>> YOU DESCRIBED IT PERFECTLY.
>> Courtney: AND ALSO, YOU
>> Courtney: AND ALSO, YOU
GUYS SERIOUSLY, THANK YOU FOR
GUYS SERIOUSLY, THANK YOU FOR
SHARING THIS JOURNEY BECAUSE WE
SHARING THIS JOURNEY BECAUSE WE
LOOK AT BOTH OF YOU, AND
LOOK AT BOTH OF YOU, AND
INCREDIBLE ATHLETE, YOU HAVE AN
INCREDIBLE ATHLETE, YOU HAVE AN
INCREDIBLE CAREER, SIDELINE
INCREDIBLE CAREER, SIDELINE
REPORTER, AND WE SEE ALL YOUR
REPORTER, AND WE SEE ALL YOUR
POSTS ON SOCIAL MEDIA AND IT’S
POSTS ON SOCIAL MEDIA AND IT’S
LIKE MY SON WANTS TO BE LIKE YOU
LIKE MY SON WANTS TO BE LIKE YOU
WHEN HE GROWS UP.
WHEN HE GROWS UP.
AND WHAT GIRL DOESN’T WANT TO BE
AND WHAT GIRL DOESN’T WANT TO BE
LIKE YOU WHEN THEY GROW UP AND
LIKE YOU WHEN THEY GROW UP AND
YOU GUYS HAVE THIS INCREDIBLE
YOU GUYS HAVE THIS INCREDIBLE
CAREER, INCREDIBLE MARRIAGE.
CAREER, INCREDIBLE MARRIAGE.
BUT YOU’RE ALSO GOING THROUGH
BUT YOU’RE ALSO GOING THROUGH
SOMETHING SO TRAUMATIZING AND
SOMETHING SO TRAUMATIZING AND
SPIRITUAL.
SPIRITUAL.
YOU BOTH WANT TO HAVE KIDS.
YOU BOTH WANT TO HAVE KIDS.
YOU’RE ALSO DEALING WITH YOUR
YOU’RE ALSO DEALING WITH YOUR
MOM.
MOM.
LET’S TALK ABOUT THIS, BECAUSE
LET’S TALK ABOUT THIS, BECAUSE
YOU’RE REALLY EMPOWERING THIS
YOU’RE REALLY EMPOWERING THIS
DISEASE HEAD-ON.
DISEASE HEAD-ON.
>> WE’RE TRYING, IT’S BEEN A
>> WE’RE TRYING, IT’S BEEN A
LONG JOURNEY, WE DIDN’T KNOW HOW
LONG JOURNEY, WE DIDN’T KNOW HOW
TO START AND WE DIDN’T KNOW
TO START AND WE DIDN’T KNOW
WHERE IT WOULD TAKE US BUT WE
WHERE IT WOULD TAKE US BUT WE
KNEW WE WANTED TO DO SOMETHING,
KNEW WE WANTED TO DO SOMETHING,
SOMETHING TO HELP AND WE
SOMETHING TO HELP AND WE
COULDN’T FIND A WAY AND WE
COULDN’T FIND A WAY AND WE
EVENTUALLY SETTLED IN ON THE IVF
EVENTUALLY SETTLED IN ON THE IVF
SIDE OF THINGS AND THERE’S
SIDE OF THINGS AND THERE’S
INTERESTING CONVERSATIONS ON
INTERESTING CONVERSATIONS ON
BOTH SIDES OF IT, BUT LIVING
BOTH SIDES OF IT, BUT LIVING
HERE IN THE UNITED STATES, LIKE
HERE IN THE UNITED STATES, LIKE
EVERYTHING IS ABOUT OPTIONS.
EVERYTHING IS ABOUT OPTIONS.
I KNOW THAT BELIEFS OF SOME
I KNOW THAT BELIEFS OF SOME
PEOPLE AREN’T WITH THIS, AND
PEOPLE AREN’T WITH THIS, AND
THAT’S COMPLETELY FINE.
THAT’S COMPLETELY FINE.
BUT WE JUST WANT OPTIONS OUT
BUT WE JUST WANT OPTIONS OUT
THERE TO GET RID OF THIS THING,
THERE TO GET RID OF THIS THING,
BECAUSE IT’S FANTASTIC.
BECAUSE IT’S FANTASTIC.
JUST WATCHING PEOPLE GO THROUGH
JUST WATCHING PEOPLE GO THROUGH
IT AND THEN OBVIOUSLY THE COST
IT AND THEN OBVIOUSLY THE COST
AFFECTED WITH IT.
AFFECTED WITH IT.
YOU’RE LOOKING AROUND 30 TO
YOU’RE LOOKING AROUND 30 TO
$40,000 OF STRAIGHT CASH TO DO
$40,000 OF STRAIGHT CASH TO DO
ONE OF THESE PROCEDURES.
ONE OF THESE PROCEDURES.
AND THERE’S NOT A LOT OF PEOPLE
AND THERE’S NOT A LOT OF PEOPLE
THAT HAVE THAT JUST LAYING
THAT HAVE THAT JUST LAYING
AROUND.
AROUND.
SO NOT ONLY US GOING THROUGH IT
SO NOT ONLY US GOING THROUGH IT
AND POSTING EVERYTHING AND
AND POSTING EVERYTHING AND
EXPERIENCING WHAT IT’S LIKE TO
EXPERIENCING WHAT IT’S LIKE TO
GO THROUGH IT BUT NOW TRYING TO
GO THROUGH IT BUT NOW TRYING TO
FIND FAMILIES THAT WANT
FIND FAMILIES THAT WANT
CHILDREN, DON’T WANT THIS
CHILDREN, DON’T WANT THIS
DISEASE IN THEIR FAMILY AND
DISEASE IN THEIR FAMILY AND
WE’RE RAISING FUNDS TO HELP
WE’RE RAISING FUNDS TO HELP
THOSE FAMILIES.
THOSE FAMILIES.
THERE’S NO REASON THAT THEY
THERE’S NO REASON THAT THEY
SHOULD HAVE TO HAVE A CHILD WITH
SHOULD HAVE TO HAVE A CHILD WITH
THIS DISEASE.
THIS DISEASE.
>> Derrick: ESSENTIALLY, JOE,
>> Derrick: ESSENTIALLY, JOE,
BECAUSE YOUR MOM HAS
BECAUSE YOUR MOM HAS
HUNTINGTON’S DISEASE AND YOUR
HUNTINGTON’S DISEASE AND YOUR
GRANDMA ALSO HAD IT, IT IS IN
GRANDMA ALSO HAD IT, IT IS IN
YOUR DNA SO THE LIKELIHOOD THAT
YOUR DNA SO THE LIKELIHOOD THAT
YOU WOULD PASS IT ON TO A CHILD
YOU WOULD PASS IT ON TO A CHILD
IS 50%.
IS 50%.
>> 50/50.
>> 50/50.
>> Derrick: BUT THROUGH IVF,
>> Derrick: BUT THROUGH IVF,
YOU ARE ABLE TO ACTUALLY ISOLATE
YOU ARE ABLE TO ACTUALLY ISOLATE
AND FERTILIZE AN EMBRYO ENSURING
AND FERTILIZE AN EMBRYO ENSURING
THAT THAT EMBRYO DOES NOT CARRY
THAT THAT EMBRYO DOES NOT CARRY
THIS DISEASE.
THIS DISEASE.
>> YES.
>> YES.
SO THEY’RE NOT NECESSARILY
SO THEY’RE NOT NECESSARILY
GENETICALLY MODIFYING AN EMBRYO.
GENETICALLY MODIFYING AN EMBRYO.
THEY’RE JUST LOOKING AT THE
THEY’RE JUST LOOKING AT THE
EMBRYOS YOU CREATE TESTING THEM
EMBRYOS YOU CREATE TESTING THEM
FOR HUNTINGTON’S DISEASE AND
FOR HUNTINGTON’S DISEASE AND
CHOOSING THE EMBRYOS THAT TEST
CHOOSING THE EMBRYOS THAT TEST
NEGATIVE FOR HUNTINGTON’S
NEGATIVE FOR HUNTINGTON’S
DISEASE.
DISEASE.
SO IT’S A LONG JOURNEY BECAUSE
SO IT’S A LONG JOURNEY BECAUSE
ANYONE THAT’S BEEN THROUGH IN
ANYONE THAT’S BEEN THROUGH IN
VITRO KNOWS IT’S PRETTY MUCH A
VITRO KNOWS IT’S PRETTY MUCH A
GAME.
GAME.
FIRST IT’S YOUR EGG AND SURGERY
FIRST IT’S YOUR EGG AND SURGERY
AND HALF COMES OUT, HALF WORK
AND HALF COMES OUT, HALF WORK
OUT, AND ON TOP OF THAT WE’RE
OUT, AND ON TOP OF THAT WE’RE
ADDING A LAYER OF GENETIC
ADDING A LAYER OF GENETIC
TESTING.
TESTING.
IT’S A LONG JOURNEY, THERE’S A
IT’S A LONG JOURNEY, THERE’S A
LOT OF PHONE CALLS WITH BIG NEWS
LOT OF PHONE CALLS WITH BIG NEWS
OVER THE MONTH PERIOD OF TIME.
OVER THE MONTH PERIOD OF TIME.
WE WENT THROUGH THIS PERSONALLY
WE WENT THROUGH THIS PERSONALLY
AND REALIZED HOW EMOTIONAL IT
AND REALIZED HOW EMOTIONAL IT
WAS AND HOW MANY TIMES WE WALKED
WAS AND HOW MANY TIMES WE WALKED
INTO A DOCTOR’S LOBBY AND SAID
INTO A DOCTOR’S LOBBY AND SAID
THAT WILL BE EIGHT GRAND RIGHT
THAT WILL BE EIGHT GRAND RIGHT
IN FRONT OF THE EVERYONE AND
IN FRONT OF THE EVERYONE AND
THANK GOODNESS I CAN LAY A
THANK GOODNESS I CAN LAY A
CREDIT CARD DOWN AND WE’RE
CREDIT CARD DOWN AND WE’RE
FORTUNATE FINANCIALLY BUT I
FORTUNATE FINANCIALLY BUT I
DON’T KNOW MANY PEOPLE THAT
DON’T KNOW MANY PEOPLE THAT
COULD DO THAT TO KNOW YOU
COULD DO THAT TO KNOW YOU
COULDN’T CURE YOUR CHILD OF A
COULDN’T CURE YOUR CHILD OF A
DISEASE BECAUSE OF FINANCES.
DISEASE BECAUSE OF FINANCES.
SO EVERY PENNY WE RAISE IS GOING
SO EVERY PENNY WE RAISE IS GOING
TO HELP FAMILIES HAVE THIS DONE.
TO HELP FAMILIES HAVE THIS DONE.
>> Courtney: IT’S SO
>> Courtney: IT’S SO
INCREDIBLE.
INCREDIBLE.
IT GIVES PEOPLE HOPE.
IT GIVES PEOPLE HOPE.
JOE, YOUR
JOE, YOUR
MOM WAS DIAGNOSED AT WHAT AGE?
MOM WAS DIAGNOSED AT WHAT AGE?
>> I THINK SHE WAS DIAGNOSED AT
>> I THINK SHE WAS DIAGNOSED AT
56.
56.
>> Courtney: THE SYMPTOMS
>> Courtney: THE SYMPTOMS
REALLY AMASS THREE DIFFERENT
REALLY AMASS THREE DIFFERENT
DISEASE.
DISEASE.
PARKINSON’S, ALZHEIMER’S AND
PARKINSON’S, ALZHEIMER’S AND
ALS.
ALS.
>> YEAH, VERY CLOSE.
>> YEAH, VERY CLOSE.
FIRST THING I NOTICED WITH MY
FIRST THING I NOTICED WITH MY
MOM, SHE COULDN’T SET SOMETHING
MOM, SHE COULDN’T SET SOMETHING
DONE SOFTLY OR IF YOU CLOSE THE
DONE SOFTLY OR IF YOU CLOSE THE
DOOR, IT WOULD SLAM.
DOOR, IT WOULD SLAM.
THE MOTOR MOVEMENTS, THERE’S NO
THE MOTOR MOVEMENTS, THERE’S NO
SMOOTHNESS.
SMOOTHNESS.
IT’S JERKY.
IT’S JERKY.
THEY CALL IT CORREA WITH THE
THEY CALL IT CORREA WITH THE
MOVEMENT DISORDER.
MOVEMENT DISORDER.
BUT SHE’S DOING ALL RIGHT NOW.
BUT SHE’S DOING ALL RIGHT NOW.
IT’S GETTING A LITTLE TOUGHER.
IT’S GETTING A LITTLE TOUGHER.
NOW SHE’S STARTING, I JUST HEARD
NOW SHE’S STARTING, I JUST HEARD
NOW SHE’S GOING MORE TOWARDS
NOW SHE’S GOING MORE TOWARDS
MILKSHAKES, AND I THINK IT’S
MILKSHAKES, AND I THINK IT’S
KIND OF BECAUSE SHE’S HAVING
KIND OF BECAUSE SHE’S HAVING
TROUBLE FEEDING HERSELF KIND OF
TROUBLE FEEDING HERSELF KIND OF
THE MOTOR MOVEMENTS.
THE MOTOR MOVEMENTS.
>> Courtney: YOU CAN EVEN SEE
>> Courtney: YOU CAN EVEN SEE
IT IN THE VIDEO.
IT IN THE VIDEO.
>> IT’S HARD TOO BECAUSE SINCE
>> IT’S HARD TOO BECAUSE SINCE
THERE’S NOT A CURE, THEY’RE JUST
THERE’S NOT A CURE, THEY’RE JUST
TRYING TO BALANCE MEDICINE.
TRYING TO BALANCE MEDICINE.
UP AND DOWN WITH A SEDATION PILL
UP AND DOWN WITH A SEDATION PILL
BUT THEY WANT TO GIVE YOU
BUT THEY WANT TO GIVE YOU
ENERGY.
ENERGY.
THAT’S A REALLY TOUGH PART TOO.
THAT’S A REALLY TOUGH PART TOO.
YOU’RE SMILING LIKE THIS
YOU’RE SMILING LIKE THIS
CONTROLLING IT AND ALL OF A
CONTROLLING IT AND ALL OF A
SUDDEN YOU’RE HAVING AN ATTACK.
SUDDEN YOU’RE HAVING AN ATTACK.
>> IT’S A ROLLER COASTER RIDE.
>> IT’S A ROLLER COASTER RIDE.
AND ANYBODY THAT HAS THIS IN
AND ANYBODY THAT HAS THIS IN
THEIR FAMILY OR ALS OR
THEIR FAMILY OR ALS OR
PARKINSON’S OR ANYTHING ELSE
PARKINSON’S OR ANYTHING ELSE
THAT’S DEVASTATING, THAT’S THE
THAT’S DEVASTATING, THAT’S THE
COOL THING ABOUT IVF, AND PGD,
COOL THING ABOUT IVF, AND PGD,
IT’S NOT ONLY YES, WE’RE
IT’S NOT ONLY YES, WE’RE
STARTING WITH HUNTINGTON’S BUT
STARTING WITH HUNTINGTON’S BUT
IF WE GET THE RIGHT THINGS
IF WE GET THE RIGHT THINGS
GOING, THERE ARE SO MANY OTHER
GOING, THERE ARE SO MANY OTHER
DISEASES THAT THIS THING CAN
DISEASES THAT THIS THING CAN
CURE.
CURE.
WE’RE NOT STARTING HERE BECAUSE
WE’RE NOT STARTING HERE BECAUSE
THIS TOUCHES OUR HEART.
THIS TOUCHES OUR HEART.
BUT I MEAN, IT’S KIND OF LIKE A
BUT I MEAN, IT’S KIND OF LIKE A
CALL TO ACTION ACROSS THE
CALL TO ACTION ACROSS THE
COUNTRY, THE WORLD.
COUNTRY, THE WORLD.
IF WE GET THE RIGHT FUNDS, IF WE
IF WE GET THE RIGHT FUNDS, IF WE
GET EVERYTHING GOING IN PLACE,
GET EVERYTHING GOING IN PLACE,
HOW WE SEE IT, I WANT IT TO BE
HOW WE SEE IT, I WANT IT TO BE
BIGGER THAN HUNTINGTON’S.
BIGGER THAN HUNTINGTON’S.
I WANT IT TO CURE OTHER DISEASE
I WANT IT TO CURE OTHER DISEASE
HAS THE AFFECT FAMILIES AND
HAS THE AFFECT FAMILIES AND
WE’VE ALREADY HAD CONVERSATIONS
WE’VE ALREADY HAD CONVERSATIONS
WITH PEOPLE.
WITH PEOPLE.
>> PEOPLE WANT TO JUMP IN ON
>> PEOPLE WANT TO JUMP IN ON
THIS.
THIS.
I REMEMBER WHEN WE MET WITH THE
I REMEMBER WHEN WE MET WITH THE
CLEVELAND CLINIC, THEY’RE LIKE
CLEVELAND CLINIC, THEY’RE LIKE
WHY IN THE WORLD, BECAUSE
WHY IN THE WORLD, BECAUSE
THEY’VE BEEN SO GREAT AND
THEY’VE BEEN SO GREAT AND
THEY’RE GIVING US DISCOUNTS TO
THEY’RE GIVING US DISCOUNTS TO
GO THROUGH THE CLINIC, HOUSTON
GO THROUGH THE CLINIC, HOUSTON
FERTILITY IS DONATING THREE
FERTILITY IS DONATING THREE
FAMILIES PER YEAR TOWARDS THE
FAMILIES PER YEAR TOWARDS THE
FOUNDATION BUT THEY WERE
FOUNDATION BUT THEY WERE
REALIZING WHY ARE OUR FERTILITY
REALIZING WHY ARE OUR FERTILITY
AND NEUROLOGY DEPARTMENTS NOT
AND NEUROLOGY DEPARTMENTS NOT
LINKED UP WHEN SOMEONE IS
LINKED UP WHEN SOMEONE IS
DIAGNOSED, WHY AREN’T THEY GIVEN
DIAGNOSED, WHY AREN’T THEY GIVEN
THIS OPTION RIGHT AWAY.
THIS OPTION RIGHT AWAY.
LOTS OF FUTURE CONVERSATION TO
LOTS OF FUTURE CONVERSATION TO
BE HAD BUT THIS CAN BE APPLIED
BE HAD BUT THIS CAN BE APPLIED
TO EVERY DOMINANT DISEASE.
TO EVERY DOMINANT DISEASE.
>> Derrick: WHAT’S INCREDIBLE
>> Derrick: WHAT’S INCREDIBLE
AS ALLIE MENTIONED, THIS IS NOT
AS ALLIE MENTIONED, THIS IS NOT
JUST A ONE-TIME THING.
JUST A ONE-TIME THING.
BY GOING THROUGH THE PROCESS YOU
BY GOING THROUGH THE PROCESS YOU
ARE ELIMINATING THIS DISEASE
ARE ELIMINATING THIS DISEASE
FROM YOUR GENETIC LINE IS YOUR
FROM YOUR GENETIC LINE IS YOUR
CHILDREN WILL NOT CARRY THE DNA
CHILDREN WILL NOT CARRY THE DNA
LINK THAT WOULD THEN BE PASSED
LINK THAT WOULD THEN BE PASSED
ON.
ON.
LET’S TALK A LITTLE BIT ABOUT
LET’S TALK A LITTLE BIT ABOUT
THE LUNCHEON, BECAUSE IT’S
THE LUNCHEON, BECAUSE IT’S
COMING UP, IF YOU GUYS WANT TO
COMING UP, IF YOU GUYS WANT TO
GET INVOLVED, THIS IS HAPPENING
GET INVOLVED, THIS IS HAPPENING
THURSDAY, AUGUST 22nd,
THURSDAY, AUGUST 22nd,
11:30 A.M. AT RIVER OAKS COUNTRY
11:30 A.M. AT RIVER OAKS COUNTRY
CLUB.
CLUB.
SO CAN PEOPLE BUY TICKETS AND
SO CAN PEOPLE BUY TICKETS AND
COME AND SUPPORT THE CAUSE?
COME AND SUPPORT THE CAUSE?
>> YES.
>> YES.
I KNOW YOU GUYS ARE GOING TO
I KNOW YOU GUYS ARE GOING TO
PROVIDE A LINK ON AS SEEN ON
PROVIDE A LINK ON AS SEEN ON
"HOUSTON LIFE" IN THE LINK YOU
"HOUSTON LIFE" IN THE LINK YOU
USE ON YOUR WEBSITE BUT ALSO
USE ON YOUR WEBSITE BUT ALSO
HELPCUREHD.ORG.
HELPCUREHD.ORG.
YOU CAN BUY INDIVIDUAL TICKETS
YOU CAN BUY INDIVIDUAL TICKETS
OR TABLES AND BRING ALL YOUR
OR TABLES AND BRING ALL YOUR
FRIENDS AND LAST YEAR WE THOUGHT
FRIENDS AND LAST YEAR WE THOUGHT
WHY NOT, LET’S GIVE THIS A SHOT
WHY NOT, LET’S GIVE THIS A SHOT
AND JOE’S TEAMMATES WERE SO
AND JOE’S TEAMMATES WERE SO
GRACIOUS TO SHOW UP AND I KNOW
GRACIOUS TO SHOW UP AND I KNOW
THEY’RE PLANNING ON IT TOO THIS
THEY’RE PLANNING ON IT TOO THIS
YEAR AND WE HAVE A LOT OF ASTROS
YEAR AND WE HAVE A LOT OF ASTROS
FANS IN THE COMMUNITY SO IT’S A
FANS IN THE COMMUNITY SO IT’S A
COOL OPPORTUNITY TO SEE THEM AND
COOL OPPORTUNITY TO SEE THEM AND
THERE’S SO MANY GREAT
THERE’S SO MANY GREAT
FOUNDATIONS ON THE TEAM TOO AND
FOUNDATIONS ON THE TEAM TOO AND
EVERYBODY SUPPORTS EACH OTHER
EVERYBODY SUPPORTS EACH OTHER
BUT ALSO JUST IT’S FUN.
BUT ALSO JUST IT’S FUN.
THERE’S SILENT AUCTION ITEMS AND
THERE’S SILENT AUCTION ITEMS AND
WE’RE GOING TO HAVE SOME REALLY
WE’RE GOING TO HAVE SOME REALLY
COOL UNIQUE EXPERIENCES THAT
COOL UNIQUE EXPERIENCES THAT
WE’RE GOING TO GIVE AWAY TOO AND
WE’RE GOING TO GIVE AWAY TOO AND
JUST AN OPPORTUNITY TO HAVE A
JUST AN OPPORTUNITY TO HAVE A
FUN DAY IN HOUSTON, AUGUST
FUN DAY IN HOUSTON, AUGUST
22nd.
22nd.
>> Derrick: VERY COOL.
>> Derrick: VERY COOL.
ALLIE AND JOE, THANKS FOR
ALLIE AND JOE, THANKS FOR
STOPPING BY AND GOING PUBLIC
STOPPING BY AND GOING PUBLIC
WITH YOUR STORY AND BEST OF LUCK
WITH YOUR STORY AND BEST OF LUCK
STARTING YOUR FAMILY.
STARTING YOUR FAMILY.
>> THANK YOU SO MUCH.
>> THANK YOU SO MUCH.
WE REALLY APPRECIATE IT.
WE REALLY APPRECIATE IT.
>> Courtney: GOOD LUCK
>> Courtney: GOOD LUCK
TONIGHT.
TONIGHT.
>> ZACK IS ON THE MOUND.
>> ZACK IS ON THE MOUND.
WE’RE EXCITED.
WE’RE EXCITED.
>> Courtney: FOR MORE
>> Courtney: FOR MORE
INFORMATION ABOUT HELP THE CURE
