she leaves. Take care, the little one is calling.

Laura Helenius

### Wednesday, February 23, 2011

I was reading the update and I am so thrilled you are improving!! This is great news. I hope you feel all the prayers going out for you each day! When you feel up to it, I would love to come to see you. It does get old watching TV (in my case for 3 months I watched HGTV!) Now, all I want to do is redecorate!!

Love you and I can't wait for the next report on your improvement!

Deana

### Thursday, February 24, 2011

It's great that your recovery is going so well. There are a lot of people that are praying for your quick and complete recovery. Please let us know if there is anything we can do.

Pat and Mike Guin

\---

It's been a long couple of days. I was really glad to see Shae and all Keith's friends showing such love and support. Linda and Fred both said how pleased they were to see such a loving tribute of all the young people. It really touched their hearts. The reception afterwards was really nice at Green Valley Church. There was so much home cooked food and friends and family. Under the circumstances, I think they did very well and were so appreciative. We missed you, but you were included.

Sounds like you are really coming along. Hope to see you soon. I hear you may be coming home soon. I know you can't wait and I can't blame you, but be sure you get all the therapy you can there. I hear Jerry is going to be really working you out when you get home. Better rest while you can. HA!HA!

I'll be talking to you soon and come by to see you. Remember you are still in my thoughts, prayers, and heart.

Nancy

\---

I'm keeping up with you through CaringBridge and your daughter's wonderful messages.

It's so good to hear how well you are doing. I think of you a great deal and keep you, Jerry, and your family in my prayers.

Sending my love, thoughts, and prayers to you my dear friend.

Sandra Moore

### Friday, February 25, 2011

I've thought about you every day even though I haven't written lately. I saw Shae the other night at the funeral home, and it thrilled my heart it was like you walking in. I am glad to hear all the progress being made; that is wonderful. I can't wait until we can all be together again, and just have a good time. Lynda and Fred are doing as well as they can, the out pouring of friends have been wonderful, and on everything we all did for them I always put your name and Jerry's name on the list. I would love to come and visit you, and bring you anything you would like, and you know I will be more than happy to help when you come home. I wish continued speed of recovery for you. Love you, and of course you ARE always in our prayers.

Mary McCain

\---

Kay, I am so glad to hear of your progress. We are all still praying for you and your whole family. These sound like tough decisions ahead. I pray that when the time comes next week, you will know the best path to take. These are the times we are so grateful we have such wonderful families who are there with love and support!! Yours surely have been with you every inch of the way!! Sending you our love and prayers.

Julie, Brice, and Jack

### Saturday, February 26, 2011

Kay, I am so proud of you and all your hard work. I know you are disappointed about not being able to go home yet, but in 10 days no telling what all you will be able to do. I have been thinking of you every day and know you are getting better. Hang in there, I can't wait to come visit you. Take care and tell Jerry and family hello from us.

Love you!  
Janet and David

### Sunday, February 27, 2011

I just wanted you to know that you have been in my thoughts and prayers. I love you and can't wait for you to come home. Stay strong and do what they tell you. As much as you and I hate exercise, I know this is very hard but you'll get through it. I admire your determination so much.

Love you,  
Lynda Brannon

### Monday, February 28, 2011

Kay, I don't know what I just did but I lost my entire message to you. I was very surprised to hear from Shae that you are not going home and that you are staying another 10 days. I can imagine how disappointed you are but you have improved so well with the extensive therapy that you have had there that I can't help thinking that this is a good thing. This is really going to help Jerry in the long run because I'm sure you will be so much stronger. Hang in there. YOU CAN DO IT!!!!

I have had a very busy weekend. Neal and Janell came home and of course I had to cook. They all came and we had a great time. I am really tired now. You can remember that. They all asked about you and send you their love and prayers.

I'll come by and see you this week some time. Be thinking of what I can bring you to eat. I'll try and call first. Take care and work really hard this week.

Love you,  
Nancy

### Tuesday, March 1, 2011

When you pass through the waters, Kay, I will be there with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. Isaiah 43:2

When I read this I thought of your journey. It was like God saying when you go through the journey, Kay, I will be there with you; when you experience the side effects of Gillian Barre', they will not break your spirit. When you feel like you can't go on, you can because I am protecting you. Kay, your faith and positive attitude along with God's help and everyone's prayers and encouragement will get you through this.

I am sharing this from the CaringBridge journal a friend of mine's daughter wrote to her today. I thought it fit you and your situation so well, I wanted to share it with you. My prayer today is that you will feel God's presence and the strength He offers you. And remember we are all out here lifting you in prayer throughout each and every day.

Love,  
Alys & Larry

### Wednesday, March 2, 2011

Kay, I am so glad you are doing SO much better. I pray everyday for you and I believe prayers are being answered. We love you Kay. Shae has been great keeping us informed. Thank you Shae.

Donna Ross

\---

Kay, you continue to be in our prayers. So happy to hear about your great progress. We send our love to you and Jerry.

Love,  
Sandra Moore

\---

We're so excited to hear that you have taken several steps. We knew you would get there soon. Just keep working hard and ask our Lord for strength each day.

In the morning the LORD will hear you, Kay. Lay your requests before Him and wait in expectation. Psalm 5:3

We are all "laying requests for you" each day and I do believe He hears our prayers for your healing. Hope you get the news that you can go ahead and have your kidney surgery very soon and get that behind you.

See you soon and sending our love to you and Jerry,  
Alys & Larry Wilson

\---

Good Morning Kay. I am so glad to hear that you are up walking. We do take so much for granted and our health is one of them. I think of you often, and you are in my prayers both morning and night. I am a firm believer in prayer.

Tanner (the grandson) is going to be playing baseball this spring; he is so smart, or maybe that is just me. :-)

I miss Jim, but especially now that Tanner is growing so fast.  
Take care and I will be looking on CB for updates..tell the girls thank you for updating us. I would call Jerry, but I know he is so busy.

Love,  
Joan Beard

\---

Great news, I know taking the steps makes you feel a lot better. Keep up the good work. Miss you and continuing pray for you.

Love you,  
Mary McCain

### Monday, March 7, 2011

Kay, I am so sorry to learn of your medical problems and, quite frankly, very much ashamed that I have not been in touch recently; that it is such a total surprise. I will stay in touch now with you and Jerry and I will be thinking and praying for both of you. I hope Jerry won't be so stubborn as not to keep me informed of any needs either of you may have in the near or distant future.

Freddie Langdon

\---

Just talked to Nancy and she said you are coming home on Friday. That is great news. We will MISS you so very much at Bunco (at my house) Wed. night; wish like everything that you could be with all of us, and I know you will be again. We all just have to continue our prayers for you, and we definitely will.

Miss you and love you,  
Mary McCain

\---

Hi Kay! Good to hear you are getting better. Spend a lot of time in prayer and meditation. I invoke small children to pray for me. Believe God give children all the best for there prayers. In return, please put me on your pray list. I had heart trouble 21 yrs. COPD and now my larynx is paralyzed. I had radiation 2009, but the tests show no active cancer. I will have a test on the 15th and get some options.

Gerald Homan

### Tuesday, March 8, 2011

Kay, I did not know about your health situation until Wanda Richardson posted on Facebook about your CaringBridge website...and I want you to know that I am praying for you, Jerry, and all of your children with all my heart!!!! I know God can do wonders and it sounds like you are on the road to being totally healed. I read the journal about how the disease progressed with you, and how also God has progressed with your healing...I will keep checking on the CaringBridge journal about your progress...my heart and prayers are with you...

Love you,  
Gloria Reed

### Wednesday, March 9, 2011

Sorry I have not been in touch. My dad has been in the hospital three weeks and I have been not had any extra time to keep in touch.  
The last thing I read was that you had taken five steps. That is wonderful.

You continue to be in my prayers.

Carol Savage

\---

Talked with Jerry and he brought me up to speed on your condition. I am glad to know that you are making some progress and I will be following this progress daily. Good luck with your appointment Thursday and I hope you get well enough to go home soon.

Freddie Langdon

### Thursday, March 10, 2011

Wonderful!!!! So glad to hear this good news. Take care and stay warm and know you are in our prayers.

Love,  
Joan Beard

\---

I am soooo glad you are getting to go home!! I guess you feel like you have been gone from it forever!! We missed you at Bunco and all said a prayer that you would be with us soon. It's great that you are taking a few steps. Know that we all miss you and love you lots!!

Julie Hendrick

### Friday, March 11, 2011

Am so thrilled you are getting to go home!!! You have done soooo  
well and we are really proud of how far you have come with your rehab.  
Will talk to you when we get back from N.C. Have a wonderful time with your family next week...remember, you are the Princess and everyone is to wait on you! (ha) Just don't try to do too much while you are home; we want you to be rested and strong for your surgery.

Love,  
Gail

\---

That is good news! Not only are you going home but you'll have all your family there. We never stop thinking and praying about you, Kay. Keep hanging in there and you'll be back at Bunco in no time. You've won over half the battle.

Love ya,  
Lynda Brannon

\---

Great news. We hope to see you all also.

Jim Berutich

\---

What great news!!! I cannot imagine how happy you must be.

We need to have a race with our walkers. I have a brace on my ankle now so do not have to use the walker. I was not too swift when I was using it.

This web site is great for keeping in touch.

Take care,  
Carol Savage

\---

Kay, I am so happy to hear you're doing better and will make it home Sat. I know you will enjoy being home with ALL your family this weekend. I am so happy for both you and Jerry.

Freddie Langdon

\---

I know that you are so ready to get home. Keep getting better and will come for a visit when you feel up for company. This is great news!

Pat and Mike Guin

\---

Great news to hear that you are going home!

Ann Beard Cardin

### Wednesday, March 16, 2011

Hope this finds you doing well and enjoying your visit with all your brood. I'll continue to keep you in my thoughts and prayers.

Freddie Langdon

### Saturday, March 19, 2011

Hey Kay.....don't have your phone # to call you, but did talk with Trae the other day to check on you....so happy you are home now...my girl, you have had a time....hope it is a continuous uphill recovery....love and thoughts are with you...

Gloria Reed

### Sunday, March 20, 2011

Kay, I'm so glad you were able to go home. It puts new meaning into "home sweet home". You are always in my thoughts and prayers. You've walked a journey in the last few months and are almost where you need to be. I admire your spirit, your faith and determination. Keep it up.

Love,  
Lynda Brannon

\---

It was so good to see you yesterday. It's obvious that being home is good for you. Larry and I were so encouraged with the progress you've made. I know it must seem too slow for you but you're going in the right direction. Keep working and keep your faith because God has been with you throughout this ordeal and He will see you through.

All your prayer warriors are out here praying for you and we'll continue to do so until you are back to yourself. We're just anxious for you to get the surgery behind you and then you can really work on getting stronger.

Know that we love you and Jerry, but God loves you more than all of us.

Alys & Larry Wilson

### Monday, March 21, 2011

Sounds like everything is going good, and I am so very glad to hear it. Brook, Madison and Darby came to visit this past week while they were on spring break. I have been out of pocket (so to speak), and haven't talked to you like I should have, but I hope to see you real soon. My thought and prayers are always with you and Jerry.

Love you,  
Mary McCain

### Thursday, March 24, 2011

Kay "Bird" Jones.... This message is from the class clown! Something told me to go to the THS Facebook and read what Wanda had posted. It was about you and your situation and BOY am I glad I did for I had heard nothing of this matter what so ever.

At first I thought maybe you were doing like the rest of us. Coming apart like a $3.00 suitcase until I started reading your daughter's journal. After getting into her writings, I could see a lot of Kay Jones. She writes with feeling and a lot of love that even I could comprehend. Nothing like MacBeth.... You know, Double Double Toil and Trouble! Well, anyway, after I finished reading all of the journal updates I was glad to read where you are steadily getting better each day. 'Can't keep a good gal down.' Not long anyway. Everybody knows that!

Won't keep you long, dear, but I did want you to know that you and the family are in my thoughts and prayers. I hate to hit you with a sad note, but I know you and Jerry would like to know. Sad news out of San Antone. John Ben Bomar passed away last night. He called 911 last Saturday with pneumonia and severe dehydration and yesterday had a massive stroke and was unable to overcome it. A classmate and dear friend, he will be missed by many.

NOW!! It is time for you to get better - get back on your feet and show your pretty face to the public once again. We are all thinking of you and Jerry with thoughts and prayers. Get well soon, pretty lady. The 55th will be here before you know it... Love to you and Jerry both.....

A friend and classmate,   
Don Miles

\---

I am so sorry to learn of Kay's medical challenges. During my 3 years of "undiagnosed illness", I truly learned of the power of prayer and how God uses the medical profession and meds for healing. I have always believed in prayer and believe more than ever in it now. Kay, continue to fight hard and place your life in His hands. Jerry, your role of support is vital - my husband was a huge source of strength for our family. I will try to follow your progress through this source. Remember - we are the "mighty, mighty Black Bears" (smile) so hang tough.

Blessings and Love,  
Marilyn Tubb Myrick

### Thursday, April 28, 2011

Great news! Hope the rest goes well.

Gerald Homan

\---

Kay, I'm still thinking about you, praying for you, and wishing for a very speedy recovery for you. Also sending love to my very special friend and your family. I want to call you when you feel better and feel like chatting.

Love to you,  
Sandra Moore

\---

So glad to hear everything went OK with your surgery and with a good outlook for the future. Will stay in touch and hope that the future has only good news. Our thoughts and prayers are with you, Jerry and all.

Freddie Langdon

### Friday, April 29, 2011

So very pleased that you have survived your surgery so well. You go girl! They can't get us Tuscaloosa Girls down easily. Get back into therapy; been there and done that and it really is helpful.

Sending my love and blessings.

Marilyn Tubb Myrick

\---

Kay-bird.... Just received word you have had your surgery and doing "GREAT".... What a relief! Seems like the whole '60 THS class has had you in thoughts and prayers. Just goes to show you the Lord does hear and answers prayers. Can't keep a good gal down!!! We love you dear and are hoping for a speedy recovery. God bless and get well soon. Somebody has to take care of Jerry. You know how he is.... LOL!!!

Don Miles

### Saturday, April 30, 2011

Kay, we are so glad to hear your good news. Hope you are recovering nicely. Thinking of you.

Much love,  
Diane and Max Wilson

\---

Even in times that seem too great to overcome, He is with us. Great news Kay.

Freddie Langdon

\---

What wonderful news. I have been out of town and so very sorry I did not check in with you before your surgery. I cannot say where the time goes; I have always had you in my thoughts and prayers, and this is just terrific news, and prayers with continue.

Love you,  
Mary McCain

### Sunday, May 1, 2011

What good news!!! I am soooo happy for you and your family. Now EVERYONE can start to heal and we can all say prayers of gratitude!! God is indeed good and you are now whole again!!

Much love and many prayers!!

Julie Hendrick

### Sunday, June 26, 2011

All who knew you were pulling for you. To have a friend you have to be a friend and you are a true friend. God bless you, Jerry and your family.

Freddie Langdon

\---

It is such a delight to hear from you and to learn of the wonderful progress you have made. I know some of your feelings as I have spent the last year and a half recovering from 2 1/2 previous years of severe illness that was undiagnosable. I praise God for my miracle and the Dr. who finally came up with another treatment that is working this time. Also, I am so very grateful for the caring and support I received from Tucker, our children, friends and church. They were all awesome. I now try to give back to all of them and others who have now been placed in my path. I am currently trying to raise funds and supplies for the opening of Alberts Elementary School that was destroyed in the tornado. Keep up your courage and stamina. I think of you and Jerry often.

Lovingly,  
Marilyn Tubb Myrick

# Final thoughts

Well, I've read every bit of this several times now, and it's time to put this book together for you. I think it's finally ready.

I almost cried each time I read it. It was so painful to relive what you went through. When all of this started happening, I had no idea what was wrong with you. So many thoughts went through my head. I could not help thinking about losing you at times – the most painful feeling in the world. What long-term impact would this have on your life? What was wrong with my mama?

Not only did you make it, but you recovered 100%. You made a FULL recovery when I thought your health was failing. Given your condition, I never expected you to have some strange syndrome that I've never heard of – one where you could make a full recovery! I did not think this was even an option. God is absolutely amazing – what a miracle! I am so thankful!

Toward the end, I also found myself tearing up with tears of joy. The last part of this book is the guestbook, and it is abundantly clear how many wonderful people you have in your life. So many people were praying for you, caring about you, supporting you, and loving you. You are truly blessed with amazing friends and family!

I am so thankful to God for you and the recovery He allowed you to make. I am so thankful for how wonderful you are. I am so thankful that you are my mother. I love you so much more than you will ever know! I cannot say this enough! You are incredible! I love you, always!

