Wahana Keluarga Cerebral Palsy (WKCP) is a parent’s community who have a child with Cerebral Palsy. Since 2012, WKCP have been contributed to improve ability, capability, knowledge and self-sufficient of people with Cerebral Palsy and their families
This video does not reflect the views of The European Union. This video is produced by WKCP with technical support from Humanity & Inclusion. With financial support from the European Union
My name is Tin Trisnowati. I have 2 children
My second child name is Rapasaha Maulana Praja Hidayat. He is 9 years old
His nickname is Lana and he has Cerebral Palsy
Lana has not been in School. According to his therapist
Lana is not recommended to go to school because Lana has not been able to sit for a long time
We do realize that Lana is already school’s age
Our fear as a parent if Lana is going to school
will the educators understand his condition?
We sincerely hope government attention to children with conditions like Lana
It is still fresh in my mind when there was an integrated health service for toddler in community
that was held by government
one of the health cadres spoke
“this boy shouldn’t be here, he is big, he should stop using this services”
I can’t reply anything at that time, other than smiling
But inside, it is really hurt my feelings
I do hope that government is able to educate their health cadres in community
to understand more deeply about disability
I took Lana for a walk around the neighbourhood
But I still find difficulties when there are lots of speed bumps
In some place, the speed bump is very sharp-edged or continues speed bump
I don’t know if government have a standard on how to build this speed bump in populated areas
Currently, Lana is having his therapy at Jogja Hospital.
It is a public hospital run by government
To be able to go to Jogja Hospital,
once a month I have to find referral to community health centre (puskesmas)
Then I need to bring the referral to paediatrics to get another referral
that I have to bring the next day to the medical rehabilitation
Afterward, we need to wait for the schedule from the therapist
Now there is new procedure from Jogja hospital
for the patient who has been registered
They could register for check-up or therapy via “whatsapp”
Prior to this new procedure,
even though we have been registered as a patient
we still need to queue manually
So when we get number 200, we still need to wait until our turn like a new patient
But with this new procedure things go faster for registered patient
So far at Jogja hospital
the place is child friendly, with air conditioner
and therapist also nice and kind
But the therapy equipment for occupational therapy need to be upgrade
We wish the government will provide the upgrade facilities
for handling children with Cerebral Palsy (CP)
and could get it closer to community
such as to provide it at community health centre (puskesmas)
When we meet with other parents at Wahana Keluarga Cerebral Palsy (WKCP)
we could learn and support each other,
 so we don’t feel lonely anymore
its feel like our spirit is pump up again
As parents of children with Cerebral Palsy
we hope government is willing to discuss with us
to actualize right on target and best services
so city of Jogja will truly inclusive not only just a slogan
As parents of children with Cerebral Palsy, we hope government is willing to discuss with us
to actualize right on target and best services
so city of Jogja will truly inclusive not only just a slogan
I am Sunartini Hapsara, Paediatric Consultant, Ph.D.,
Professor  in Medical Science (especially) Children health
at Faculty of Public Health and Nursing Gadjah Mada University
Cerebral Palsy is
a disorder of brain function or disorder of brain development
that is not progressive which cause movement and posture disorder
So its brain development disorder that is not progressive
If at a time when small baby infected with brain inflammation
then development of the brain disrupted or not developed
it can be Cerebral Palsy in future
But it can be also detected when baby just born
to find out if it could be Cerebral Palsy in future
if there was brain development disorder since within the womb
So Cerebral Palsy could happen in the womb
or in parturition or after birth
Therefore, health facilities such as  government
insurance (BPJS) for this children (Cerebral Palsy)
should not be limited
Our hope that people with disabilities is not to be pitied
but they need to get an opportunity
to develop them self
So they could be independent as they are
they must be have a potency
and that is their potential which need to be supported
Our hope that people with disabilities is not to be pitied
but they need to get an opportunity to develop them self. So they could be independent as they are, they must be have potency and that is their potential which need to be supported
My name is Wahyu Ambarwati Utari
I work as a government employee at one of Social Ministry Institution
named Centre for Social Rehabilitation of Physical Disability
Professor Doktor Soeharso Surakarta
Basically Cerebral Palsy is a movement disorder
an abnormalities in body movement and it’s permanent
Because it is permanent, so exercise is a must
Children with Cerebral Palsy
their therapy requirement according to their level of disability
Exercise is a lifelong for people with Cerebral Palsy
At the beginning of development
therapy aim is to maximize their functioning motor ability
until they could be independent children according to their level of disability
If they have been independence,
the aim of therapy is for maintenance of the muscles
So the muscles will be able to work
and move properly and maximum.
Education is every citizen’s rights including people with Cerebral Palsy
as stated in Constitution number 8 of 2016
that people with disability have rights to get better education
Education is not only for academic
but also for their skills
socialize in community
socialize with their peers, etc
So education needs to have benefits for their existence in society
To improve the ability of their child, parents need to prepare extra budget
because children or people with Cerebral Palsy
need the exercise for the rest of their life
As parents they also need to spend special time for their child
But on the other side, as a human being
parents also need their personal time
Therefore, it needs a community of parents who has children with Cerebral Palsy
or community for people with Cerebral Palsy
to have a role to improve the knowledge of parents
or people with Cerebral Palsy
Government need to support to improve
the capability of people with Cerebral Palsy
such as giving the best services
services starting from the very first step of health care
which is in community health centre (PUSKESMAS)
Government need to support to improve the capability of people with Cerebral Palsy,
such as giving the best services starting from the very first step of health care,
which is in community health centre (PUSKESMAS)
My name Isti Mukharomah
I am 33 years old
I live alone because both of my parents have passed away
I am travelling alone everywhere
But thanks God, there are public bus, Trans Jogja
I ride Trans Jogja for almost 5 years.
The obstacles every time I ride Trans Jogja are
when the bus stop but it is far from the bus station
The distance between bus and the station is around 30-40 cm, sometime is farther
which makes me difficult to step over
My worst experience was
when going down from the bus, but I haven’t step over,
the bus is already running
But there is a fun experience as well when I ride Trans Jogja
There is a cooperative bus driver assistant who is willing to talk with me
Also when there is a passenger who needs a place to seat
the bus driver assistant will help to find the seat
Because lack of awareness for disable seat or priority seat
for older people is still happen, although the facility is already prepared
even for the passengger and the employee of the bus
I hope government will improve the infrastructure
for the public bus and bus station so it will be more accessible
Other than physical improvement, I hope there is also an educational training
for the driver, driver assistant, staffs
to be more polite, understand about disability
and know how to serve people with disability
Despite our limitation
we hope to be involved in every development process
to achieve an inclusivility in Jogja
Despite our limitation, we hope to be involved in every development process
to achieve inclusivility in Jogja
My full name is Nining Suryatiningsih
Every day I work at CIQAL foundation
For public facilities, some are accessible
but there are many more that is not accessible
There are stores, small groceries that are not accessible
The one which is accessible is big groceries, big shopping centre
which have elevator than I could go there,
but if they only support for escalator
then it is not accessible for wheelchair
It is very difficult to find accessible government buildings.
So when government invite me to involve in a meeting
but the meeting is on the second floor
 and there is no elevator or accessible ramp,
it put me in the difficult situation to be able to attend
Actually, there is a Public work Minister Regulation number 30 of 2006
concerning about building facilities (not accessible but feasible)
which appropriate for all citizens
There is also standardization for a safe building that comfortable for everyone.
The latest Public work Minister Regulation is number 14 of 2017
concerning convenience of building requirements
If the road can be accessible by wheelchair users independently
I think it will be safe for all, elderly, women and children
In making inclined plane like ramp,
it has to reach its function which is convenience for everyone
compare to stairs
Ramp has its own standard
which is the most accessible is 1:20
if below that, then the wheelchair users will need help
When making the ramp, there is also a space named "bordes"
"Bordes" is a space to rest
So builder need to know the minimum width and maximum slope
that need by the wheelchair users before they build ramp and its bordes
We are invited when government announce
the planning of pedestrian walk in Malioboro street
But when they design and execute the design
we are not invited
We are invited again when the project is finish
and government ask us to try the pedestrian walk
The one that is inappropriate is guiding block for blind people
They use grey colour
which cannot be used by blind people or people with low vision
The guiding block colour should be yellow
because if the colour is yellow
people with low vision still could see the light
So in fact, everything could be inclusive
could be accessible, if the person
has perspective of inclusive and accessible
Inclusive is not only physical but also the person and how to behave
So the person is very important
when they know how to interact with people with disability
the rules regulation and physical facilities will follow
Inclusive is not only physical but also the person and how to behave.
When they know how to interact with people with disability,
the rules regulation and physical facilities will follow
I am Ida Ayu Putu Sudiartini
i am from Bali
Since there is online taxi, I ride online taxi, not public bus, Trans Jogja
When I used to ride Trans Jogja
as a wheelchair user the distance
when the bus stop with the station is far, it makes me afraid
It used to be the bus driver is willing to stop close
to the station but now they don’t want to.
Actually riding Trans Jogja is fun
because the bus travel around before it reach our destination
So I really hope
there is a portable ramp which to be placed between the bus and the station
so it will solve the problem when the bus stop far from the station
Socialization to Trans Jogja drivers are very important
so they will be more patient to people with disability
until people with disability already seat or place in comfortable position
Also the place for wheelchair is supposedly not to be used for goods
Toilet is difficult for wheelchair users
because lots of public toilet is not accessible
Now, in Yogyakarta there is underground accessible toilet on Malioboro street
and I will try it to know it is truly accessible or not
Because the accessible public toilet is only provided in big shopping centre
We wish when government build ramp, they will carefully design it
Such as in Yogyakarta city hall
the ramp design is reduced incline rises, it rises slowly
It needs more spaces
but if the objective so the wheelchair user could use it
independently and that is the way to do it.
Standard ramp needs more spaces
but if the objective so the wheelchair users will be able to use it independently
and that is the way to do it.
Thanks to Wahana Keluarga Cerebral Palsy Community
and All parities that we cannot mention one by one
